Literature DB >> 17852260

Reasons for recovery after stroke: a perspective based on personal experience.

Fiona Jones1, Anne Mandy, Cecily Partridge.   

Abstract

PURPOSE: The purpose of this study was to learn more about individual beliefs and personal strategies used to support the period of recovery after stroke. It sought to identify the factors that were perceived to be enablers as well as challenges to recovery. Personal actions or experiences, which were perceived to be effective in influencing progress, would be identified.
METHOD: Qualitative in-depth interviews were carried out with 10 participants (mean age 61.8 years). Time following stroke onset ranged between 6 weeks and 13 months. All participants had some residual activity limitation and three participants had varying degrees of aphasia. The interviews were approximately 60 - 90 minutes and all data was subjected to content analysis.
RESULTS: Analyses of interview data identified two main themes which were perceived to have influenced progress after stroke. The first related to internal factors such as personal control over progress, optimism and fears of dependency and the second included more external factors, such as the influence of therapeutic interactions and success with a specified marker of independence such as dressing, washing and walking.
CONCLUSION: An important finding of this study was that individuals all identified a number of specific factors which had supported or hindered their own recovery. There were a diversity of both internal/personal and external factors which may not be surprising, given the complexity of stroke, but all participants stressed the importance of both factors. The findings from this study are preliminary and relate only to this particular group of participants, as such they cannot be generalizable to the stroke population as a whole. However, the interaction between the two themes identified requires further exploration, especially in relation to therapy which could have both a positive and negative influence on personal control. There is a clear need to understand how professionals can, in the first place, take time to identify each individual's preferences and personal goals and secondly, make sure that these are fully addressed in a planned treatment programme. This will ensure that progress in individuals after stroke is supported by professionals with a more eclectic, individualized approach.

Entities:  

Mesh:

Year:  2008        PMID: 17852260     DOI: 10.1080/09638280701355561

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  11 in total

1.  Trajectories of psychological distress after stroke.

Authors:  Jennifer H White; Parker Magin; John Attia; Jonathan Sturm; Gregory Carter; Michael Pollack
Journal:  Ann Fam Med       Date:  2012 Sep-Oct       Impact factor: 5.166

Review 2.  Uncovering treatment burden as a key concept for stroke care: a systematic review of qualitative research.

Authors:  Katie Gallacher; Deborah Morrison; Bhautesh Jani; Sara Macdonald; Carl R May; Victor M Montori; Patricia J Erwin; G David Batty; David T Eton; Peter Langhorne; Frances S Mair
Journal:  PLoS Med       Date:  2013-06-25       Impact factor: 11.069

3.  Development and psychometric evaluation of a new patient -reported outcome measure for stroke self -management: The Southampton Stroke Self - Management Questionnaire (SSSMQ).

Authors:  Emma J Boger; Matthew Hankins; Sara H Demain; Susan M Latter
Journal:  Health Qual Life Outcomes       Date:  2015-10-03       Impact factor: 3.186

Review 4.  Health state descriptions to elicit stroke values: do they reflect patient experience of stroke?

Authors:  Joanne Gray; Mabel L S Lie; Madeleine J Murtagh; Gary A Ford; Peter McMeekin; Richard G Thomson
Journal:  BMC Health Serv Res       Date:  2014-11-21       Impact factor: 2.655

5.  Aphasia and literacy-the insider's perspective.

Authors:  Emma Kjellén; Katja Laakso; Ingrid Henriksson
Journal:  Int J Lang Commun Disord       Date:  2016-12-31       Impact factor: 3.020

6.  Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and thematic synthesis.

Authors:  Molly Manning; Anne MacFarlane; Anne Hickey; Sue Franklin
Journal:  PLoS One       Date:  2019-03-22       Impact factor: 3.240

7.  Gateway to Recovery: A Comparative Analysis of Stroke Patients' Experiences of Change and Learning in Norway and Denmark.

Authors:  Hanne Pallesen; Lena Aadal; Siri Moe; Cathrine Arntzen
Journal:  Rehabil Res Pract       Date:  2019-01-17

8.  Recalibrating hope: A longitudinal study of the experiences of people with aphasia after stroke.

Authors:  Felicity A S Bright; Clare M McCann; Nicola M Kayes
Journal:  Scand J Caring Sci       Date:  2019-09-05

9.  Work-aged stroke survivors' psychosocial challenges narrated during and after participating in a dialogue-based psychosocial intervention: a feasibility study.

Authors:  Randi Martinsen; Marit Kirkevold; Berit Arnesveen Bronken; Kari Kvigne
Journal:  BMC Nurs       Date:  2013-09-25

Review 10.  Longer-term needs of stroke survivors with communication difficulties living in the community: a systematic review and thematic synthesis of qualitative studies.

Authors:  Faye Wray; David Clarke
Journal:  BMJ Open       Date:  2017-10-06       Impact factor: 2.692

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