Literature DB >> 1782126

Psychological impact of false-positive results when screening for cystic fibrosis.

A Tluczek1, E H Mischler, B Bowers, N M Peterson, M E Morris, P M Farrell, W T Bruns, H Colby, C McCarthy, N Fost.   

Abstract

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Year:  1991        PMID： 1782126     DOI： 10.1002/ppul.1950110707

Source DB:  PubMed          Journal:  Pediatr Pulmonol Suppl        ISSN： 1054-187X


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  12 in total

1.  The effect of disruptions during counseling on recall of genetic risk information: the case of cystic fibrosis.

Authors:  James Price Dillard; Lijiang Shen; Audrey Tluczek; Peggy Modaff; Philip Farrell
Journal:  J Genet Couns       Date:  2007-04       Impact factor: 2.537

Review 2.  A review of the psychosocial effects of false-positive results on parents and current communication practices in newborn screening.

Authors:  J Hewlett; S E Waisbren
Journal:  J Inherit Metab Dis       Date:  2006-08-17       Impact factor: 4.982

3.  Factors that influence parents' experiences with results disclosure after newborn screening identifies genetic carrier status for cystic fibrosis or sickle cell hemoglobinopathy.

Authors:  Jenelle L Collins; Alison La Pean; Faith O'Tool; Kerry L Eskra; Sara J Roedl; Audrey Tluczek; Michael H Farrell
Journal:  Patient Educ Couns       Date:  2012-01-11

4.  Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.

Authors:  Jeffrey R Botkin; Erin Rothwell; Rebecca A Anderson; Nancy C Rose; Siobhan M Dolan; Miriam Kuppermann; Louisa A Stark; Aaron Goldenberg; Bob Wong
Journal:  JAMA Pediatr       Date:  2016-06-01       Impact factor: 16.193

Review 5.  Newborn screening for cystic fibrosis.

Authors:  Kevin W Southern; Marieke M E Mérelle; Jeannette E Dankert-Roelse; A D Nagelkerke
Journal:  Cochrane Database Syst Rev       Date:  2009-01-21

6.  The impact of newborn screening on cystic fibrosis testing in Victoria, Australia.

Authors:  M E Balnaves; L Bonacquisto; I Francis; J Glazner; S Forrest
Journal:  J Med Genet       Date:  1995-07       Impact factor: 6.318

7.  Frequency of high-quality communication behaviors used by primary care providers of heterozygous infants after newborn screening.

Authors:  Michael H Farrell; Stephanie A Christopher
Journal:  Patient Educ Couns       Date:  2012-11-26

8.  Parental knowledge reduces long term anxiety induced by false-positive test results after newborn screening for cystic fibrosis.

Authors:  A M M Vernooij-van Langen; S M van der Pal; A J T Reijntjens; J G Loeber; E Dompeling; J E Dankert-Roelse
Journal:  Mol Genet Metab Rep       Date:  2014-08-13

9.  Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs.

Authors:  Fiona Ulph; Tim Cullinan; Nadeem Qureshi; Joe Kai
Journal:  J Genet Couns       Date:  2013-12-04       Impact factor: 2.537

10.  Parents' responses to receiving sickle cell or cystic fibrosis carrier results for their child following newborn screening.

Authors:  Fiona Ulph; Tim Cullinan; Nadeem Qureshi; Joe Kai
Journal:  Eur J Hum Genet       Date:  2014-07-09       Impact factor: 4.246
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