Literature DB >> 17687984

Visible difference amongst children and adolescents: issues and interventions.

Nichola Rumsey1, Diana Harcourt.   

Abstract

Whether present at birth or acquired later in life, a visible difference (disfigurement) can have considerable psychological ramifications for children and adolescents. Whilst many young people adapt to the demands placed upon them and appear relatively unaffected, others report difficulties including adverse effects on body image, quality of life, self-esteem and difficulty with social encounters. This review examines the issues experienced by those affected, summarizes the factors identified as exacerbating or ameliorating any difficulties, then considers the particular pressures associated with developmental stages and the issues for family members. The current provision of care, the potential benefit of psychosocial interventions and the challenges faced by researchers in this area are explored.

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Mesh:

Year:  2007        PMID: 17687984     DOI: 10.1080/13638490701217396

Source DB:  PubMed          Journal:  Dev Neurorehabil        ISSN: 1751-8423            Impact factor:   2.308


  23 in total

Review 1.  Cosmetic Surgery and Body Dysmorphic Disorder - An Update.

Authors:  S Higgins; A Wysong
Journal:  Int J Womens Dermatol       Date:  2017-11-20

2.  Body Image and Quality of Life in Adolescents With Craniofacial Conditions.

Authors:  Canice E Crerand; David B Sarwer; Anne E Kazak; Alexandra Clarke; Nichola Rumsey
Journal:  Cleft Palate Craniofac J       Date:  2016-01-11

3.  Pediatric facial transplantation: Ethical considerations.

Authors:  Jennifer Flynn; Randi Zlotnik Shaul; Mark D Hanson; Gregory H Borschel; Ronald Zuker
Journal:  Plast Surg (Oakv)       Date:  2014       Impact factor: 0.947

4.  Mothers' and fathers' reports of stress in families of infants with and without single-suture craniosynostosis.

Authors:  Janine M Rosenberg; Kathleen A Kapp-Simon; Jacqueline R Starr; Mary Michaeleen Cradock; Matthew L Speltz
Journal:  Cleft Palate Craniofac J       Date:  2010-08-19

5.  Scarring, disfigurement, and quality of life in long-term survivors of childhood cancer: a report from the Childhood Cancer Survivor study.

Authors:  Karen E Kinahan; Lisa K Sharp; Kristy Seidel; Wendy Leisenring; Aarati Didwania; Mario E Lacouture; Marilyn Stovall; Anand Haryani; Leslie L Robison; Kevin R Krull
Journal:  J Clin Oncol       Date:  2012-05-21       Impact factor: 44.544

6.  A Qualitative Study to Explore the Views and Attitudes towards Prenatal Testing in Adults Who Have Muenke Syndrome and their Partners.

Authors:  Julie Phipps; Heather Skirton
Journal:  J Genet Couns       Date:  2017-03-22       Impact factor: 2.537

7.  Shared Surgical Decision Making and Youth Resilience Correlates of Satisfaction With Clinical Outcomes.

Authors:  Kathleen A Kapp-Simon; Todd Edwards; Caroline Ruta; Claudia Crilly Bellucci; Cassandra L Aspirnall; Ronald P Strauss; Tari D Topolski; Nichola J Rumsey; Donald L Patrick
Journal:  J Craniofac Surg       Date:  2015-07       Impact factor: 1.046

8.  Coping with congenital hand differences.

Authors:  Lauren E Franzblau; Kevin C Chung; Noelle Carlozzi; Autumn Y T Chin; Kate W Nellans; Jennifer F Waljee
Journal:  Plast Reconstr Surg       Date:  2015-04       Impact factor: 4.730

9.  Evaluation of the similarities and differences in response patterns to the Pediatric Quality of Life Inventory and the Child Oral Health Impact Scores among youth with cleft.

Authors:  Hillary L Broder; Robert G Norman; Lacey Sischo; Maureen Wilson-Genderson
Journal:  Qual Life Res       Date:  2013-06-13       Impact factor: 4.147

10.  The Role of Appearance in Adolescents' Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents.

Authors:  Jenny Barke; Jane Coad; Diana Harcourt
Journal:  J Genet Couns       Date:  2016-03-22       Impact factor: 2.537

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