Literature DB >> 17491500

From diagnosis to death: exploring the interface between neurology, rehabilitation and palliative care in managing people with long-term neurological conditions.

Lynne Turner-Stokes1, Nigel Sykes, Eli Silber, Ajeet Khatri, Lucy Sutton, Erica Young.   

Abstract

This article reports a parallel survey of consultants working in the fields of neurology, rehabilitation and palliative medicine, and explores the interface between the three specialties in providing services for people with long-term neurological conditions. There was general agreement with respect to the core contributions offered by each specialty. However, there were also important areas of overlap which highlight the need for collaborative working practice, and for clinicians to respect the expertise of others in related areas. The survey highlighted a general shortfall in service provision for both palliative care and rehabilitation services for people with long-term neurological conditions, particular in the community. There was also a marked lack of coordination between services. Perhaps not surprisingly, each specialty reported greater ease of access to services within their own field, which further emphasises the need to work closely together.

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Mesh:

Year:  2007        PMID: 17491500      PMCID: PMC4951826          DOI: 10.7861/clinmedicine.7-2-129

Source DB:  PubMed          Journal:  Clin Med (Lond)        ISSN: 1470-2118            Impact factor:   2.659


  21 in total

Review 1.  Palliative care and neurology: time for a paradigm shift.

Authors:  Isabel Boersma; Janis Miyasaki; Jean Kutner; Benzi Kluger
Journal:  Neurology       Date:  2014-07-02       Impact factor: 9.910

2.  The Spectrum of Caregiving in Palliative Care for Serious, Advanced, Rare Diseases: Key Issues and Research Directions.

Authors:  Lynn S Adams; Jeri L Miller; Patricia A Grady
Journal:  J Palliat Med       Date:  2016-06-01       Impact factor: 2.947

Review 3.  Neurorehabilitation: applied neuroplasticity.

Authors:  Fary Khan; Bhasker Amatya; Mary P Galea; Roman Gonzenbach; Jürg Kesselring
Journal:  J Neurol       Date:  2016-10-24       Impact factor: 4.849

4.  Triggers for Referral to Specialized Palliative Care in Advanced Neurologic and Neurosurgical Conditions: A Systematic Review.

Authors:  Kayla McConvey; Karnig Kazazian; Alla E Iansavichene; Mary E Jenkins; Teneille Emma Gofton
Journal:  Neurol Clin Pract       Date:  2022-06

5.  Development and psychometric evaluation of a new tool for measuring the attitudes of patients with progressive neurological diseases to ethical aspects of end-of-life care.

Authors:  Radka Bužgová; Radka Kozáková
Journal:  BMC Med Ethics       Date:  2020-04-15       Impact factor: 2.652

Review 6.  Need for palliative care for neurological diseases.

Authors:  Leandro Provinciali; Giulia Carlini; Daniela Tarquini; Carlo Alberto Defanti; Simone Veronese; Eugenio Pucci
Journal:  Neurol Sci       Date:  2016-06-14       Impact factor: 3.307

7.  Stakeholder Perspectives on the Biopsychosocial and Spiritual Realities of Living With ALS: Implications for Palliative Care Teams.

Authors:  Klaudia Kukulka; Karla T Washington; Raghav Govindarajan; David R Mehr
Journal:  Am J Hosp Palliat Care       Date:  2019-03-03       Impact factor: 2.500

8.  Neurology clinicians' views on palliative care communication: "How do you frame this?"

Authors:  April Zehm; Amanda M Hazeltine; Joseph A Greer; Lara Traeger; Margaret Nelson-Lowe; Kate Brizzi; Juliet Jacobsen
Journal:  Neurol Clin Pract       Date:  2020-12

9.  Symptomatic therapy and rehabilitation in primary progressive multiple sclerosis.

Authors:  Fary Khan; Bhasker Amatya; Lynne Turner-Stokes
Journal:  Neurol Res Int       Date:  2011-10-17

10.  Home-based palliative approach for people with severe multiple sclerosis and their carers: study protocol for a randomized controlled trial.

Authors:  Alessandra Solari; Andrea Giordano; Maria Grazia Grasso; Paolo Confalonieri; Francesco Patti; Alessandra Lugaresi; Lucia Palmisano; Roberta Amadeo; Giovanni Martino; Michela Ponzio; Giuseppe Casale; Claudia Borreani; Renzo Causarano; Simone Veronese; Paola Zaratin; Mario Alberto Battaglia
Journal:  Trials       Date:  2015-04-23       Impact factor: 2.279

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