Literature DB >> 17449526

Monitoring health related quality of life in adolescents with diabetes: a review of measures.

M de Wit1, H A Delemarre-van de Waal, F Pouwer, R J B J Gemke, F J Snoek.   

Abstract

Particularly in chronic conditions, monitoring health related quality of life (HRQoL) of adolescents in clinical practice is increasingly advocated. We set out to identify and review the clinical utility of available generic and diabetes specific HRQoL questionnaires suitable for use in adolescents with type 1 diabetes. Four generic and five diabetes specific questionnaires were identified and evaluated. The responsiveness of most instruments warrants further research and standardisation of HRQoL measurement should be sought to facilitate comparisons across centres and countries. The PedsQL and the KINDL-R appear, at this time, to be the most suitable instruments.

Entities:  

Mesh：

Year:  2007        PMID： 17449526      PMCID： PMC2083731          DOI： 10.1136/adc.2006.102236

Source DB:  PubMed          Journal:  Arch Dis Child        ISSN： 0003-9888            Impact factor:   3.791


  29 in total

1.  Health-related quality-of-life assessments and patient-physician communication: a randomized controlled trial.

Authors:  Symone B Detmar; Martin J Muller; Jan H Schornagel; Lidwina D V Wever; Neil K Aaronson
Journal:  JAMA       Date:  2002-12-18       Impact factor: 56.272

Review 2.  A review of measures of quality of life for children with chronic illness.

Authors:  C Eiser; R Morse
Journal:  Arch Dis Child       Date:  2001-03       Impact factor: 3.791

3.  PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations.

Authors:  J W Varni; M Seid; P S Kurtin
Journal:  Med Care       Date:  2001-08       Impact factor: 2.983

4.  Monitoring of psychological well-being in outpatients with diabetes: effects on mood, HbA(1c), and the patient's evaluation of the quality of diabetes care: a randomized controlled trial.

Authors:  F Pouwer; F J Snoek; H M van der Ploeg; H J Adèr; R J Heine
Journal:  Diabetes Care       Date:  2001-11       Impact factor: 19.112

5.  The PedsQL 4.0 Generic Core Scales: sensitivity, responsiveness, and impact on clinical decision-making.

Authors:  James W Varni; Michael Seid; Tara Smith Knight; Karen Uzark; Ilona S Szer
Journal:  J Behav Med       Date:  2002-04

6.  The PedsQL in type 1 and type 2 diabetes: reliability and validity of the Pediatric Quality of Life Inventory Generic Core Scales and type 1 Diabetes Module.

Authors:  James W Varni; Tasha M Burwinkle; Jenifer R Jacobs; Michael Gottschalk; Francine Kaufman; Kenneth L Jones
Journal:  Diabetes Care       Date:  2003-03       Impact factor: 19.112

7.  Reliability and validity of the child health questionnaire-child form (CHQ-CF87) in a Dutch adolescent population.

Authors:  H Raat; J M Landgraf; G J Bonsel; R J B J Gemke; M L Essink-Bot
Journal:  Qual Life Res       Date:  2002-09       Impact factor: 4.147

8.  General quality of life in youth with type 1 diabetes: relationship to patient management and diabetes-specific family conflict.

Authors:  Lori M B Laffel; Alexa Connell; Laura Vangsness; Ann Goebel-Fabbri; Abigail Mansfield; Barbara J Anderson
Journal:  Diabetes Care       Date:  2003-11       Impact factor: 19.112

9.  Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments.

Authors:  M Graue; T Wentzel-Larsen; B R Hanestad; B Båtsvik; O Søvik
Journal:  Acta Paediatr       Date:  2003-10       Impact factor: 2.299

10.  The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity.

Authors:  James W Varni; Tasha M Burwinkle; Michael Seid; Douglas Skarr
Journal:  Ambul Pediatr       Date:  2003 Nov-Dec
View more
  22 in total

Review 1.  No pain, no gain? Integrating QoL assessment in paediatrics.

Authors:  Christine Eiser
Journal:  Arch Dis Child       Date:  2007-05       Impact factor: 3.791

2.  [Health-related quality of life].

Authors:  Luis Lizán Tudela
Journal:  Aten Primaria       Date:  2009-05-15       Impact factor: 1.137

3.  A multicenter, observational, prospective study of self- and parent-reported quality of life in adolescent multiple sclerosis patients self-administering interferon-β1a using RebiSmart™-the FUTURE study.

Authors:  A Ghezzi; A Bianchi; D Baroncini; A Bertolotto; S Malucchi; V Bresciamorra; R Lanzillo; N Milani; V Martinelli; F Patti; C Chisari; M Rottoli; M Simone; D Paolicelli; A Visconti
Journal:  Neurol Sci       Date:  2017-08-22       Impact factor: 3.307

4.  Health-related quality of life across pediatric chronic conditions.

Authors:  Lisa M Ingerski; Avani C Modi; Korey K Hood; Ahna L Pai; Meg Zeller; Carrie Piazza-Waggoner; Kimberly A Driscoll; Marc E Rothenberg; James Franciosi; Kevin A Hommel
Journal:  J Pediatr       Date:  2010-02-01       Impact factor: 4.406

5.  Cardiovascular fitness and quality of life in adolescents with type 1 or type 2 diabetes.

Authors:  Melissa Spezia Faulkner
Journal:  J Spec Pediatr Nurs       Date:  2010-10       Impact factor: 1.260

6.  Factors Associated With Diabetes-Specific Health-Related Quality of Life in Youth With Type 1 Diabetes: The Global TEENs Study.

Authors:  Barbara J Anderson; Lori M Laffel; Catherine Domenger; Thomas Danne; Moshe Phillip; Carmen Mazza; Ragnar Hanas; Sheridan Waldron; Roy W Beck; Francoise Calvi-Gries; Chantal Mathieu
Journal:  Diabetes Care       Date:  2017-05-25       Impact factor: 19.112

7.  Prospects and challenges in using patient-reported outcomes in clinical practice.

Authors:  Constance H Fung; Ron D Hays
Journal:  Qual Life Res       Date:  2008-08-18       Impact factor: 4.147

8.  Quality of life in First Nation youth with type 2 diabetes.

Authors:  Cindy L Allan; Bertha Flett; Heather J Dean
Journal:  Matern Child Health J       Date:  2008-05-24

9.  Giving voice to the child perspective: psychometrics and relative precision findings for the Child Health Questionnaire self-report short form (CHQ-CF45).

Authors:  Jeanne M Landgraf; Amy van Grieken; Hein Raat
Journal:  Qual Life Res       Date:  2018-05-17       Impact factor: 4.147

10.  Parent versus child assessment of quality of life in children using cochlear implants.

Authors:  Andrea D Warner-Czyz; Betty Loy; Peter S Roland; Liyue Tong; Emily A Tobey
Journal:  Int J Pediatr Otorhinolaryngol       Date:  2009-08-11       Impact factor: 1.675
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.