Literature DB >> 14632337

Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments.

M Graue1, T Wentzel-Larsen, B R Hanestad, B Båtsvik, O Søvik.   

Abstract

AIMS: To describe perceived functional health and well-being and diabetes-related impact, worry and satisfaction with life in relation to demographic and clinical variables in a population of adolescents with type 1 diabetes. To compare perceived functional health and well-being between adolescents with diabetes and a group of healthy controls and to analyse the relationship between generic functional health and well-being and diabetes-related impact, worry and satisfaction with life.
METHODS: A total of 130 adolescents were invited to complete the Child Health Questionnaire (CHQ-CF87) and the Diabetes Quality of Life (DQOL) questionnaire modified for youths. A total of 115 (88.5%) subjects participated in the study; mean age 14.5 y (SD 1.86), mean duration of diabetes 6.99 y (SD 3.77, range 1-16 y), mean HbA1c 9.3% (SD 1.62, range 6.2-14.0%). Forty-eight percent of the subjects were girls.
RESULTS: When compared with healthy adolescents, subjects with diabetes reported a significantly lower degree of general health. The CHQ-CF87 scales showed that higher age in adolescents with diabetes was associated with lower scores for mental health (p < 0.001), self-esteem (p < 0.001), behaviour (p = 0.004) and general health (p < 0.001). Findings from the DQOL questionnaire showed that older adolescents were more worried (p < 0.001), perceived a greater impact of diabetes on daily life (p = 0.008) and lower diabetes-related life satisfaction (p < 0.001). The scores for girls were lower than those for boys in assessment of mental health (p < 0.001), self-esteem (p = 0.004) and family cohesion (p = 0.002). Girls also reported a greater impact of diabetes (p = 0.028), more worries (p = 0.001) and less satisfaction with life (p = 0.006) than boys. Neither HbA1c, nor other clinical variables could sufficiently explain the variations in DQOL or CHQ-CF87.
CONCLUSIONS: Health-related quality of life varied significantly by age and gender, but less so by HbA1c and other clinical variables. Adolescents with diabetes reported a significantly lower degree of general health than that reported by healthy controls. The CHQ-CF87 is a valuable supplement to DQOL, allowing for comparisons with the general population.

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Year:  2003        PMID: 14632337

Source DB:  PubMed          Journal:  Acta Paediatr        ISSN: 0803-5253            Impact factor:   2.299


  37 in total

1.  Reliability and validity of the Norwegian child and parent versions of the DISABKIDS Chronic Generic Module (DCGM-37) and Diabetes-Specific Module (DSM-10).

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Review 2.  Monitoring health related quality of life in adolescents with diabetes: a review of measures.

Authors:  M de Wit; H A Delemarre-van de Waal; F Pouwer; R J B J Gemke; F J Snoek
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Review 3.  Children with diabetes compared to peers: depressed? Distressed? A meta-analytic review.

Authors:  Kerry A Reynolds; Vicki S Helgeson
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4.  A framework for the youth with type 1 diabetes during the emerging adulthood transition.

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5.  Age, metabolic control and type of insulin regime influences health-related quality of life in children and adolescents with type 1 diabetes mellitus.

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Authors:  Shama Sud; Margaret Marcon; Esther Assor; Mark R Palmert; Denis Daneman; Farid H Mahmud
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8.  Diabetes-related quality of life and the demands and burdens of diabetes care among emerging adults with type 1 diabetes in the year after high school graduation.

Authors:  Kathleen M Hanna; Michael T Weaver; James E Slaven; J Dennis Fortenberry; Linda A DiMeglio
Journal:  Res Nurs Health       Date:  2014-08-27       Impact factor: 2.228

9.  Quality of life of children and adolescents with diabetes of Northern Greek origin.

Authors:  E Emmanouilidou; A Galli-Tsinopoulou; A Karavatos; S Nousia-Arvanitakis
Journal:  Hippokratia       Date:  2008-07       Impact factor: 0.471

10.  Life satisfaction decreases during adolescence.

Authors:  Lutz Goldbeck; Tim G Schmitz; Tanja Besier; Peter Herschbach; Gerhard Henrich
Journal:  Qual Life Res       Date:  2007-04-12       Impact factor: 4.147

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