Literature DB >> 17177946

Information needs and information sources of individuals living with spinal cord injury.

Jacquelyn A Burkell1, Dalton L Wolfe, Patrick J Potter, Jeffrey W Jutai.   

Abstract

AIMS AND
OBJECTIVES: Access to health information is important for the well-being of people living in the community after spinal cord injury (SCI). In order to design appropriate information interventions, it is critical first to understand the information sources typically used. The goal of this study therefore is to identify the information-seeking practices of this group. SAMPLE AND METHODS: A sample of 207 individuals living in the community following traumatic spinal cord injury were surveyed regarding their ongoing information needs and practices for seeking information.
RESULTS: The results reveal that respondents have unmet information needs, despite the fact that they typically access information through a variety of channels. SCI specialists are the most commonly used source, although they are viewed as relatively inaccessible. By contrast, the Internet (used by a relatively high proportion of respondents) is viewed as comparatively accessible, although there are some concerns about the quality of information found there.
CONCLUSIONS: These survey results point to the need for an information source that is accessible and delivers high quality information. Although respondents use a variety of information sources, none meets this ideal profile. Information professionals should consider this gap in the design of information interventions.

Entities:  

Mesh:

Year:  2006        PMID: 17177946     DOI: 10.1111/j.1471-1842.2006.00686.x

Source DB:  PubMed          Journal:  Health Info Libr J        ISSN: 1471-1834


  21 in total

1.  Quality of websites with patient information about spinal cord injury in Spanish.

Authors:  M Bea-Muñoz; M Medina-Sánchez; M T Flórez-García
Journal:  Spinal Cord       Date:  2015-10-20       Impact factor: 2.772

2.  Pressure ulcer knowledge, beliefs and practices in a group of South Africans with spinal cord injury.

Authors:  Adri Marica Visser; Surona Visagie
Journal:  Spinal Cord Ser Cases       Date:  2019-10-14

3.  Information needs of people with spinal cord injuries.

Authors:  Becky Matter; Melanie Feinberg; Katherine Schomer; Mark Harniss; Pat Brown; Kurt Johnson
Journal:  J Spinal Cord Med       Date:  2009       Impact factor: 1.985

4.  How individuals with spinal cord injury in the United States access and assess information about experimental therapies and clinical trials: results of a clinical survey.

Authors:  Clara Farrehi; Carlotta Pazzi; Maclain Capron; Kim Anderson; Bonnie Richardson; Michael Stillman
Journal:  Spinal Cord Ser Cases       Date:  2020-11-23

5.  Potential of personal health record portals in the care of individuals with spinal cord injuries and disorders: Provider perspectives.

Authors:  Jennifer N Hill; Bridget M Smith; Frances M Weaver; Kim M Nazi; Florian P Thomas; Barry Goldstein; Timothy P Hogan
Journal:  J Spinal Cord Med       Date:  2017-03-21       Impact factor: 1.985

6.  SCI-U: e-learning for patient education in spinal cord injury rehabilitation.

Authors:  John D Shepherd; Karla M Badger-Brown; Matthew S Legassic; Saagar Walia; Dalton L Wolfe
Journal:  J Spinal Cord Med       Date:  2012-09       Impact factor: 1.985

Review 7.  A narrative literature review to direct spinal cord injury patient education programming.

Authors:  Kim van Wyk; Amber Backwell; Andrea Townson
Journal:  Top Spinal Cord Inj Rehabil       Date:  2015

8.  Patients' perspectives on pain.

Authors:  Cecilia Norrbrink; Monika Löfgren; Judith P Hunter; Jaqueline Ellis
Journal:  Top Spinal Cord Inj Rehabil       Date:  2012

9.  Experiences With Navigating and Managing Information in the Community Following Spinal Cord Injury.

Authors:  Alyse Lennox; Belinda Gabbe; Andrew Nunn; Sandra Braaf
Journal:  Top Spinal Cord Inj Rehabil       Date:  2018-05-03

10.  Perceptions of Shared Decision Making Among Patients with Spinal Cord Injuries/Disorders.

Authors:  Sara M Locatelli; Bella Etingen; Allen Heinemann; Holly DeMark Neumann; Ana Miskovic; David Chen; Sherri L LaVela
Journal:  Top Spinal Cord Inj Rehabil       Date:  2016
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