Jennifer N Hill1, Bridget M Smith1,2, Frances M Weaver1,3, Kim M Nazi4, Florian P Thomas5, Barry Goldstein6, Timothy P Hogan7,8. 1. a Center of Innovation for Complex Chronic Health Care , Edward Hines Jr. VA Hospital, Veterans Health Administration , Hines , Illinois , USA. 2. b Department of Pediatrics , Northwestern University , Chicago , Illinois , USA. 3. c Department of Public Health Sciences, Stritch School of Medicine , Loyola University , Maywood , Illinois , USA. 4. d Veterans and Consumers Health Informatics Office, Office of Connected Care, Veterans Health Administration , Washington , DC , USA. 5. e Neuroscience Institute, Hackensack University Medical Center, and Seton Hall-Hackensack-Meridian School of Medicine , Hackensack , New Jersey , USA. 6. f Patient Care Services, Spinal Cord Injury and Disorder Services, Veterans Health Administration , Seattle , Washington , USA. 7. g Center for Healthcare Organization and Implementation Research, Edith Nourse Rogers Memorial Veterans Hospital, Veterans Health Administration , Bedford , Massachusetts , USA. 8. h Division of Health Informatics and Implementation Science, Department of Quantitative Health Sciences , University of Massachusetts Medical School , Worcester , Massachusetts , USA.
Abstract
CONTEXT/ OBJECTIVE: Although personal health record (PHR) portals are designed for patients, healthcare providers are a key influence in how patients use their features and realize benefits from them. A few studies have examined provider attitudes toward PHR portals, but none have focused on those who care for individuals with spinal cord injuries and disorders (SCI/D). We characterize SCI/D provider perspectives of PHR portals, including perceived advantages and disadvantages of PHR portal use in SCI/D care. DESIGN: Cross-sectional; semi-structured interviews. SETTING: Spinal Cord Injury (SCI) Centers in the Veterans Health Administration. PARTICIPANTS: Twenty-six SCI/D healthcare providers. INTERVENTIONS: None. OUTCOME MEASURES: Perceived advantages and disadvantages of PHR portals. RESULTS: The complex situations of individuals with SCI/D shaped provider perspectives of PHR portals and their potential role in practice. Perceived advantages of PHR portal use in SCI/D care included the ability to coordinate information and care, monitor and respond to outpatient requests, support patient self-management activities, and provide reliable health information to patients. Perceived disadvantages of PHR portal use in SCI/D care included concerns about the quality of patient-generated health data, other potential liabilities for providers and workload burden, and the ability of individuals with SCI/D to understand clinical information accessed through a portal. CONCLUSION: Our study highlights advantages and disadvantages that should be considered when promoting engagement of SCI/D healthcare providers in use of PHR portals, and portal features that may have the most utility in SCI/D care.
CONTEXT/ OBJECTIVE: Although personal health record (PHR) portals are designed for patients, healthcare providers are a key influence in how patients use their features and realize benefits from them. A few studies have examined provider attitudes toward PHR portals, but none have focused on those who care for individuals with spinal cord injuries and disorders (SCI/D). We characterize SCI/D provider perspectives of PHR portals, including perceived advantages and disadvantages of PHR portal use in SCI/D care. DESIGN: Cross-sectional; semi-structured interviews. SETTING:Spinal Cord Injury (SCI) Centers in the Veterans Health Administration. PARTICIPANTS: Twenty-six SCI/D healthcare providers. INTERVENTIONS: None. OUTCOME MEASURES: Perceived advantages and disadvantages of PHR portals. RESULTS: The complex situations of individuals with SCI/D shaped provider perspectives of PHR portals and their potential role in practice. Perceived advantages of PHR portal use in SCI/D care included the ability to coordinate information and care, monitor and respond to outpatient requests, support patient self-management activities, and provide reliable health information to patients. Perceived disadvantages of PHR portal use in SCI/D care included concerns about the quality of patient-generated health data, other potential liabilities for providers and workload burden, and the ability of individuals with SCI/D to understand clinical information accessed through a portal. CONCLUSION: Our study highlights advantages and disadvantages that should be considered when promoting engagement of SCI/D healthcare providers in use of PHR portals, and portal features that may have the most utility in SCI/D care.
Entities:
Keywords:
Patient portals; Personal health records; Provider attitudes; Spinal cord injury
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