Literature DB >> 17085401

Undesirable implications of disclosing individual genetic results to research participants.

Leslie A Meltzer1.   

Abstract

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Year:  2006        PMID： 17085401     DOI： 10.1080/15265160600935811

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  34 in total

1.  Disclosing pathogenic genetic variants to research participants: quantifying an emerging ethical responsibility.

Authors:  Christopher A Cassa; Sarah K Savage; Patrick L Taylor; Robert C Green; Amy L McGuire; Kenneth D Mandl
Journal:  Genome Res       Date:  2012-01-06       Impact factor: 9.043

2.  Ethical challenges in genotype-driven research recruitment.

Authors:  Laura M Beskow; Kristen N Linney; Rodney A Radtke; Erin L Heinzen; David B Goldstein
Journal:  Genome Res       Date:  2010-04-23       Impact factor: 9.043

3.  Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.

Authors:  Joanna Stjernschantz Forsberg; Mats G Hansson; Stefan Eriksson
Journal:  Eur J Hum Genet       Date:  2009-05-27       Impact factor: 4.246

Review 4.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

Review 5.  Population biobanks and returning individual research results: mission impossible or new directions?

Authors:  Susan E Wallace; Alastair Kent
Journal:  Hum Genet       Date:  2011-06-05       Impact factor: 4.132

6.  Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Authors:  Robin Zoe Hayeems; Fiona Alice Miller; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2011-03-16       Impact factor: 4.246

7.  One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants.

Authors:  Fiona Alice Miller; Robin Zoe Hayeems; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2012-02-15       Impact factor: 4.246

8.  Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.

Authors:  Laurence Baret; Beatrice Godard
Journal:  Eur J Hum Genet       Date:  2011-06-15       Impact factor: 4.246

9.  Recommendations for ethical approaches to genotype-driven research recruitment.

Authors:  Laura M Beskow; Stephanie M Fullerton; Emily E Namey; Daniel K Nelson; Arlene M Davis; Benjamin S Wilfond
Journal:  Hum Genet       Date:  2012-05-24       Impact factor: 4.132

10.  Offering individual genetic research results: context matters.

Authors:  Laura M Beskow; Wylie Burke
Journal:  Sci Transl Med       Date:  2010-06-30       Impact factor: 17.956
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