Literature DB >> 17085399

Letting the gene out of the bottle: a comment on returning individual research results to participants.

Pilar N Ossorio1.   

Abstract

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Year:  2006        PMID： 17085399     DOI： 10.1080/15265160600935555

Source DB:  PubMed          Journal:  Am J Bioeth        ISSN： 1526-5161            Impact factor:   11.229


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  15 in total

1.  Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of results.

Authors:  Joanna Stjernschantz Forsberg; Mats G Hansson; Stefan Eriksson
Journal:  Eur J Hum Genet       Date:  2009-05-27       Impact factor: 4.246

2.  Not so simple: a quasi-experimental study of how researchers adjudicate genetic research results.

Authors:  Robin Zoe Hayeems; Fiona Alice Miller; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2011-03-16       Impact factor: 4.246

3.  One thing leads to another: the cascade of obligations when researchers report genetic research results to study participants.

Authors:  Fiona Alice Miller; Robin Zoe Hayeems; Li Li; Jessica Peace Bytautas
Journal:  Eur J Hum Genet       Date:  2012-02-15       Impact factor: 4.246

4.  Offering individual genetic research results: context matters.

Authors:  Laura M Beskow; Wylie Burke
Journal:  Sci Transl Med       Date:  2010-06-30       Impact factor: 17.956

5.  Finding Fault? Exploring Legal Duties to Return Incidental Findings in Genomic Research.

Authors:  Elizabeth R Pike; Karen H Rothenberg; Benjamin E Berkman
Journal:  Georgetown Law J       Date:  2014

6.  Biobank participation and returning research results: perspectives from a deliberative engagement in South Side Chicago.

Authors:  Amy A Lemke; Colin Halverson; Lainie Friedman Ross
Journal:  Am J Med Genet A       Date:  2012-03-21       Impact factor: 2.802

7.  Prospective biorepository participants' perspectives on access to research results.

Authors:  Laura M Beskow; Sondra J Smolek
Journal:  J Empir Res Hum Res Ethics       Date:  2009-09       Impact factor: 1.742

Review 8.  The law of incidental findings in human subjects research: establishing researchers' duties.

Authors:  Susan M Wolf; Jordan Paradise; Charlisse Caga-anan
Journal:  J Law Med Ethics       Date:  2008       Impact factor: 1.718

Review 9.  The research participant perspective related to the conduct of genomic cohort studies: A systematic review of the quantitative literature.

Authors:  Deborah Goodman; Deborah Bowen; Lari Wenzel; Paris Tehrani; Francis Fernando; Araksi Khacheryan; Farihah Chowdhury; Catherine O Johnson; Karen Edwards
Journal:  Transl Behav Med       Date:  2018-01-29       Impact factor: 3.046

10.  Considerations for designing a prototype genetic test for use in translational research.

Authors:  C H Wade; C M McBride; S L R Kardia; L C Brody
Journal:  Public Health Genomics       Date:  2009-09-03       Impact factor: 2.000
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