Literature DB >> 17046807

Bereavement support for families following the death of a child from cancer: experience of bereaved parents.

Natarlie deCinque1, Leanne Monterosso, Gaye Dadd, Ranita Sidhu, Rosemary Macpherson, Samar Aoun.   

Abstract

This study explored the experiences and needs of nine parents who had received hospital-based bereavement support following the death of their child from cancer, in Western Australia. Six prominent themes emerged from thematic data analysis: personal grief, personal coping, concern for siblings of the deceased child, hospital bereavement support, community supports and unmet needs. Parents identified the need for more supportive contact from hospital staff during the palliative phase and following the child's death, early provision of information on how to practically and emotionally prepare for the death of their child, contact with other bereaved parents, and formal grief support for siblings. Areas for future research include exploration of parents' wish to become involved in activities to help others, bereavement support for siblings, the level of contact with the hospital unit that may be therapeutically beneficial, and parental behaviors associated with accessing both hospital and community-based bereavement supports.

Entities:  

Mesh:

Year:  2006        PMID: 17046807     DOI: 10.1300/J077v24n02_05

Source DB:  PubMed          Journal:  J Psychosoc Oncol        ISSN: 0734-7332


  15 in total

1.  Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups.

Authors:  Susanne Inglin; Rainer Hornung; Eva Bergstraesser
Journal:  Eur J Pediatr       Date:  2011-01-29       Impact factor: 3.183

2.  Changes in siblings after the death of a child from cancer.

Authors:  Terrah L Foster; Mary Jo Gilmer; Kathryn Vannatta; Maru Barrera; Betty Davies; Mary S Dietrich; Diane L Fairclough; Cynthia A Gerhardt
Journal:  Cancer Nurs       Date:  2012 Sep-Oct       Impact factor: 2.592

3.  Parent's perceptions of health care providers actions around child ICU death: what helped, what did not.

Authors:  Dorothy Brooten; Joanne M Youngblut; Lynn Seagrave; Carmen Caicedo; Dawn Hawthorne; Ivette Hidalgo; Rosa Roche
Journal:  Am J Hosp Palliat Care       Date:  2012-04-24       Impact factor: 2.500

Review 4.  Pediatric palliative care - The role of the patient's family.

Authors:  Carl Friedrich Classen
Journal:  World J Clin Pediatr       Date:  2012-10-08

5.  Personalized and yet standardized: An informed approach to the integration of bereavement care in pediatric oncology settings.

Authors:  Lori Wiener; Abby R Rosenberg; Wendy G Lichtenthal; Julia Tager; Meaghann S Weaver
Journal:  Palliat Support Care       Date:  2018-02-01

Review 6.  Bereavement Follow-Up After the Death of a Child as a Standard of Care in Pediatric Oncology.

Authors:  Wendy G Lichtenthal; Corinne R Sweeney; Kailey E Roberts; Geoffrey W Corner; Leigh A Donovan; Holly G Prigerson; Lori Wiener
Journal:  Pediatr Blood Cancer       Date:  2015-12       Impact factor: 3.167

Review 7.  Integration of palliative care practices into the ongoing care of children with cancer: individualized care planning and coordination.

Authors:  Justin N Baker; Pamela S Hinds; Sheri L Spunt; Raymond C Barfield; Caitlin Allen; Brent C Powell; Lisa H Anderson; Javier R Kane
Journal:  Pediatr Clin North Am       Date:  2008-02       Impact factor: 3.278

8.  Unresolved grief in a national sample of bereaved parents: impaired mental and physical health 4 to 9 years later.

Authors:  Patrizia K Lannen; Joanne Wolfe; Holly G Prigerson; Erik Onelov; Ulrika C Kreicbergs
Journal:  J Clin Oncol       Date:  2008-11-24       Impact factor: 44.544

9.  The Influence of Parent Distress and Parenting on Bereaved Siblings' Externalizing Problems.

Authors:  Katianne M Howard Sharp; Emily A Meadows; Madelaine C Keim; Adrien M Winning; Maru Barrera; Mary Jo Gilmer; Terrah Foster Akard; Bruce E Compas; Diane L Fairclough; Betty Davies; Nancy Hogan; Kathryn Vannatta; Cynthia A Gerhardt
Journal:  J Child Fam Stud       Date:  2019-12-10

10.  Initial development and psychometric testing of an instrument to measure the quality of children's end-of-life care.

Authors:  Kimberley Widger; Ann E Tourangeau; Rose Steele; David L Streiner
Journal:  BMC Palliat Care       Date:  2015-01-13       Impact factor: 3.234

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