Literature DB >> 16909151

Protecting the Navajo People through tribal regulation of research.

Doug Brugge1, Mariam Missaghian.   

Abstract

This essay explores the process and issues related to community collaborative research that involves Native Americans generally, and specifically examines the Navajo Nation's efforts to regulate research within its jurisdiction. Researchers need to account for both the experience of Native Americans and their own preconceptions about Native Americans when conducting research about Native Americans. The Navajo Nation institutionalized an approach to protecting members of the nation when it took over Institutional Review Board (IRB) responsibilities from the US Indian Health Service (IHS) in 1996. While written regulations for the Navajo Nation IRB are not dissimilar, and in some ways are less detailed than those of the IHS IRB, in practice the Navajo Nation allows less flexibility. Primary examples of this include not allowing expedited review and requiring prepublication review of all manuscripts. Because of its broad mandate, the Navajo Nation IRB may also require review of some projects that would not normally be subject to IRB approval, including investigative journalism and secondary research about Navajo People that does not involve direct data collection from human subjects.

Entities:  

Mesh:

Year:  2006        PMID: 16909151     DOI: 10.1007/s11948-006-0047-2

Source DB:  PubMed          Journal:  Sci Eng Ethics        ISSN: 1353-3452            Impact factor:   3.525


  8 in total

1.  The Navajo Healing Project.

Authors:  T J Csordas
Journal:  Med Anthropol Q       Date:  2000-12

2.  The ethics of research in American Indian communities.

Authors:  Murray L Wax
Journal:  Am Indian Q       Date:  1991

3.  Who has the responsibility? An evolving model to resolve ethical problems in intercultural research.

Authors:  C L Attneave
Journal:  Am Indian Alsk Native Ment Health Res       Date:  1989

4.  Community-based research as a tool for empowerment: the Haida Gwaii Diabetes Project example.

Authors:  C P Herbert
Journal:  Can J Public Health       Date:  1996 Mar-Apr

5.  Research in American Indian and Alaska Native communities: navigating the cultural universe of values and process.

Authors:  I M Norton; S M Manson
Journal:  J Consult Clin Psychol       Date:  1996-10

6.  Western bioethics on the Navajo reservation. Benefit or harm?

Authors:  J A Carrese; L A Rhodes
Journal:  JAMA       Date:  1995-09-13       Impact factor: 56.272

7.  The history of uranium mining and the Navajo people.

Authors:  Doug Brugge; Rob Goble
Journal:  Am J Public Health       Date:  2002-09       Impact factor: 9.308

8.  A partnership study of PCBs and the health of Mohawk youth: lessons from our past and guidelines for our future.

Authors:  L M Schell; A M Tarbell
Journal:  Environ Health Perspect       Date:  1998-06       Impact factor: 9.031

  8 in total
  28 in total

1.  Weaving the native web: using social network analysis to demonstrate the value of a minority career development program.

Authors:  Dedra Buchwald; Rhonda Wiegman Dick
Journal:  Acad Med       Date:  2011-06       Impact factor: 6.893

2.  Research with groups: group rights, group consent, and collaborative research commentary on "Protecting the Navajo People through tribal regulation of research".

Authors:  Brian Schrag
Journal:  Sci Eng Ethics       Date:  2006-07       Impact factor: 3.525

3.  Self-governance, self-representation, self-determination and the questions of research ethics--commentary on "Protecting the Navajo People through tribal regulation of research".

Authors:  Chip Colwell-Chanthaphonh
Journal:  Sci Eng Ethics       Date:  2006-07       Impact factor: 3.525

4.  The development of the Bronx Community Research Review Board: a pilot feasibility project for a model of community consultation.

Authors:  Francisco Martin del Campo; Joann Casado; Paulette Spencer; Hal Strelnick
Journal:  Prog Community Health Partnersh       Date:  2013

5.  Lessons from the Navajo: assistance with environmental data collection ensures cultural humility and data relevance.

Authors:  Jamie DeLemos; Tommy Rock; Doug Brugge; Naomi Slagowski; Thomas Manning; Johnnye Lewis
Journal:  Prog Community Health Partnersh       Date:  2007

6.  Community-Based Review of Research Across Diverse Community Contexts: Key Characteristics, Critical Issues, and Future Directions.

Authors:  Nancy Shore; Angela Ford; Eric Wat; Missy Brayboy; Mei-Ling Isaacs; Alice Park; Hal Strelnick; Sarena D Seifer
Journal:  Am J Public Health       Date:  2015-05-14       Impact factor: 9.308

7.  The adaptation and implementation of a community-based participatory research curriculum to build tribal research capacity.

Authors:  Valarie Blue Bird Jernigan; Tvli Jacob; Dennis Styne
Journal:  Am J Public Health       Date:  2015-04-23       Impact factor: 9.308

8.  Enhancing stewardship of community-engaged research through governance.

Authors:  John G Oetzel; Malia Villegas; Heather Zenone; Emily R White Hat; Nina Wallerstein; Bonnie Duran
Journal:  Am J Public Health       Date:  2015-04-16       Impact factor: 9.308

9.  Assessing tribal youth physical activity and programming using a community-based participatory research approach.

Authors:  Cynthia Perry; Barbara Hoffman
Journal:  Public Health Nurs       Date:  2010 Mar-Apr       Impact factor: 1.462

10.  Not a One-Size-Fits-All Approach: Building Tribal Infrastructure for Research Through CRCAIH.

Authors:  Melissa Buffalo; Jessica Heinzmann; DenYelle Baete Kenyon; Kathryn Blindman; Simone Bordeaux; Anita Frederick; Erin Garrison; Crystal Greensky; Heather Larsen; Tonya Kjerland; Victoria Grey Owl
Journal:  Am Indian Alsk Native Ment Health Res       Date:  2019
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