Literature DB >> 16908462

Developing a quality criteria framework for patient decision aids: online international Delphi consensus process.

Glyn Elwyn1, Annette O'Connor, Dawn Stacey, Robert Volk, Adrian Edwards, Angela Coulter, Richard Thomson, Alexandra Barratt, Michael Barry, Steven Bernstein, Phyllis Butow, Aileen Clarke, Vikki Entwistle, Deb Feldman-Stewart, Margaret Holmes-Rovner, Hilary Llewellyn-Thomas, Nora Moumjid, Al Mulley, Cornelia Ruland, Karen Sepucha, Alan Sykes, Tim Whelan.   

Abstract

OBJECTIVE: To develop a set of quality criteria for patient decision support technologies (decision aids). DESIGN AND
SETTING: Two stage web based Delphi process using online rating process to enable international collaboration. PARTICIPANTS: Individuals from four stakeholder groups (researchers, practitioners, patients, policy makers) representing 14 countries reviewed evidence summaries and rated the importance of 80 criteria in 12 quality domains on a 1 to 9 scale. Second round participants received feedback from the first round and repeated their assessment of the 80 criteria plus three new ones. MAIN OUTCOME MEASURE: Aggregate ratings for each criterion calculated using medians weighted to compensate for different numbers in stakeholder groups; criteria rated between 7 and 9 were retained.
RESULTS: 212 nominated people were invited to participate. Of those invited, 122 participated in the first round (77 researchers, 21 patients, 10 practitioners, 14 policy makers); 104/122 (85%) participated in the second round. 74 of 83 criteria were retained in the following domains: systematic development process (9/9 criteria); providing information about options (13/13); presenting probabilities (11/13); clarifying and expressing values (3/3); using patient stories (2/5); guiding/coaching (3/5); disclosing conflicts of interest (5/5); providing internet access (6/6); balanced presentation of options (3/3); using plain language (4/6); basing information on up to date evidence (7/7); and establishing effectiveness (8/8).
CONCLUSIONS: Criteria were given the highest ratings where evidence existed, and these were retained. Gaps in research were highlighted. Developers, users, and purchasers of patient decision aids now have a checklist for appraising quality. An instrument for measuring quality of decision aids is being developed.

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Year:  2006        PMID: 16908462      PMCID: PMC1553508          DOI: 10.1136/bmj.38926.629329.AE

Source DB:  PubMed          Journal:  BMJ        ISSN: 0959-8138


  26 in total

Review 1.  Feasibility and effects of decision aids.

Authors:  S Molenaar; M A Sprangers; F C Postma-Schuit; E J Rutgers; J Noorlander; J Hendriks; H C de Haes
Journal:  Med Decis Making       Date:  2000 Jan-Mar       Impact factor: 2.583

2.  European criteria for the appropriateness and necessity of coronary revascularization procedures.

Authors:  K Fitch; P Lázaro; M D Aguilar; J P Kahan; M van het Loo; S J Bernstein
Journal:  Eur J Cardiothorac Surg       Date:  2000-10       Impact factor: 4.191

Review 3.  Decision aids: are they worth it? A systematic review.

Authors:  C Estabrooks; V Goel; E Thiel; P Pinfold; C Sawka; I Williams
Journal:  J Health Serv Res Policy       Date:  2001-07

Review 4.  Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination.

Authors:  Anna Gagliardi; Alejandro R Jadad
Journal:  BMJ       Date:  2002-03-09

5.  Effects of decision aids for menorrhagia on treatment choices, health outcomes, and costs: a randomized controlled trial.

Authors:  Andrew D M Kennedy; Mark J Sculpher; Angela Coulter; Nuala Dwyer; Margaret Rees; Keith R Abrams; Susan Horsley; Deborah Cowley; Christine Kidson; Catherine Kirwin; Caroline Naish; Gordon Stirrat
Journal:  JAMA       Date:  2002-12-04       Impact factor: 56.272

Review 6.  The potential contribution of decision aids to screening programmes.

Authors:  V Entwistle
Journal:  Health Expect       Date:  2001-06       Impact factor: 3.377

7.  Letters, numbers, symbols and words: how to communicate grades of evidence and recommendations.

Authors:  Holger J Schünemann; Dana Best; Gunn Vist; Andrew D Oxman
Journal:  CMAJ       Date:  2003-09-30       Impact factor: 8.262

8.  Development and validation of an international appraisal instrument for assessing the quality of clinical practice guidelines: the AGREE project.

Authors: 
Journal:  Qual Saf Health Care       Date:  2003-02

9.  The development of a routine NHS data-based index of performance in general practice (NHSPPI).

Authors:  David J Heaney; Jeremy J Walker; John G R Howie; Margaret Maxwell; George K Freeman; Peter N E Berrey; Tom G Jones; Morag C Stern; Stephen M Campbell
Journal:  Fam Pract       Date:  2002-02       Impact factor: 2.267

Review 10.  Decision aids for people facing health treatment or screening decisions.

Authors:  A M O'Connor; D Stacey; V Entwistle; H Llewellyn-Thomas; D Rovner; M Holmes-Rovner; V Tait; J Tetroe; V Fiset; M Barry; J Jones
Journal:  Cochrane Database Syst Rev       Date:  2003
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  571 in total

1.  Audio-video decision support for patients: the documentary genré as a basis for decision aids.

Authors:  Angelo E Volandes; Michael J Barry; Fiona Wood; Glyn Elwyn
Journal:  Health Expect       Date:  2011-10-28       Impact factor: 3.377

2.  Conjoint analysis: a 'new' way to evaluate patients' preferences.

Authors:  Sarah T Hawley
Journal:  Patient       Date:  2008-12-01       Impact factor: 3.883

3.  Design and evaluation of a decision aid for inviting parents to participate in a fragile X newborn screening pilot study.

Authors:  Donald B Bailey; Megan A Lewis; Shelly L Harris; Tracey Grant; Carla Bann; Ellen Bishop; Myra Roche; Sonia Guarda; Leah Barnum; Cynthia Powell; Bradford L Therrell
Journal:  J Genet Couns       Date:  2012-06-27       Impact factor: 2.537

4.  Collaborating with youth to inform and develop tools for psychotropic decision making.

Authors:  Andrea Murphy; David Gardner; Stan Kutcher; Simon Davidson; Ian Manion
Journal:  J Can Acad Child Adolesc Psychiatry       Date:  2010-11

5.  Impact of educational and patient decision aids on decisional conflict associated with total knee arthroplasty.

Authors:  Sofia de Achaval; Liana Fraenkel; Robert J Volk; Vanessa Cox; Maria E Suarez-Almazor
Journal:  Arthritis Care Res (Hoboken)       Date:  2012-02       Impact factor: 4.794

6.  Successful clinical trial research in nursing homes: the Improving Decision-Making Study.

Authors:  Laura C Hanson; Robin Gilliam; Tae Joon Lee
Journal:  Clin Trials       Date:  2010-08-20       Impact factor: 2.486

7.  Preference of endoscopic ablation over medical prevention of esophageal adenocarcinoma by patients with Barrett's esophagus.

Authors:  Patrick Yachimski; Sachin Wani; Tonya Givens; Eric Howard; Tina Higginbotham; Angie Price; Kenneth Berman; Lindsay Hosford; Paul Menard Katcher; Elissa Ozanne; Katherine Perzan; Chin Hur
Journal:  Clin Gastroenterol Hepatol       Date:  2014-03-26       Impact factor: 11.382

Review 8.  Shared Decision-Making with Parents of Acutely Ill Children: A Narrative Review.

Authors:  Paul L Aronson; Eugene D Shapiro; Linda M Niccolai; Liana Fraenkel
Journal:  Acad Pediatr       Date:  2017-07-16       Impact factor: 3.107

9.  Assessing Patient Participation in Health Policy Decision-Making in Cyprus.

Authors:  Kyriakos Souliotis; Eirini Agapidaki; Lily Evangelia Peppou; Chara Tzavara; George Samoutis; Mamas Theodorou
Journal:  Int J Health Policy Manag       Date:  2016-08-01

10.  Prediction of health professionals' intention to screen for decisional conflict in clinical practice.

Authors:  France Légaré; Ian D Graham; Annette C O'Connor; Michèle Aubin; Lucie Baillargeon; Yvan Leduc; Jean Maziade
Journal:  Health Expect       Date:  2007-12       Impact factor: 3.377

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