Literature DB >> 16897397

Assessing need for social support in parents of children with autism and Down syndrome.

Susan Siklos1, Kimberly A Kerns.   

Abstract

Parents of children with autism frequently turn to the service delivery system to access supports designed to help adapt to the challenges of having a child with a life-long impairment. Although studies have suggested various supports and coping strategies that are effective for adapting, few studies have examined parents' own perceptions of needs, and whether parents felt their needs were being met. In the present study the Family Needs Questionnaire (FNQ; Waaland et al., 1993) was modified to address needs for children with developmental disorders. A sample of fifty-six parents of children with autism and a comparison group of thirty-two parents of children with Down syndrome completed the FNQ. The groups did not differ significantly on the number of important needs reported nor the number of important needs being met. However, the two groups differed in the types of supports they most frequently endorsed as Important or Unmet.

Entities:  

Mesh:

Year:  2006        PMID: 16897397     DOI: 10.1007/s10803-006-0129-7

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  29 in total

1.  A screening questionnaire for Asperger syndrome and other high-functioning autism spectrum disorders in school age children.

Authors:  S Ehlers; C Gillberg; L Wing
Journal:  J Autism Dev Disord       Date:  1999-04

2.  Is there an epidemic of autism?

Authors:  E Fombonne
Journal:  Pediatrics       Date:  2001-02       Impact factor: 7.124

3.  The power to choose: supports for families caring for individuals with developmental disabilities.

Authors:  R I Freedman; N C Boyer
Journal:  Health Soc Work       Date:  2000-02

4.  Factors influencing adjustment in the families of autistic children.

Authors:  D Henderson; B Vandenberg
Journal:  Psychol Rep       Date:  1992-08

5.  Behavior checklist for identifying severely handicapped individuals with high levels of autistic behavior.

Authors:  D A Krug; J Arick; P Almond
Journal:  J Child Psychol Psychiatry       Date:  1980-07       Impact factor: 8.982

Review 6.  The autistic child and family functioning: a developmental-family systems perspective.

Authors:  S B Morgan
Journal:  J Autism Dev Disord       Date:  1988-06

7.  The impact of young children with externalizing behaviors on their families.

Authors:  G Donenberg; B L Baker
Journal:  J Abnorm Child Psychol       Date:  1993-04

8.  Psychosocial adaptation of fathers of children with autism, Down syndrome, and normal development.

Authors:  J R Rodrigue; S B Morgan; G R Geffken
Journal:  J Autism Dev Disord       Date:  1992-06

Review 9.  Brain damage is a family affair.

Authors:  M D Lezak
Journal:  J Clin Exp Neuropsychol       Date:  1988-01       Impact factor: 2.475

10.  The handicapped child: psychological effects of parental, marital, and sibling relationships.

Authors:  S Fisman; L Wolf
Journal:  Psychiatr Clin North Am       Date:  1991-03
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  26 in total

1.  Social Support as Mediator and Moderator of the Relationship Between Parenting Stress and Life Satisfaction Among the Chinese Parents of Children with ASD.

Authors:  Ming-Hui Lu; Guang-Hai Wang; Hao Lei; Meng-Liang Shi; Rui Zhu; Fan Jiang
Journal:  J Autism Dev Disord       Date:  2018-04

2.  A national sample of preschoolers with autism spectrum disorders: special education services and parent satisfaction.

Authors:  Amy Bitterman; Tamara C Daley; Sunil Misra; Elaine Carlson; Joy Markowitz
Journal:  J Autism Dev Disord       Date:  2008-01-29

3.  Support needs of fathers and mothers of children and adolescents with autism spectrum disorder.

Authors:  Sigan L Hartley; Haley M Schultz
Journal:  J Autism Dev Disord       Date:  2015-06

4.  Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions.

Authors:  Rini Vohra; Suresh Madhavan; Usha Sambamoorthi; Claire St Peter
Journal:  Autism       Date:  2013-12-18

5.  Correlates of Attachment Perceptions in Parents of Children with Autism Spectrum Disorders.

Authors:  Sabrina J Goodman; David S Glenwick
Journal:  J Autism Dev Disord       Date:  2012-10

6.  Mediating Effects of Social Support on Quality of Life for Parents of Adults with Autism.

Authors:  Christina N Marsack; Preethy S Samuel
Journal:  J Autism Dev Disord       Date:  2017-08

7.  Factors Mediating Dysphoric Moods and Help Seeking Behaviour Among Australian Parents of Children with Autism.

Authors:  Matthew Snow; James Donnelly
Journal:  J Autism Dev Disord       Date:  2016-06

8.  Beyond an autism diagnosis: children's functional independence and parents' unmet needs.

Authors:  Hilary K Brown; Hélène Ouellette-Kuntz; Duncan Hunter; Elizabeth Kelley; Virginie Cobigo; Miu Lam
Journal:  J Autism Dev Disord       Date:  2011-10

9.  Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents.

Authors:  Staci Martin; Pamela L Wolters; Andrea Baldwin; Marie Claire Roderick; Mary Anne Toledo-Tamula; Andrea Gillespie; Brigitte Widemann
Journal:  J Genet Couns       Date:  2014-01-28       Impact factor: 2.537

10.  A 'cure' for Down syndrome: what do parents want?

Authors:  A Inglis; Z Lohn; J C Austin; C Hippman
Journal:  Clin Genet       Date:  2014-03-21       Impact factor: 4.438

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