Literature DB >> 10689604

The power to choose: supports for families caring for individuals with developmental disabilities.

R I Freedman1, N C Boyer.   

Abstract

In an exploratory study of family support services in Massachusetts, three focus groups were convened to obtain the perspectives of parents caring for individuals with developmental disabilities and living at home. This article summarizes key themes that emerged from the group discussions: effects of family supports on family life, flexibility of supports, barriers, unmet needs, and recommendations for change. Social workers and health care professionals can enhance the well-being of people with developmental disabilities and their families by addressing the needs of the entire family, facilitating family choice and control of supports, and helping families navigate the complex service system.

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Year:  2000        PMID: 10689604     DOI: 10.1093/hsw/25.1.59

Source DB:  PubMed          Journal:  Health Soc Work        ISSN: 0360-7283


  11 in total

1.  Prevention of secondary conditions in fetal alcohol spectrum disorders: identification of systems-level barriers.

Authors:  Christie L M Petrenko; Naira Tahir; Erin C Mahoney; Nancy P Chin
Journal:  Matern Child Health J       Date:  2014-08

2.  Support needs of fathers and mothers of children and adolescents with autism spectrum disorder.

Authors:  Sigan L Hartley; Haley M Schultz
Journal:  J Autism Dev Disord       Date:  2015-06

3.  Assessing need for social support in parents of children with autism and Down syndrome.

Authors:  Susan Siklos; Kimberly A Kerns
Journal:  J Autism Dev Disord       Date:  2006-10

4.  Implications of childhood autism for parental employment and earnings.

Authors:  Zuleyha Cidav; Steven C Marcus; David S Mandell
Journal:  Pediatrics       Date:  2012-03-19       Impact factor: 7.124

5.  "In the driver's seat": Parent perceptions of choice in a participant-directed medicaid waiver program for young children with autism.

Authors:  Maria T Timberlake; Walter N Leutz; Marji Erickson Warfield; Giuseppina Chiri
Journal:  J Autism Dev Disord       Date:  2014-04

6.  Mothers of children with special health care needs: documenting the experience of their children's care in the school setting.

Authors:  Lori S Anderson
Journal:  J Sch Nurs       Date:  2009-04-21       Impact factor: 2.835

7.  Perceived burden and neuropsychiatric morbidities in adults with 22q11.2 deletion syndrome.

Authors:  D J Karas; G Costain; E W C Chow; A S Bassett
Journal:  J Intellect Disabil Res       Date:  2012-10-29

8.  Parenting stress in South Korean mothers of adolescent children with autism spectrum disorder.

Authors:  Ji Kyung Lee; Hsu-Min Chiang
Journal:  Int J Dev Disabil       Date:  2017-02-01

9.  Needs assessment in unmet healthcare and family support services: A survey of caregivers of children and youth with autism spectrum disorder in Delaware.

Authors:  Sudha Srinivasan; Annalisa Ekbladh; Brian Freedman; Anjana Bhat
Journal:  Autism Res       Date:  2021-04-19       Impact factor: 4.633

10.  Challenges faced by parents of children with learning disabilities in Opuwo, Namibia.

Authors:  Clever Taderera; Herna Hall
Journal:  Afr J Disabil       Date:  2017-07-26
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