Literature DB >> 16819458

Consent and anonymization in research involving biobanks: differing terms and norms present serious barriers to an international framework.

Bernice S Elger1, Arthur L Caplan.   

Abstract

Mesh：

Year:  2006        PMID： 16819458      PMCID： PMC1500833          DOI： 10.1038/sj.embor.7400740

Source DB:  PubMed          Journal:  EMBO Rep        ISSN： 1469-221X            Impact factor:   8.807


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  21 in total

1.  Storm brews over gene bank of Estonian population.

Authors:  L Frank
Journal:  Science       Date:  1999-11-12       Impact factor: 47.728

2.  Biobanks. Population databases boom, from Iceland to the U.S.

Authors:  Jocelyn Kaiser
Journal:  Science       Date:  2002-11-08       Impact factor: 47.728

3.  The debate over research on stored biological samples: what do sources think?

Authors:  Dave Wendler; Ezekiel Emanuel
Journal:  Arch Intern Med       Date:  2002-07-08

Review 4.  Biobanking: international norms.

Authors:  Bartha Maria Knoppers
Journal:  J Law Med Ethics       Date:  2005       Impact factor: 1.718

5.  The Babel of genetic data terminology.

Authors:  Bartha Maria Knoppers; Madelaine Saginur
Journal:  Nat Biotechnol       Date:  2005-08       Impact factor: 54.908

6.  [Ethical problems presented by collections of biological material and associated data: "biobanks", "bioethics"].

Authors: 
Journal:  J Int Bioethique       Date:  2005 Sep-Dec

Review 7.  One-time general consent for research on biological samples.

Authors:  David Wendler
Journal:  BMJ       Date:  2006-03-04

Review 8.  Cancer risk and oxidative DNA damage in man.

Authors:  S Loft; H E Poulsen
Journal:  J Mol Med (Berl)       Date:  1996-06       Impact factor: 4.599

9.  Recommended policies for uses of human tissue in research, education, and quality control. Ad Hoc Committee on Stored Tissue, College of American Pathologists.

Authors:  W Grizzle; W W Grody; W W Noll; M E Sobel; S A Stass; T Trainer; H Travers; V Weedn; K Woodruff
Journal:  Arch Pathol Lab Med       Date:  1999-04       Impact factor: 5.534

10.  [Genetic research on blood samples stored for years in biobanks. Most people are willing to provide informed consent].

Authors:  Birgitta Stegmayr; Kjell Asplund
Journal:  Lakartidningen       Date:  2003-02-20
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  53 in total

1.  Biobank governance: heterogeneous modes of ordering and democratization.

Authors:  Herbert Gottweis; Georg Lauss
Journal:  J Community Genet       Date:  2011-12-07

2.  Research ethics in the era of personalized medicine: updating science's contract with society.

Authors:  Eric M Meslin; Mildred K Cho
Journal:  Public Health Genomics       Date:  2010-08-31       Impact factor: 2.000

Review 3.  Biobanks: importance, implications and opportunities for genetic counselors.

Authors:  Alice K Hawkins
Journal:  J Genet Couns       Date:  2010-08-03       Impact factor: 2.537

Review 4.  Integrating biobanks: addressing the practical and ethical issues to deliver a valuable tool for cancer research.

Authors:  R William G Watson; Elaine W Kay; David Smith
Journal:  Nat Rev Cancer       Date:  2010-08-12       Impact factor: 60.716

Review 5.  Research ethics and the challenge of whole-genome sequencing.

Authors:  Amy L McGuire; Timothy Caulfield; Mildred K Cho
Journal:  Nat Rev Genet       Date:  2008-02       Impact factor: 53.242

6.  What is anonymous?

Authors:  J Jaap Nietfeld
Journal:  EMBO Rep       Date:  2007-06       Impact factor: 8.807

7.  Ethical, legal, and social considerations in conducting the Human Microbiome Project.

Authors:  Amy L McGuire; James Colgrove; Simon N Whitney; Christina M Diaz; Daniel Bustillos; James Versalovic
Journal:  Genome Res       Date:  2008-10-29       Impact factor: 9.043

8.  [Current legal framework conditions for running and utilization of biobanks. Part 2: data protection and informed consent].

Authors:  J Haier
Journal:  Chirurg       Date:  2013-10       Impact factor: 0.955

Review 9.  Informed consent in genomics and genetic research.

Authors:  Amy L McGuire; Laura M Beskow
Journal:  Annu Rev Genomics Hum Genet       Date:  2010       Impact factor: 8.929

10.  Health Research with Big Data: Time for Systemic Oversight.

Authors:  Effy Vayena; Alessandro Blasimme
Journal:  J Law Med Ethics       Date:  2018-03-27       Impact factor: 1.718
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