Literature DB >> 16678423

Brain donation for research: who donates and why?

T Garrick1, S Howell, P Terwee, J Redenbach, H Blake, C Harper.   

Abstract

Understanding what influences people to donate or not donate body organs is critical for the future of transplant surgery and medical research. Are people involved with a brain donor program for research influenced by the same factors, and are they also donors for organ transplantation? Using web-based technology, people involved in an Australian brain donation program (for research) were asked to complete a questionnaire designed to elicit demographic information, motivational factors and information about involvement in organ transplantation programs. The response rate was 82%. The majority of people involved in the program are young, well-educated Australian females. Seventy-eight percent are involved in other organ and tissue donation programs. People involved in the 'Using our Brains' program are the same group as those who are organ and tissue donors. An improvement in the overall donation rate might be possible if the resources of the research and transplant organisations were combined.

Entities:  

Mesh:

Year:  2006        PMID: 16678423     DOI: 10.1016/j.jocn.2005.06.014

Source DB:  PubMed          Journal:  J Clin Neurosci        ISSN: 0967-5868            Impact factor:   1.961


  11 in total

1.  Post mortem examinations in diffuse intrinsic pontine glioma: challenges and chances.

Authors:  Paola Angelini; Cynthia Hawkins; Normand Laperriere; Eric Bouffet; Ute Bartels
Journal:  J Neurooncol       Date:  2010-05-16       Impact factor: 4.130

2.  Frontotemporal dementia caregivers and researchers: partnering for brain donation.

Authors:  Mary Guerriero Austrom; S L-J Dickinson; S S Denny; B R Matthews; S Gao; Y Lu
Journal:  Am J Alzheimers Dis Other Demen       Date:  2011-10-20       Impact factor: 2.035

3.  Perceptions of tissue storage in a dementia population among spouses and offspring.

Authors:  Megan M Martin; Erin W Rothwell; Vickie L Venne; Norman L Foster
Journal:  J Genet Couns       Date:  2015-02-03       Impact factor: 2.537

4.  An Australian Brain Bank: a critical investment with a high return!

Authors:  D Sheedy; T Garrick; I Dedova; C Hunt; R Miller; N Sundqvist; C Harper
Journal:  Cell Tissue Bank       Date:  2008-06-10       Impact factor: 1.522

5.  Community perceptions related to brain donation: Evidence for intervention.

Authors:  Catherine W Striley; Sadaf A Milani; Evan Kwiatkowski; Steven T DeKosky; Linda B Cottler
Journal:  Alzheimers Dement       Date:  2018-10-23       Impact factor: 21.566

Review 6.  Banking brains: a pre-mortem "how to" guide to successful donation.

Authors:  Daniel Trujillo Diaz; Nora C Hernandez; Etty P Cortes; Phyllis L Faust; Jean Paul G Vonsattel; Elan D Louis
Journal:  Cell Tissue Bank       Date:  2018-09-15       Impact factor: 1.522

7.  A platform for discovery: The University of Pennsylvania Integrated Neurodegenerative Disease Biobank.

Authors:  Jon B Toledo; Vivianna M Van Deerlin; Edward B Lee; EunRan Suh; Young Baek; John L Robinson; Sharon X Xie; Jennifer McBride; Elisabeth M Wood; Theresa Schuck; David J Irwin; Rachel G Gross; Howard Hurtig; Leo McCluskey; Lauren Elman; Jason Karlawish; Gerard Schellenberg; Alice Chen-Plotkin; David Wolk; Murray Grossman; Steven E Arnold; Leslie M Shaw; Virginia M-Y Lee; John Q Trojanowski
Journal:  Alzheimers Dement       Date:  2013-08-24       Impact factor: 21.566

8.  Making a family decision to donate the brain for genomic research: lessons from the genotype-tissue expression project (GTEx).

Authors:  Laura A Siminoff; Deborah Mash; Maureen Wilson-Genderson; Heather M Gardiner; Maghboeba Mosavel; Laura Barker
Journal:  Cell Tissue Bank       Date:  2021-01-02       Impact factor: 1.752

9.  Why people donate their brain to science: a systematic review.

Authors:  Meng-Jiun Penny Lin; Tanisha Jowsey; Maurice A Curtis
Journal:  Cell Tissue Bank       Date:  2019-09-19       Impact factor: 1.522

10.  Brain donation in psychiatry: results of a Dutch prospective donor program among psychiatric cohort participants.

Authors:  Geertje M de Lange; Marleen Rademaker; Marco P Boks; Saskia J M C Palmen
Journal:  BMC Psychiatry       Date:  2017-10-20       Impact factor: 3.630

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