Literature DB >> 30365929

Community perceptions related to brain donation: Evidence for intervention.

Catherine W Striley1, Sadaf A Milani2, Evan Kwiatkowski2, Steven T DeKosky2, Linda B Cottler2.   

Abstract

INTRODUCTION: Research progress on neurocognitive disorders requires donation of both healthy and diseased brains. Here, we describe attitudes toward brain donation among a large community sample in Florida.
METHODS: HealthStreet, a community engagement program at the University of Florida, used community health workers to assess community attitudes toward research participation, including brain donation.
RESULTS: Over 60% of people, primarily Caucasian and employed, indicated that they would be likely or somewhat likely to donate their brain for research. Those who would be willing to donate were also more likely to be willing to participate in other research studies and to have participated in research. DISCUSSION: Brain donation will add to the science of disorders of aging, including accurate diagnoses and validation of in vivo biomarkers. Increasing willingness to donate is a first step toward donation. Community populations are willing; community health workers can educate others about the need for this initiative in communities.
Copyright © 2018 the Alzheimer's Association. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Alzheimer's; Brain donation; Community health worker; Dementia; Epidemiology; Public health; Research perceptions

Mesh:

Year:  2018        PMID: 30365929      PMCID: PMC7224447          DOI: 10.1016/j.jalz.2018.09.005

Source DB:  PubMed          Journal:  Alzheimers Dement        ISSN: 1552-5260            Impact factor:   21.566


  17 in total

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Journal:  Am J Alzheimers Dis Other Demen       Date:  2011-10-18       Impact factor: 2.035

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4.  Frontotemporal dementia caregivers and researchers: partnering for brain donation.

Authors:  Mary Guerriero Austrom; S L-J Dickinson; S S Denny; B R Matthews; S Gao; Y Lu
Journal:  Am J Alzheimers Dis Other Demen       Date:  2011-10-20       Impact factor: 2.035

5.  Assessing families' and patients' attitudes toward brain donation for research purposes in a Brazilian population sample.

Authors:  M K Fonseca; E Rodrigues-Neto; A S R Costa; M A B C Rockembach; R S Padilha; L L Fernandez; F H Oliveira; L P Garcia; A Hilbig
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6.  Community needs, concerns, and perceptions about health research: findings from the clinical and translational science award sentinel network.

Authors:  Linda B Cottler; Donna Jo McCloskey; Sergio Aguilar-Gaxiola; Nancy M Bennett; Hal Strelnick; Molly Dwyer-White; Deborah E Collyar; Shaun Ajinkya; Sarena D Seifer; Catina Callahan O'Leary; Catherine W Striley; Bradley Evanoff
Journal:  Am J Public Health       Date:  2013-02-14       Impact factor: 9.308

7.  Will My Soul Go to Heaven If They Take My Brain? Beliefs and Worries About Brain Donation Among Four Ethnic Groups.

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Journal:  Gerontologist       Date:  2017-08-01

8.  Incentives and barriers to research participation and brain donation among African Americans.

Authors:  Tyler Schnieders; Deborah D Danner; Caitlin McGuire; Flores Reynolds; Erin Abner
Journal:  Am J Alzheimers Dis Other Demen       Date:  2013-05-31       Impact factor: 2.035

9.  Post-mortem correlates of in vivo PiB-PET amyloid imaging in a typical case of Alzheimer's disease.

Authors:  Milos D Ikonomovic; William E Klunk; Eric E Abrahamson; Chester A Mathis; Julie C Price; Nicholas D Tsopelas; Brian J Lopresti; Scott Ziolko; Wenzhu Bi; William R Paljug; Manik L Debnath; Caroline E Hope; Barbara A Isanski; Ronald L Hamilton; Steven T DeKosky
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Journal:  Genet Med       Date:  2009-05       Impact factor: 8.822

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  5 in total

1.  The HealthStreet Cancer Survivor Cohort: a Community Registry for Cancer Research.

Authors:  Ting-Yuan David Cheng; Piyush V Chaudhari; Kevin R Bitsie; Catherine W Striley; Deepthi S Varma; Linda B Cottler
Journal:  J Cancer Surviv       Date:  2022-01-28       Impact factor: 4.062

2.  Perceptions and attitudes towards companion animal brain banking in pet owners: A UK pilot study.

Authors:  Thomas J A Cardy; Daniel Jewth-Ahuja; Abbe H Crawford
Journal:  Vet Rec Open       Date:  2022-05-28

3.  The Health Equity Through Aging Research And Discussion (HEARD) Study: A Proposed Two-Phase Sequential Mixed-Methods Research Design To Understand Barriers And Facilitators Of Brain Donation Among Diverse Older Adults.

Authors:  Crystal M Glover; Raj C Shah; David A Bennett; Robert S Wilson; Lisa L Barnes
Journal:  Exp Aging Res       Date:  2020-04-08       Impact factor: 1.645

4.  Perceived Impediments to Completed Brain Autopsies Among Diverse Older Adults Who Have Signed a Uniform Anatomical Gift Act for Brain Donation for Clinical Research.

Authors:  Crystal M Glover; Raj C Shah; David A Bennett; Robert S Wilson; Lisa L Barnes
Journal:  Ethn Dis       Date:  2020-11-19       Impact factor: 1.847

5.  Willingness to Participate in Health Research Among Community-Dwelling Middle-Aged and Older Adults: Does Race/Ethnicity Matter?

Authors:  Sadaf Arefi Milani; Michael Swain; Ayodeji Otufowora; Linda B Cottler; Catherine W Striley
Journal:  J Racial Ethn Health Disparities       Date:  2020-08-17
  5 in total

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