Literature DB >> 16578943

Exploring the concept of genetic discrimination.

Margaret Otlowski1.   

Abstract

The issue of genetic discrimination has attracted growing attention and has been the focus of a recent major Australian inquiry. It is, however, a complex and loaded notion, open to interpretation. This paper explores the concept of genetic discrimination in both its theoretical and practical dimensions. It examines its conceptual underpinnings, how it is understood, and how this understanding fits within the legal framework of disability discrimination. The paper also examines the phenomenon in practice, including the 'fear factor' and the resulting implications for the development of regulatory policy. The paper argues that we need to be discerning in our interpretation of this term, and differentiate between discriminatory conduct which is legal and illegal. Further, it is argued that a concerted societal response to the 'problem' of genetic discrimination is needed involving targeted legal reforms as well as broader non-legal strategies.

Entities:  

Keywords:  Analytical Approach; Australian Health Ethics Committee; Australian Law Reform Commission; Genetics and Reproduction; Legal Approach

Mesh:

Year:  2005        PMID: 16578943     DOI: 10.1007/bf02448597

Source DB:  PubMed          Journal:  J Bioeth Inq        ISSN: 1176-7529            Impact factor:   1.352


  19 in total

1.  Genetic privacy, discrimination, and social policy: challenges and dilemmas.

Authors:  Michael S Yesley
Journal:  Microb Comp Genomics       Date:  1997

2.  Individual, family, and societal dimensions of genetic discrimination: a case study analysis.

Authors:  Lisa N Geller; Joseph S Alper; Paul R Billings; Carol I Barash; Jonathan Beckwith; Marvin R Natowicz
Journal:  Sci Eng Ethics       Date:  1996-01       Impact factor: 3.525

Review 3.  Policy before practice: genetic discrimination reviewed.

Authors:  Phyllis Griffin Epps
Journal:  Am J Pharmacogenomics       Date:  2003

Review 4.  What makes genetic discrimination exceptional?

Authors:  Deborah Hellman
Journal:  Am J Law Med       Date:  2003

5.  Investigating genetic discrimination in Australia: opportunities and challenges in the early stages.

Authors:  Sandra D Taylor; Margaret F Otlowski; Kristine K Barlow-Stewart; Susan A Treloar; Mark Stranger; Kellie Chenoweth
Journal:  New Genet Soc       Date:  2004-08

6.  Genetic discrimination in life insurance: empirical evidence from a cross sectional survey of genetic support groups in the United Kingdom.

Authors:  L Low; S King; T Wilkie
Journal:  BMJ       Date:  1998-12-12

7.  Genetic counseling and testing in families with hereditary nonpolyposis colorectal cancer.

Authors:  Donald W Hadley; Jean Jenkins; Eileen Dimond; Kenneth Nakahara; Liam Grogan; David J Liewehr; Seth M Steinberg; Ilan Kirsch
Journal:  Arch Intern Med       Date:  2003-03-10

8.  Factors influencing patients' decisions to decline cancer genetic counseling services.

Authors:  K P Geer; M E Ropka; W F Cohn; S M Jones; S Miesfeldt
Journal:  J Genet Couns       Date:  2001-02       Impact factor: 2.537

9.  Points to consider in preventing unfair discrimination based on genetic disease risk: a position statement of the American College of Medical Genetics.

Authors:  M S Watson; C L Greene
Journal:  Genet Med       Date:  2001 Nov-Dec       Impact factor: 8.822

10.  What is genetic discrimination, and when and how can it be prevented?

Authors:  M A Rothstein; M R Anderlik
Journal:  Genet Med       Date:  2001 Sep-Oct       Impact factor: 8.822

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  2 in total

1.  Views of discrimination among individuals confronting genetic disease.

Authors:  Robert Klitzman
Journal:  J Genet Couns       Date:  2010-02       Impact factor: 2.537

2.  Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease.

Authors:  Yvonne Bombard; Elizabeth Penziner; Oksana Suchowersky; Mark Guttman; Jane S Paulsen; Joan L Bottorff; Michael R Hayden
Journal:  Eur J Hum Genet       Date:  2007-10-24       Impact factor: 4.246

  2 in total

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