Literature DB >> 16533677

Informed choice in antenatal Down syndrome screening: a cluster-randomised trial of combined versus separate visit testing.

Elizabeth Dormandy1, Susan Michie, Richard Hooper, Theresa M Marteau.   

Abstract

OBJECTIVE: Building upon the results of an observational study, this clinical trial aimed to test the hypothesis that conducting antenatal Down syndrome screening (DSS) at the same time as other tests result in higher rates of informed choice to accept DSS, than when it is conducted separately from other tests.
METHODS: The trial used a cluster-randomised controlled design, with informed choice as the outcome measure. The post of midwife was randomised to offer DSS at the same time as other tests (combined visit) or separately from other tests (separate visit).
RESULTS: Overall 43.5% of women made an informed choice about DSS. There was no difference in rates of informed choice for women accepting DSS according to the method of conducting testing (23.7% at combined visit versus 22.5% at separate visit, OR = 1.1, 95% CI: 0.70-1.7, p = 0.67).
CONCLUSION: Rates of informed choice about DSS were low, but there was no evidence to support that hypothesis that conducting testing at that same time as other tests increased rates of informed choice. This may reflect the limitations of conducting the trial in one centre.

Entities:  

Mesh:

Year:  2006        PMID: 16533677     DOI: 10.1016/j.pec.2005.02.006

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  26 in total

1.  Information and decision support needs of parents considering amniocentesis: interviews with pregnant women and health professionals.

Authors:  Marie-Anne Durand; Mareike Stiel; Jacky Boivin; Glyn Elwyn
Journal:  Health Expect       Date:  2010-06       Impact factor: 3.377

Review 2.  Measuring informed choice in population-based reproductive genetic screening: a systematic review.

Authors:  Alice Grace Ames; Sylvia Ann Metcalfe; Alison Dalton Archibald; Rony Emily Duncan; Jon Emery
Journal:  Eur J Hum Genet       Date:  2014-05-21       Impact factor: 4.246

3.  Enhancing HIV vaccine trial consent preparedness among street drug users.

Authors:  Celia B Fisher
Journal:  J Empir Res Hum Res Ethics       Date:  2010-06       Impact factor: 1.742

4.  Preparing Parents to Make An Informed Choice About Antibiotic Use for Common Acute Respiratory Infections in Children: A Randomised Trial of Brief Decision Aids in a Hypothetical Scenario.

Authors:  Peter D Coxeter; Chris B Del Mar; Tammy C Hoffmann
Journal:  Patient       Date:  2017-08       Impact factor: 3.883

5.  Development of a fragile X syndrome (FXS) knowledge scale: towards a modified multidimensional measure of informed choice for FXS population carrier screening.

Authors:  Alice G Ames; Alice Jaques; Obioha C Ukoumunne; Alison D Archibald; Rony E Duncan; Jon Emery; Sylvia A Metcalfe
Journal:  Health Expect       Date:  2012-10-15       Impact factor: 3.377

6.  Impact of an informed choice invitation on uptake of screening for diabetes in primary care (DICISION): randomised trial.

Authors:  Theresa M Marteau; Eleanor Mann; A Toby Prevost; Joana C Vasconcelos; Ian Kellar; Simon Sanderson; Michael Parker; Simon Griffin; Stephen Sutton; Ann Louise Kinmonth
Journal:  BMJ       Date:  2010-05-13

7.  A randomized trial of a prenatal genetic testing interactive computerized information aid.

Authors:  Lynn M Yee; Michael Wolf; Rebecca Mullen; Ashley R Bergeron; Stacy Cooper Bailey; Robert Levine; William A Grobman
Journal:  Prenat Diagn       Date:  2014-03-18       Impact factor: 3.050

8.  Does labeling prenatal screening test results as negative or positive affect a woman's responses?

Authors:  Brian J Zikmund-Fisher; Angela Fagerlin; Kristie Keeton; Peter A Ubel
Journal:  Am J Obstet Gynecol       Date:  2007-09-19       Impact factor: 8.661

9.  NIPT and Informed Consent: an Assessment of Patient Understanding of a Negative NIPT Result.

Authors:  Julie L Piechan; Karrie A Hines; Daniel L Koller; Kristyne Stone; Kimberly Quaid; Wilfredo Torres-Martinez; Divya Wilson Mathews; Tatiana Foroud; Lola Cook
Journal:  J Genet Couns       Date:  2016-04-01       Impact factor: 2.537

Review 10.  Use of patient decision aids increased younger women's reluctance to begin screening mammography: a systematic review and meta-analysis.

Authors:  Ilya Ivlev; Erin N Hickman; Marian S McDonagh; Karen B Eden
Journal:  J Gen Intern Med       Date:  2017-03-13       Impact factor: 5.128

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