Literature DB >> 16525897

The relationship of nondirectiveness to genetic counseling: report of a workshop at the 2003 NSGC Annual Education Conference.

Jon Weil1, Kelly Ormond, June Peters, Kathryn Peters, Barbara Bowles Biesecker, Bonnie LeRoy.   

Abstract

Nondirectiveness has been a guiding principle for genetic counseling since the founding of the profession. However, its efficacy and appropriateness in this role have been frequently questioned. A workshop at the 2003 Annual Education Conference of the National Society of Genetic Counselors provided audience participation in a discussion of these issues. Participants presented arguments for and against nondirectiveness as a central ethos. They described complex personal transitions in adapting what they had learned about nondirectiveness during training to the realities of the workplace. There was support for flexible approaches to genetic counseling, with varying adherence to nondirectiveness, based on client and family needs and values, clinical circumstances, and desired counseling outcomes. The discussion supports the use of clinical experience, outcomes research, and the experience of other professions to move beyond nondirectiveness and more accurately identify the theoretical bases that underlie genetic counseling in the variety of circumstances in which it is currently practiced.

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Year:  2006        PMID: 16525897     DOI: 10.1007/s10897-005-9008-1

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  27 in total

1.  Shared decision making and non-directiveness in genetic counselling.

Authors:  G Elwyn; J Gray; A Clarke
Journal:  J Med Genet       Date:  2000-02       Impact factor: 6.318

2.  Psychological aspects of genetic counseling: XII. More on counseling skills.

Authors:  Seymour Kessler
Journal:  J Genet Couns       Date:  1998-06       Impact factor: 2.537

3.  "Respect for autonomy" in genetic counseling: an analysis and a proposal.

Authors:  Mary Terrell White
Journal:  J Genet Couns       Date:  1997-09       Impact factor: 2.537

4.  Development and pilot testing of a decision aid for postmenopausal women with osteoporosis.

Authors:  Ann Cranney; Annette M O'Connor; Mary J Jacobsen; Peter Tugwell; Jonathan D Adachi; Daylily S Ooi; Lisa Waldegger; Rose Goldstein; George A Wells
Journal:  Patient Educ Couns       Date:  2002-07

5.  Variation in content in prenatal genetic counseling interviews.

Authors:  B M Burke; A Kolker
Journal:  J Genet Couns       Date:  1994-03       Impact factor: 2.537

6.  Directiveness in prenatal genetic counseling.

Authors:  B M Burke; A Kolker
Journal:  Women Health       Date:  1994

7.  Psychological Aspects of Genetic Counseling: XIII. Empathy and Decency.

Authors:  S Kessler
Journal:  J Genet Couns       Date:  1999-12       Impact factor: 2.537

Review 8.  Genetic cancer risk assessment and counseling: recommendations of the national society of genetic counselors.

Authors:  Angela Trepanier; Mary Ahrens; Wendy McKinnon; June Peters; Jill Stopfer; Sherry Campbell Grumet; Susan Manley; Julie O Culver; Ronald Acton; Joy Larsen-Haidle; Lori Ann Correia; Robin Bennett; Barbara Pettersen; Terri Diamond Ferlita; Josephine Wagner Costalas; Katherine Hunt; Susan Donlon; Cecile Skrzynia; Carolyn Farrell; Faith Callif-Daley; Catherine Walsh Vockley
Journal:  J Genet Couns       Date:  2004-04       Impact factor: 2.537

9.  Effect of a computer-based decision aid on knowledge, perceptions, and intentions about genetic testing for breast cancer susceptibility: a randomized controlled trial.

Authors:  Michael J Green; Susan K Peterson; Maria Wagner Baker; Gregory R Harper; Lois C Friedman; Wendy S Rubinstein; David T Mauger
Journal:  JAMA       Date:  2004-07-28       Impact factor: 56.272

10.  Patient-centered medicine. A professional evolution.

Authors:  C Laine; F Davidoff
Journal:  JAMA       Date:  1996-01-10       Impact factor: 56.272

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  19 in total

1.  What do genetic counselors learn on the job? A qualitative assessment of professional development outcomes.

Authors:  Marie Runyon; Kimberly W Zahm; Patricia McCarthy Veach; Ian M Macfarlane; Bonnie S Leroy
Journal:  J Genet Couns       Date:  2010-03-19       Impact factor: 2.537

2.  Genetic counseling as a tool for type 2 diabetes prevention: a genetic counseling framework for common polygenetic disorders.

Authors:  Jessica L Waxler; Kelsey E O'Brien; Linda M Delahanty; James B Meigs; Jose C Florez; Elyse R Park; Barbara R Pober; Richard W Grant
Journal:  J Genet Couns       Date:  2012-10       Impact factor: 2.537

3.  Portrait of the Master Genetic Counselor Clinician: A Qualitative Investigation of Expertise in Genetic Counseling.

Authors:  Cacy Miranda; Patricia McCarthy Veach; Meredith A Martyr; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2015-08-16       Impact factor: 2.537

4.  Coming full circle: a reciprocal-engagement model of genetic counseling practice.

Authors:  Patricia McCarthy Veach; Dianne M Bartels; Bonnie S Leroy
Journal:  J Genet Couns       Date:  2007-10-13       Impact factor: 2.537

5.  Ethical and professional challenges of genetic counseling - the case of Austria.

Authors:  Brigitte Gschmeidler; Magdalena Flatscher-Thoeni
Journal:  J Genet Couns       Date:  2013-06-01       Impact factor: 2.537

6.  Genetic counselor perceptions of genetic counseling session goals: a validation study of the reciprocal-engagement model.

Authors:  Julianne E Hartmann; Patricia McCarthy Veach; Ian M MacFarlane; Bonnie S LeRoy
Journal:  J Genet Couns       Date:  2013-08-30       Impact factor: 2.537

7.  Views on abortion: a comparison of female genetic counselors and women from the general population.

Authors:  Amelia R Woltanski; Ryan T Cragun; Melanie F Myers; Deborah L Cragun
Journal:  J Genet Couns       Date:  2008-10-04       Impact factor: 2.537

8.  Genetic counselors' religiosity & spirituality: are genetic counselors different from the general population?

Authors:  Ryan T Cragun; Amelia R Woltanski; Melanie F Myers; Deborah L Cragun
Journal:  J Genet Couns       Date:  2009-10-03       Impact factor: 2.537

9.  An exploration of genetic counselors' needs and experiences with prenatal chromosomal microarray testing.

Authors:  Barbara A Bernhardt; Katherine Kellom; Alexandra Barbarese; W Andrew Faucett; Ronald J Wapner
Journal:  J Genet Couns       Date:  2014-02-27       Impact factor: 2.537

10.  Lifestyle Risk Factors Among People Who Have Had Cancer Genetic Testing.

Authors:  John M Quillin
Journal:  J Genet Couns       Date:  2015-12-12       Impact factor: 2.537

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