Literature DB >> 16230608

Confidentiality and spatially explicit data: concerns and challenges.

Leah K VanWey1, Ronald R Rindfuss, Myron P Gutmann, Barbara Entwisle, Deborah L Balk.   

Abstract

Recent theoretical, methodological, and technological advances in the spatial sciences create an opportunity for social scientists to address questions about the reciprocal relationship between context (spatial organization, environment, etc.) and individual behavior. This emerging research community has yet to adequately address the new threats to the confidentiality of respondent data in spatially explicit social survey or census data files, however. This paper presents four sometimes conflicting principles for the conduct of ethical and high-quality science using such data: protection of confidentiality, the social-spatial linkage, data sharing, and data preservation. The conflict among these four principles is particularly evident in the display of spatially explicit data through maps combined with the sharing of tabular data files. This paper reviews these two research activities and shows how current practices favor one of the principles over the others and do not satisfactorily resolve the conflict among them. Maps are indispensable for the display of results but also reveal information on the location of respondents and sampling clusters that can then be used in combination with shared data files to identify respondents. The current practice of sharing modified or incomplete data sets or using data enclaves is not ideal for either the advancement of science or the protection of confidentiality. Further basic research and open debate are needed to advance both understanding of and solutions to this dilemma.

Mesh:

Year:  2005        PMID: 16230608      PMCID: PMC1266143          DOI: 10.1073/pnas.0507804102

Source DB:  PubMed          Journal:  Proc Natl Acad Sci U S A        ISSN: 0027-8424            Impact factor:   11.205


  3 in total

Review 1.  Geographically masking health data to preserve confidentiality.

Authors:  M P Armstrong; G Rushton; D L Zimmerman
Journal:  Stat Med       Date:  1999-03-15       Impact factor: 2.373

2.  Ethical principles of psychologists and code of conduct.

Authors: 
Journal:  Am Psychol       Date:  2002-12

Review 3.  Public health, GIS, and the internet.

Authors:  Charles M Croner
Journal:  Annu Rev Public Health       Date:  2002-10-23       Impact factor: 21.981

  3 in total
  21 in total

1.  MULTIPLE IMPUTATION FOR SHARING PRECISE GEOGRAPHIES IN PUBLIC USE DATA.

Authors:  Hao Wang; Jerome P Reiter
Journal:  Ann Appl Stat       Date:  2012-03-01       Impact factor: 2.083

2.  Providing Spatial Data for Secondary Analysis: Issues and Current Practices relating to Confidentiality.

Authors:  Myron Gutmann; Kristine Witkowski; Corey Colyer; Joanne McFarland O'Rourke; James McNally
Journal:  Popul Res Policy Rev       Date:  2008

3.  Geospatial cryptography: enabling researchers to access private, spatially referenced, human subjects data for cancer control and prevention.

Authors:  Geoffrey M Jacquez; Aleksander Essex; Andrew Curtis; Betsy Kohler; Recinda Sherman; Khaled El Emam; Chen Shi; Andy Kaufmann; Linda Beale; Thomas Cusick; Daniel Goldberg; Pierre Goovaerts
Journal:  J Geogr Syst       Date:  2017-05-11

4.  Privacy versus public health: the impact of current confidentiality rules.

Authors:  Daniel Wartenberg; W Douglas Thompson
Journal:  Am J Public Health       Date:  2010-01-14       Impact factor: 9.308

5.  Using mobile location data in biomedical research while preserving privacy.

Authors:  Daniel M Goldenholz; Shira R Goldenholz; Kaarkuzhali B Krishnamurthy; John Halamka; Barbara Karp; Matthew Tyburski; David Wendler; Robert Moss; Kenzie L Preston; William Theodore
Journal:  J Am Med Inform Assoc       Date:  2018-10-01       Impact factor: 4.497

6.  Spatial risk assessments based on vector-borne disease epidemiologic data: importance of scale for West Nile virus disease in Colorado.

Authors:  Anna M Winters; Rebecca J Eisen; Mark J Delorey; Marc Fischer; Roger S Nasci; Emily Zielinski-Gutierrez; Chester G Moore; W John Pape; Lars Eisen
Journal:  Am J Trop Med Hyg       Date:  2010-05       Impact factor: 2.345

7.  "Spatial Energetics": Integrating Data From GPS, Accelerometry, and GIS to Address Obesity and Inactivity.

Authors:  Peter James; Marta Jankowska; Christine Marx; Jaime E Hart; David Berrigan; Jacqueline Kerr; Philip M Hurvitz; J Aaron Hipp; Francine Laden
Journal:  Am J Prev Med       Date:  2016-08-12       Impact factor: 5.043

8.  Space and time clustering of mortality in rural South Africa (Agincourt HDSS), 1992-2007.

Authors:  Benn Sartorius; Kathleen Kahn; Penelope Vounatsou; Mark A Collinson; Stephen M Tollman
Journal:  Glob Health Action       Date:  2010-08-30       Impact factor: 2.640

9.  Putting people into place.

Authors:  Barbara Entwisle
Journal:  Demography       Date:  2007-11

Review 10.  Musings on privacy issues in health research involving disaggregate geographic data about individuals.

Authors:  Maged N Kamel Boulos; Andrew J Curtis; Philip Abdelmalik
Journal:  Int J Health Geogr       Date:  2009-07-20       Impact factor: 3.918

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