Literature DB >> 19122860

Providing Spatial Data for Secondary Analysis: Issues and Current Practices relating to Confidentiality.

Myron Gutmann1, Kristine Witkowski, Corey Colyer, Joanne McFarland O'Rourke, James McNally.   

Abstract

Spatially explicit data pose a series of opportunities and challenges for all the actors involved in providing data for long-term preservation and secondary analysis -- the data producer, the data archive, and the data user. We report on opportunities and challenges for each of the three players, and then turn to a summary of current thinking about how best to prepare, archive, disseminate, and make use of social science data that have spatially explicit identification. The core issue that runs through the paper is the risk of the disclosure of the identity of respondents. If we know where they live, where they work, or where they own property, it is possible to find out who they are. Those involved in collecting, archiving, and using data need to be aware of the risks of disclosure and become familiar with best practices to avoid disclosures that will be harmful to respondents.

Year:  2008        PMID: 19122860      PMCID: PMC2600804          DOI: 10.1007/s11113-008-9095-4

Source DB:  PubMed          Journal:  Popul Res Policy Rev        ISSN: 0167-5923


  6 in total

Review 1.  Geographically masking health data to preserve confidentiality.

Authors:  M P Armstrong; G Rushton; D L Zimmerman
Journal:  Stat Med       Date:  1999-03-15       Impact factor: 2.373

2.  Using software agents to preserve individual health data confidentiality in micro-scale geographical analyses.

Authors:  Maged N Kamel Boulos; Qiang Cai; Julian A Padget; Gerard Rushton
Journal:  J Biomed Inform       Date:  2005-07-26       Impact factor: 6.317

3.  Confidentiality and spatially explicit data: concerns and challenges.

Authors:  Leah K VanWey; Ronald R Rindfuss; Myron P Gutmann; Barbara Entwisle; Deborah L Balk
Journal:  Proc Natl Acad Sci U S A       Date:  2005-10-17       Impact factor: 11.205

4.  No place to hide--reverse identification of patients from published maps.

Authors:  John S Brownstein; Christopher A Cassa; Kenneth D Mandl
Journal:  N Engl J Med       Date:  2006-10-19       Impact factor: 91.245

5.  Informed consent: consequences for response rate and response quality in social surveys.

Authors:  E Singer
Journal:  Am Sociol Rev       Date:  1978-04

6.  Solving problems of disclosure risk while retaining key analytic uses of publicly released microdata.

Authors:  Joanne McFarland O'Rourke; Stephen Roehrig; Steven G Heeringa; Beth Glover Reed; William C Birdsall; Margaret Overcashier; Kelly Zidar
Journal:  J Empir Res Hum Res Ethics       Date:  2006-09       Impact factor: 1.742

  6 in total
  9 in total

1.  Geospatial cryptography: enabling researchers to access private, spatially referenced, human subjects data for cancer control and prevention.

Authors:  Geoffrey M Jacquez; Aleksander Essex; Andrew Curtis; Betsy Kohler; Recinda Sherman; Khaled El Emam; Chen Shi; Andy Kaufmann; Linda Beale; Thomas Cusick; Daniel Goldberg; Pierre Goovaerts
Journal:  J Geogr Syst       Date:  2017-05-11

2.  Using mobile location data in biomedical research while preserving privacy.

Authors:  Daniel M Goldenholz; Shira R Goldenholz; Kaarkuzhali B Krishnamurthy; John Halamka; Barbara Karp; Matthew Tyburski; David Wendler; Robert Moss; Kenzie L Preston; William Theodore
Journal:  J Am Med Inform Assoc       Date:  2018-10-01       Impact factor: 4.497

3.  The verified neighbor approach to geoprivacy: An improved method for geographic masking.

Authors:  Wayne Richter
Journal:  J Expo Sci Environ Epidemiol       Date:  2017-09-20       Impact factor: 5.563

4.  Social Determinants of Health Factors for Gene-Environment COVID-19 Research: Challenges and Opportunities.

Authors:  Jimmy Phuong; Naomi O Riches; Charisse Madlock-Brown; Deborah Duran; Luca Calzoni; Juan C Espinoza; Gora Datta; Ramakanth Kavuluru; Nicole G Weiskopf; Cavin K Ward-Caviness; Asiyah Yu Lin
Journal:  Adv Genet (Hoboken)       Date:  2022-03-09

5.  Confidentiality considerations for use of social-spatial data on the social determinants of health: Sexual and reproductive health case study.

Authors:  Danielle F Haley; Stephen A Matthews; Hannah L F Cooper; Regine Haardörfer; Adaora A Adimora; Gina M Wingood; Michael R Kramer
Journal:  Soc Sci Med       Date:  2016-08-08       Impact factor: 4.634

6.  New approaches to human mobility: using mobile phones for demographic research.

Authors:  John R B Palmer; Thomas J Espenshade; Frederic Bartumeus; Chang Y Chung; Necati Ercan Ozgencil; Kathleen Li
Journal:  Demography       Date:  2013-06

7.  Locational privacy-preserving distance computations with intersecting sets of randomly labeled grid points.

Authors:  Rainer Schnell; Jonas Klingwort; James M Farrow
Journal:  Int J Health Geogr       Date:  2021-03-20       Impact factor: 3.918

Review 8.  Musings on privacy issues in health research involving disaggregate geographic data about individuals.

Authors:  Maged N Kamel Boulos; Andrew J Curtis; Philip Abdelmalik
Journal:  Int J Health Geogr       Date:  2009-07-20       Impact factor: 3.918

9.  Anonymisation of geographical distance matrices via Lipschitz embedding.

Authors:  Martin Kroll; Rainer Schnell
Journal:  Int J Health Geogr       Date:  2016-01-07       Impact factor: 3.918

  9 in total

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