Literature DB >> 16193613

The effects of a genetic information leaflet on public attitudes towards genetic testing.

Saskia C Sanderson1, Jane Wardle, Susan Michie.   

Abstract

Genetics opinion surveys often include information to ensure that respondents have sufficient understanding to give informed responses. The information is assumed to be neutral but may skew responses. We assessed the impact of a seemingly "neutral" information leaflet on attitudes towards genetic testing among 1,024 survey respondents, half of whom received the leaflet. The leaflet group reported higher levels of subjective understanding of genetic testing (68 percent vs. 53 percent), were mre interested in genetic testing (81 percent vs. 77 percent), and held more positive attitudes towards genetics than people who did not receive the leaflet. Information leaflets may have the intended effect of increasing understanding, but may also unintentionally influence reported views of genetics. In the light of the weight given to public consultation in today's governance and regulation of human genetics, increased awareness of how even seemingly neutral information can influence public attitudes is recommended.

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Year:  2005        PMID: 16193613     DOI: 10.1177/0963662505050993

Source DB:  PubMed          Journal:  Public Underst Sci        ISSN: 0963-6625


  5 in total

1.  Can genetic risk information for age-related macular degeneration influence motivation to stop smoking? A pilot study.

Authors:  C A Rennie; A Stinge; E A King; S Sothirachagan; C Osmond; A J Lotery
Journal:  Eye (Lond)       Date:  2011-10-28       Impact factor: 3.775

2.  Willingness to participate in genomics research and desire for personal results among underrepresented minority patients: a structured interview study.

Authors:  Saskia C Sanderson; Michael A Diefenbach; Randi Zinberg; Carol R Horowitz; Margaret Smirnoff; Micol Zweig; Samantha Streicher; Ethylin Wang Jabs; Lynne D Richardson
Journal:  J Community Genet       Date:  2013-06-22

3.  Attitudes Toward Genetics and Genetic Testing Among Participants in the Jackson and Framingham Heart Studies.

Authors:  Katherine W Saylor; Lynette Ekunwe; Donna Antoine-LaVigne; Deborah E Sellers; Sarah McGraw; Daniel Levy; Greta Lee Splansky; Steven Joffe
Journal:  J Empir Res Hum Res Ethics       Date:  2019-05-08       Impact factor: 1.742

4.  Oncologists' and cancer patients' views on whole-exome sequencing and incidental findings: results from the CanSeq study.

Authors:  Stacy W Gray; Elyse R Park; Julie Najita; Yolanda Martins; Lara Traeger; Elizabeth Bair; Joshua Gagne; Judy Garber; Pasi A Jänne; Neal Lindeman; Carol Lowenstein; Nelly Oliver; Lynette Sholl; Eliezer M Van Allen; Nikhil Wagle; Sam Wood; Levi Garraway; Steven Joffe
Journal:  Genet Med       Date:  2016-02-11       Impact factor: 8.822

5.  Investigating the knowledge of and public attitudes towards genetic testing within the Visegrad countries: a cross-sectional study.

Authors:  Klára Bíró; Viktor Dombrádi; Zita Fekete; Gábor Bányai; Klára Boruzs; Attila Nagy; Róza Ádány
Journal:  BMC Public Health       Date:  2020-09-10       Impact factor: 3.295

  5 in total

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