BACKGROUND: The Aboriginal Women's Cancer Care Project used a participatory research model guided by an Aboriginal advisory group. METHODS: The researchers attempted to conduct cancer research with 5 culturally and geographically different communities in North America. RESULTS: We discuss the challenges of conducting ethical research in keeping with the emergent research principles of community ownership and control of the research process and products. CONCLUSIONS: Although there are many perils for researchers and communities in conducting participatory research, clearer practice guidelines will ensure that research in Aboriginal communities will increasingly prioritize community- versus career-building outcomes.
BACKGROUND: The Aboriginal Women's Cancer Care Project used a participatory research model guided by an Aboriginal advisory group. METHODS: The researchers attempted to conduct cancer research with 5 culturally and geographically different communities in North America. RESULTS: We discuss the challenges of conducting ethical research in keeping with the emergent research principles of community ownership and control of the research process and products. CONCLUSIONS: Although there are many perils for researchers and communities in conducting participatory research, clearer practice guidelines will ensure that research in Aboriginal communities will increasingly prioritize community- versus career-building outcomes.
Authors: Deborah J Morton; Joely Proudfit; Daniel Calac; Martina Portillo; Geneva Lofton-Fitzsimmons; Theda Molina; Raymond Flores; Barbara Lawson-Risso; Romelle Majel-McCauley Journal: Am J Public Health Date: 2013-10-17 Impact factor: 9.308
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