Literature DB >> 15792288

Developing the theoretical basis for service user/survivor-led research and equal involvement in research.

Peter Beresford1.   

Abstract

AIMS AND METHODS: This article, written from a service user/survivor perspective, explores a hypothesis which seeks to offer a more systematic basis for the full and equal involvement of mental health service users/survivors in both the research process and research structures more generally. The hypothesis challenges traditional emphasis on positivist assumptions about the priority of values of 'distance', 'neutrality' and 'objectivity' (which it argues discriminate against service users and their experiential knowledge). It explores instead the idea that 'the shorter the distance between direct experience and its interpretation, then the less likely resulting knowledge is to be inaccurate, unreliable and distorted.' RESULTS AND
CONCLUSIONS: The proposal discusses ways in which such (objective and subjective) distance may be reduced, to improve the quality of research, to enable more equal involvement of service users and their direct experience and to make it possible for non-service user researchers to work alongside service users on more equal terms.

Mesh:

Year:  2005        PMID: 15792288     DOI: 10.1017/s1121189x0000186x

Source DB:  PubMed          Journal:  Epidemiol Psichiatr Soc        ISSN: 1121-189X


  18 in total

1.  'What difference does it make?' Finding evidence of the impact of mental health service user researchers on research into the experiences of detained psychiatric patients.

Authors:  Steven Gillard; Rohan Borschmann; Kati Turner; Norman Goodrich-Purnell; Kathleen Lovell; Mary Chambers
Journal:  Health Expect       Date:  2010-06       Impact factor: 3.377

2.  'But is it a question worth asking?' A reflective case study describing how public involvement can lead to researchers' ideas being abandoned.

Authors:  Jonathan D Boote; Mary Dalgleish; Janet Freeman; Zena Jones; Marianne Miles; Helen Rodgers
Journal:  Health Expect       Date:  2012-05-31       Impact factor: 3.377

Review 3.  'Talking the talk or walking the walk?' A bibliometric review of the literature on public involvement in health research published between 1995 and 2009.

Authors:  Jonathan Boote; Ruth Wong; Andrew Booth
Journal:  Health Expect       Date:  2012-10-04       Impact factor: 3.377

4.  "It's a life you're playing with": A qualitative study on experiences of NHS maternity services among undocumented migrant women in England.

Authors:  Laura B Nellums; Jaynaide Powis; Lucy Jones; Anna Miller; Kieran Rustage; Neal Russell; Jon S Friedland; Sally Hargreaves
Journal:  Soc Sci Med       Date:  2020-12-14       Impact factor: 4.634

5.  Involving service users in the Birth Timing project, a data linkage study analysing the timing of births and their outcomes.

Authors:  Mary Newburn; Miranda Scanlon; Rachel Plachcinski; Alison Jill Macfarlane
Journal:  Int J Popul Data Sci       Date:  2020-11-02

6.  Talking about living and dying with the oldest old: public involvement in a study on end of life care in care homes.

Authors:  Claire Goodman; Elspeth Mathie; Marion Cowe; Alex Mendoza; Daphne Westwood; Diane Munday; Patricia M Wilson; Clare Crang; Katherine Froggatt; Steve Iliffe; Jill Manthorpe; Heather Gage; Stephen Barclay
Journal:  BMC Palliat Care       Date:  2011-11-23       Impact factor: 3.234

7.  Two methods for engaging with the community in setting priorities for child health research: who engages?

Authors:  Wavne Rikkers; Katrina Boterhoven de Haan; David Lawrence; Anne McKenzie; Kirsten Hancock; Hayley Haines; Daniel Christensen; Stephen R Zubrick
Journal:  PLoS One       Date:  2015-05-04       Impact factor: 3.240

8.  "Walking alongside:" collaborative practices in mental health and substance use care.

Authors:  Ottar Ness; Marit Borg; Randi Semb; Bengt Karlsson
Journal:  Int J Ment Health Syst       Date:  2014-12-17

9.  "We Are Not Really Marketing Mental Health": Mental Health Advocacy in Zimbabwe.

Authors:  Reuben Hendler; Khameer Kidia; Debra Machando; Megan Crooks; Walter Mangezi; Melanie Abas; Craig Katz; Graham Thornicroft; Maya Semrau; Helen Jack
Journal:  PLoS One       Date:  2016-09-08       Impact factor: 3.240

10.  End-user involvement in a systematic review of quantitative and qualitative research of non-pharmacological interventions for attention deficit hyperactivity disorder delivered in school settings: reflections on the impacts and challenges.

Authors:  Jo Thompson Coon; Ruth Gwernan-Jones; Darren Moore; Michelle Richardson; Catherine Shotton; Will Pritchard; Christopher Morris; Ken Stein; Tamsin Ford
Journal:  Health Expect       Date:  2015-09-21       Impact factor: 3.377

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