Literature DB >> 15606987

Problems with primary care data quality: osteoporosis as an exemplar.

Simon de Lusignan1, Tom Valentin, Tom Chan, Nigel Hague, Oliver Wood, Jeremy van Vlymen, Neil Dhoul.   

Abstract

OBJECTIVE: To report problems implementing a data quality programme in osteoporosis.
DESIGN: Analysis of data extracted using Morbidity Information Query and Export Syntax (MIQUEST) from participating general practices' systems and recommendations of practitioners who attended an action research workshop.
SETTING: Computerised general practices using different Read code versions to record structured data. PARTICIPANTS: 78 practices predominantly from London and the south east, with representation from north east, north west and south west England. MAIN OUTCOME MEASURES: Patients at risk can be represented in many ways within structured data. Although fracture data exists, it is unclear which are fragility fractures. T-scores, the gold standard for measuring bone density, cannot be extracted using the UK's standard data extraction tool, MIQUEST; instead manual searches had to be implemented. There is a hundredfold variation in data recording levels between practices. Therapy is more frequently recorded than diagnosis. A multidisciplinary forum of experienced practitioners proposed that a limited list of codes should be used.
CONCLUSIONS: There is variability in inter-practice data quality. Some clinically important codes are lacking, and there are multiple ways that the same clinical concept can be represented. Different practice computer systems have different versions of Read code, making some data incompatible. Manual searching is still required to find data. Clinicians with an understanding of what data are clinically relevant need to have a stronger voice in the production of codes, and in the creation of recommended lists.

Entities:  

Mesh:

Year:  2004        PMID: 15606987     DOI: 10.14236/jhi.v12i3.120

Source DB:  PubMed          Journal:  Inform Prim Care        ISSN: 1475-9985


  15 in total

1.  The cost-effectiveness of risedronate in the UK for the management of osteoporosis using the FRAX.

Authors:  F Borgström; O Ström; J Coelho; H Johansson; A Oden; E V McCloskey; J A Kanis
Journal:  Osteoporos Int       Date:  2009-06-30       Impact factor: 4.507

2.  Guidance for the adjustment of FRAX according to the dose of glucocorticoids.

Authors:  J A Kanis; H Johansson; A Oden; E V McCloskey
Journal:  Osteoporos Int       Date:  2011-01-13       Impact factor: 4.507

3.  Clinical Research Informatics for Big Data and Precision Medicine.

Authors:  C Weng; M G Kahn
Journal:  Yearb Med Inform       Date:  2016-11-10

4.  Using computers to identify non-compliant people at increased risk of osteoporotic fractures in general practice: a cross-sectional study.

Authors:  S de Lusignan; J van Vlymen; N Hague; N Dhoul
Journal:  Osteoporos Int       Date:  2006-08-24       Impact factor: 4.507

5.  Computerized extraction of information on the quality of diabetes care from free text in electronic patient records of general practitioners.

Authors:  Jaco Voorham; Petra Denig
Journal:  J Am Med Inform Assoc       Date:  2007-02-28       Impact factor: 4.497

6.  The cost-effectiveness of strontium ranelate in the UK for the management of osteoporosis.

Authors:  F Borgström; O Ström; J Coelho; H Johansson; A Oden; E McCloskey; J A Kanis
Journal:  Osteoporos Int       Date:  2009-06-10       Impact factor: 4.507

7.  The Health Informatics Trial Enhancement Project (HITE): Using routinely collected primary care data to identify potential participants for a depression trial.

Authors:  Joanna McGregor; Caroline Brooks; Padmaja Chalasani; Jude Chukwuma; Hayley Hutchings; Ronan A Lyons; Keith Lloyd
Journal:  Trials       Date:  2010-04-15       Impact factor: 2.279

8.  FRAX and the assessment of fracture probability in men and women from the UK.

Authors:  J A Kanis; O Johnell; A Oden; H Johansson; E McCloskey
Journal:  Osteoporos Int       Date:  2008-02-22       Impact factor: 4.507

Review 9.  Overview of Fracture Prediction Tools.

Authors:  John A Kanis; Nicholas C Harvey; Helena Johansson; Anders Odén; Eugene V McCloskey; William D Leslie
Journal:  J Clin Densitom       Date:  2017-07-14       Impact factor: 2.617

Review 10.  Methods and dimensions of electronic health record data quality assessment: enabling reuse for clinical research.

Authors:  Nicole Gray Weiskopf; Chunhua Weng
Journal:  J Am Med Inform Assoc       Date:  2012-06-25       Impact factor: 4.497

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