Literature DB >> 15288920

Development of a questionnaire to evaluate the information needs of cancer patients: the EORTC questionnaire.

Juan Ignacio Arraras1, Stephen Wright, Eva Greimel, Bernhard Holzner, Karin Kuljanic-Vlasic, Galina Velikova, Martin Eisemann, Adriaan Visser.   

Abstract

Information disclosure is one of the key areas of support that patients may receive. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has a group working on the development of a questionnaire that evaluates information received by cancer patients at different stages of their disease--EORTC QLQ-INFO30. This instrument is being developed by professionals from most European regions. The questionnaire aims to evaluate the information received by cancer patients on different areas of the disease, diagnosis, treatment and care. Besides, the instrument also assesses qualitative aspects of the information they have received. The present paper presents the first two phases of the module development process that include literature review, interviews with patients and professionals, and formulation of the items. All these steps have been carried out in different countries and have been approved by the EORTC QLG.

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Year:  2004        PMID: 15288920     DOI: 10.1016/S0738-3991(03)00240-4

Source DB:  PubMed          Journal:  Patient Educ Couns        ISSN: 0738-3991


  10 in total

1.  Development and Testing of a Reliable and Valid Patient-Needs Questionnaire for Breast Cancer Inpatients in China.

Authors:  Ling Li; Jing Xue; Zhan-Zhan Li; Li-Zhang Chen
Journal:  J Clin Diagn Res       Date:  2016-10-01

Review 2.  Quality of life in gastric cancer.

Authors:  Ad-A Kaptein; Satoshi Morita; Junichi Sakamoto
Journal:  World J Gastroenterol       Date:  2005-06-07       Impact factor: 5.742

3.  Motives for becoming and remaining member of patient associations: a study of 1,810 Swedish individuals with cancer associations.

Authors:  Christina Carlsson; Amir Baigi; Dick Killander; Ullabeth Sätterlund Larsson
Journal:  Support Care Cancer       Date:  2005-01-20       Impact factor: 3.603

4.  EORTC QLQ-COMU26: a questionnaire for the assessment of communication between patients and professionals. Phase III of the module development in ten countries.

Authors:  Juan Ignacio Arraras; Lisa M Wintner; Monika Sztankay; Krzysztof A Tomaszewski; Dirk Hofmeister; Anna Costantini; Anne Bredart; Teresa Young; Karin Kuljanic; Iwona M Tomaszewska; Meropi Kontogianni; Wei-Chu Chie; Dagmara Kulis; Eva Greimel
Journal:  Support Care Cancer       Date:  2016-12-26       Impact factor: 3.603

5.  Patient information in radiation oncology: a cross-sectional pilot study using the EORTC QLQ-INFO26 module.

Authors:  Johannes Adler; Yvonne Paelecke-Habermann; Patrick Jahn; Margarete Landenberger; Bernd Leplow; Dirk Vordermark
Journal:  Radiat Oncol       Date:  2009-09-28       Impact factor: 3.481

6.  Do Patients Feel Well Informed in a Radiation Oncology Service?

Authors:  Esther Jimenez-Jimenez; Pedro Mateos; Irene Ortiz; Neus Aymar; Meritxell Vidal; Raquel Roncero; Jose Pardo; Carmen Soto; Concepción Fuentes; Sebastià Sabater
Journal:  J Cancer Educ       Date:  2018-04       Impact factor: 2.037

7.  An online forum exploring needs for help of patients with cancer: gender and ethnic differences.

Authors:  Eun-Ok Im; Wonshik Chee; Hyun-Ju Lim; Wen-Miao Liu
Journal:  Oncol Nurs Forum       Date:  2008-07       Impact factor: 2.172

8.  Validity and reliability testing of two instruments to measure breast cancer patients' concerns and information needs relating to radiation therapy.

Authors:  Georgia K B Halkett; Linda J Kristjanson
Journal:  Radiat Oncol       Date:  2007-11-25       Impact factor: 3.481

9.  Satisfaction with care among patients with non-metastatic breast cancer: development and first steps of validation of the REPERES-60 questionnaire.

Authors:  Gautier Defossez; Simone Mathoulin-Pelissier; Isabelle Ingrand; Isabelle Gasquet; Lynda Sifer-Riviere; Pierre Ingrand; Roger Salamon; Virginie Migeot
Journal:  BMC Cancer       Date:  2007-07-16       Impact factor: 4.430

10.  Cancer patients' knowledge about their disease and treatment before, during and after treatment: a prospective, longitudinal study.

Authors:  Ola Berger; Bjørn Henning Grønberg; Jon Håvard Loge; Stein Kaasa; Kari Sand
Journal:  BMC Cancer       Date:  2018-04-03       Impact factor: 4.430

  10 in total

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