Juan Ignacio Arraras1, Lisa M Wintner2, Monika Sztankay2,3, Krzysztof A Tomaszewski4, Dirk Hofmeister5, Anna Costantini6, Anne Bredart7, Teresa Young8, Karin Kuljanic9, Iwona M Tomaszewska10, Meropi Kontogianni11, Wei-Chu Chie12, Dagmara Kulis13, Eva Greimel14. 1. Oncology Departments, Complejo Hospitalario de Navarra, Pamplona, Spain. jiarraras@correo.cop.es. 2. Department of Psychiatry, Psychotherapy and Psychosomatics, Innsbruck Medical University, Innsbruck, Austria. 3. Leopold-Franzens-University Innsbruck, Innsbruck, Austria. 4. Health Outcomes Research Unit, Department of Gerontology, Geriatrics, and Social Work, Ignatianum Academy, Krakow, Poland. 5. University of Leipzig, Leipzig, Germany. 6. Psycho-Oncology Unit, Faculty of Medicine and Psychology, Sant'Andrea Hospital, Sapienza University, Rome, Italy. 7. Institut Curie, Paris, France. 8. Mount Vernon Cancer Centre, Northwood, UK. 9. Department of Gynecology and Obstetrics, Center of Psychology, University Hospital Center Rijeka, Rijeka, Croatia. 10. Department of Medical Education, Jagiellonian University Medical College, Krakow, Poland. 11. Department of Nutrition and Dietetics, Harokopio University, Athens, Greece. 12. Department of Public Health, College of Public Health, Institute of Epidemiology and Preventive Medicine, National Taiwan University, Taipei, Taiwan. 13. QOL Department, EORTC HQ, Brussels, Belgium. 14. Medical University Graz, Graz, Austria.
Abstract
PURPOSE: Communication between patients and professionals is one major aspect of the support offered to cancer patients. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group (QLG) has developed a cancer-specific instrument for the measurement of different issues related to the communication between cancer patients and their health care professionals. METHODS: Questionnaire development followed the EORTC QLG Module Development Guidelines. A provisional questionnaire was pre-tested (phase III) in a multicenter study within ten countries from five cultural areas (Northern and South Europe, UK, Poland and Taiwan). Patients from seven subgroups (before, during and after treatment, for localized and advanced disease each, plus palliative patients) were recruited. Structured interviews were conducted. Qualitative and quantitative analyses have been performed. RESULTS: One hundred forty patients were interviewed. Nine items were deleted and one shortened. Patients' comments had a key role in item selection. No item was deleted due to just quantitative criteria. Consistency was observed in patients' answers across cultural areas. The revised version of the module EORTC QLQ-COMU26 has 26 items, organized in 6 scales and 4 individual items. CONCLUSIONS: The EORTC COMU26 questionnaire can be used in daily clinical practice and research, in various patient groups from different cultures. The next step will be an international field test with a large heterogeneous group of cancer patients.
PURPOSE: Communication between patients and professionals is one major aspect of the support offered to cancerpatients. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group (QLG) has developed a cancer-specific instrument for the measurement of different issues related to the communication between cancerpatients and their health care professionals. METHODS: Questionnaire development followed the EORTC QLG Module Development Guidelines. A provisional questionnaire was pre-tested (phase III) in a multicenter study within ten countries from five cultural areas (Northern and South Europe, UK, Poland and Taiwan). Patients from seven subgroups (before, during and after treatment, for localized and advanced disease each, plus palliative patients) were recruited. Structured interviews were conducted. Qualitative and quantitative analyses have been performed. RESULTS: One hundred forty patients were interviewed. Nine items were deleted and one shortened. Patients' comments had a key role in item selection. No item was deleted due to just quantitative criteria. Consistency was observed in patients' answers across cultural areas. The revised version of the module EORTC QLQ-COMU26 has 26 items, organized in 6 scales and 4 individual items. CONCLUSIONS: The EORTC COMU26 questionnaire can be used in daily clinical practice and research, in various patient groups from different cultures. The next step will be an international field test with a large heterogeneous group of cancerpatients.
Entities:
Keywords:
Cancer; Communication; EORTC; Oncology; Quality of life; Questionnaire
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