Literature DB >> 15264947

Validating measures of pediatric health status, functional status, and health-related quality of life: key methodological challenges and strategies.

Dennis Drotar1.   

Abstract

OBJECTIVE: To describe key methodological challenges in the validation of measures of pediatric health status, functional status, and health-related quality of life (HRQOL) and ways to address them.
METHODS: Validation strategies of measures of pediatric health status, functional status, and HRQOL were reviewed.
RESULTS: Three key challenges were identified: 1) clarifying and testing measurement models; 2) measuring responsiveness to clinically meaningful change; and 3) considering data from multiple respondents.
CONCLUSIONS: Research strategies to enhance validity of measures include specifying intended validity and measurement models, documenting sensitivity of measures to clinically meaningful change, and considering data from multiple informants.

Mesh:

Year:  2004        PMID: 15264947     DOI: 10.1367/A03-101R.1

Source DB:  PubMed          Journal:  Ambul Pediatr        ISSN: 1530-1567


  17 in total

1.  Development and initial validation of a pictorial quality of life measure for young children with asthma.

Authors:  Robin S Everhart; Barbara H Fiese
Journal:  J Pediatr Psychol       Date:  2009-01-23

Review 2.  Assessment of quality of life in children and youth with autism spectrum disorder: a critical review.

Authors:  Erika Ikeda; Erica Hinckson; Chris Krägeloh
Journal:  Qual Life Res       Date:  2013-12-06       Impact factor: 4.147

Review 3.  Evidence-based assessment of health-related quality of life and functional impairment in pediatric psychology.

Authors:  Tonya M Palermo; Anna C Long; Amy S Lewandowski; Dennis Drotar; Alexandra L Quittner; Lynn S Walker
Journal:  J Pediatr Psychol       Date:  2008-04-22

Review 4.  An emerging field of research: challenges in pediatric decision making.

Authors:  Ellen A Lipstein; William B Brinkman; Alexander G Fiks; Kristin S Hendrix; Jennifer Kryworuchko; Victoria A Miller; Lisa A Prosser; Wendy J Ungar; David Fox
Journal:  Med Decis Making       Date:  2014-08-21       Impact factor: 2.583

5.  Health-related quality of life in adolescents with or at risk for type 2 diabetes mellitus.

Authors:  Erinn T Rhodes; Michael I Goran; Tracy A Lieu; Robert H Lustig; Lisa A Prosser; Thomas J Songer; Marc J Weigensberg; Ruth S Weinstock; Tessa Gonzalez; Kaitlin Rawluk; Roula M Zoghbi; David S Ludwig; Lori M Laffel
Journal:  J Pediatr       Date:  2012-01-03       Impact factor: 4.406

6.  Quality of Life in Children With Asthma: A Developmental Perspective.

Authors:  Samantha A Miadich; Robin S Everhart; Adrienne P Borschuk; Marcia A Winter; Barbara H Fiese
Journal:  J Pediatr Psychol       Date:  2015-02-12

7.  Health-related quality of life in children with sickle cell disease using the child health questionnaire.

Authors:  Brian H Wrotniak; Joan I Schall; Megan E Brault; Dorene F Balmer; Virginia A Stallings
Journal:  J Pediatr Health Care       Date:  2012-11-08       Impact factor: 1.812

8.  Health related quality of life after extremely preterm birth: a matched controlled cohort study.

Authors:  Bente J Vederhus; Trond Markestad; Geir E Eide; Marit Graue; Thomas Halvorsen
Journal:  Health Qual Life Outcomes       Date:  2010-05-23       Impact factor: 3.186

9.  Quality of Life is Diminished in Patients with Tetralogy of Fallot with Mild Residual Disease: A Comparison of Tetralogy of Fallot and Isolated Valvar Pulmonary Stenosis.

Authors:  Shivani M Bhatt; Elizabeth Goldmuntz; Amy Cassedy; Bradley S Marino; Laura Mercer-Rosa
Journal:  Pediatr Cardiol       Date:  2017-08-31       Impact factor: 1.655

10.  The effect of new insurance coverage on the health status of low-income children in Santa Clara County.

Authors:  Embry M Howell; Christopher Trenholm
Journal:  Health Serv Res       Date:  2007-04       Impact factor: 3.402

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