Literature DB >> 20523763

A Twenty-Two-Year-Old Community Advisory Board: Health Research as an Opportunity for Social Change.

Anthony J Silvestre1, Sandra J Quinn, Charles R Rinaldo.   

Abstract

Conducting health research often requires a partnership between marginalized communities and researchers. Community organizers can broker this partnership in a way that not only produces important scientific discoveries but also brings needed resources to the communities. This article is a description of a community advisory board established in 1984 to advise researchers on a longitudinal study of the natural history of AIDS among gay men. The Board successfully guided the recruitment of more than 3,000 gay and bisexual male volunteers and, at the same time worked as a powerful change agent. An analysis of minutes from all Board meetings between 1984-2006 indicates that significant social change as well as important research findings resulted from Board actions. Community organizers who work to create a mutually beneficial partnership between communities and researchers may find new opportunities to support community growth and social justice.

Entities:  

Year:  2010        PMID: 20523763      PMCID: PMC2879669          DOI: 10.1080/10705421003766685

Source DB:  PubMed          Journal:  J Community Pract        ISSN: 1070-5422


  17 in total

1.  Can public health researchers and agencies reconcile the push from funding bodies and the pull from communities?

Authors:  L W Green; S L Mercer
Journal:  Am J Public Health       Date:  2001-12       Impact factor: 9.308

2.  Improving collaboration between researchers and communities.

Authors:  A Koné; M Sullivan; K D Senturia; N J Chrisman; S J Ciske; J W Krieger
Journal:  Public Health Rep       Date:  2000 Mar-Jun       Impact factor: 2.792

3.  Ethics. Protecting communities in biomedical research.

Authors:  C Weijer; E J Emanuel
Journal:  Science       Date:  2000-08-18       Impact factor: 47.728

Review 4.  A model designed to enhance informed consent: experiences from the HIV prevention trials network.

Authors:  Cynthia Woodsong; Quarraisha Abdool Karim
Journal:  Am J Public Health       Date:  2005-03       Impact factor: 9.308

5.  Mental health research in primary care: mandates from a community advisory board.

Authors:  Roberto Chené; Lorenzo García; Margie Goldstrom; Mandy Pino; Delfy Peña Roach; Wendy Thunderchief; Howard Waitzkin
Journal:  Ann Fam Med       Date:  2005 Jan-Feb       Impact factor: 5.166

6.  The role of community advisory boards: involving communities in the informed consent process.

Authors:  R P Strauss; S Sengupta; S C Quinn; J Goeppinger; C Spaulding; S M Kegeles; G Millett
Journal:  Am J Public Health       Date:  2001-12       Impact factor: 9.308

7.  What is community? An evidence-based definition for participatory public health.

Authors:  K M MacQueen; E McLellan; D S Metzger; S Kegeles; R P Strauss; R Scotti; L Blanchard; R T Trotter
Journal:  Am J Public Health       Date:  2001-12       Impact factor: 9.308

8.  Ethics in public health research: protecting human subjects: the role of community advisory boards.

Authors:  Sandra Crouse Quinn
Journal:  Am J Public Health       Date:  2004-06       Impact factor: 9.308

9.  Community consultation in HIV prevention research: a study of community advisory boards at 6 research sites.

Authors:  Stephen F Morin; Andre Maiorana; Kimberly A Koester; Nicolas M Sheon; T Anne Richards
Journal:  J Acquir Immune Defic Syndr       Date:  2003-08-01       Impact factor: 3.731

10.  Representing your community in community-based participatory research: differences made and measured.

Authors:  David L Katz
Journal:  Prev Chronic Dis       Date:  2003-12-15       Impact factor: 2.830

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  9 in total

1.  Community-based participatory research in travel medicine to identify barriers to preventing malaria in VFR travellers.

Authors:  Emily J Walz; Danushka Wanduragala; Adebola A Adedimeji; Hannah R Volkman; Joanna Gaines; Kristina M Angelo; Ama E Boumi; Christina Coyle; Stephen J Dunlop; William M Stauffer
Journal:  J Travel Med       Date:  2019-01-01       Impact factor: 8.490

2.  External community review committee: a new strategy for engaging community stakeholders in research funding decisions.

Authors:  Maureen A Smith; Nancy J Kaufman; Andrea J Dearlove
Journal:  Prog Community Health Partnersh       Date:  2013

3.  Can Lay Community Advisors Improve the Clarity of Research Participant Recruitment Materials and Increase the Likelihood of Participation?

Authors:  Barbara Bowers; Nora Jacobson; Anna Krupp
Journal:  Res Nurs Health       Date:  2016-09-30       Impact factor: 2.228

4.  A Case Study of Engaging Hard-to-Reach Participants in the Research Process: Community Advisors on Research Design and Strategies (CARDS)®.

Authors:  Betty L Kaiser; Gay R Thomas; Barbara J Bowers
Journal:  Res Nurs Health       Date:  2016-09-30       Impact factor: 2.228

5.  Stakeholder Engagement to Enhance Interventions for Family Caregivers of People with Dementia: A Case Study of Care to Plan.

Authors:  Hayley R McCarron; Jessica M Finlay; Tai Sims; Katherina Nikzad-Terhune; Joseph E Gaugler
Journal:  J Gerontol Soc Work       Date:  2018-08-07

6.  The use of community advisory boards in pragmatic clinical trials: The case of the adult day services plus project.

Authors:  Keith A Anderson; Holly Dabelko-Schoeny; Sokha Koeuth; Katherine Marx; Laura N Gitlin; Joseph E Gaugler
Journal:  Home Health Care Serv Q       Date:  2020-08-31

7.  Eliciting community perspectives on research with older adults living with HIV through focus groups.

Authors:  Annie L Nguyen; Brandon Brown; Jeff Taylor; Marlene Estevez; Rick Loftus
Journal:  Medicine (Baltimore)       Date:  2017-12       Impact factor: 1.817

8.  Characterizing the Community Collaborations of a Community-Based Student-Run Clinic.

Authors:  Kaylin Pennington; Eileen Harwood; Brian Sick
Journal:  J Prim Care Community Health       Date:  2020 Jan-Dec

9.  A stakeholder engagement strategy for an ongoing research program in rural dementia care: Stakeholder and researcher perspectives.

Authors:  Debra Morgan; Julie Kosteniuk; Megan E O'Connell; Norma J Stewart; Andrew Kirk; Allison Cammer; Vanina Dal Bello-Haas; Duane P Minish; Valerie Elliot; Melanie Bayly; Amanda Froehlich Chow; Joanne Bracken; Edna Parrott; Tanis Bronner
Journal:  PLoS One       Date:  2022-09-22       Impact factor: 3.752

  9 in total

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