Literature DB >> 15070797

Registry research and medical privacy.

Julie R Ingelfinger, Jeffrey M Drazen.   

Abstract

Keywords:  Biomedical and Behavioral Research; Legal Approach

Mesh：

Year:  2004        PMID： 15070797     DOI： 10.1056/NEJMe048027

Source DB:  PubMed          Journal:  N Engl J Med        ISSN： 0028-4793            Impact factor:   91.245


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  25 in total

1.  Early outcomes among those initiating chronic dialysis in the United States.

Authors:  Kevin E Chan; Frank W Maddux; Nina Tolkoff-Rubin; S Ananth Karumanchi; Ravi Thadhani; Raymond M Hakim
Journal:  Clin J Am Soc Nephrol       Date:  2011-09-29       Impact factor: 8.237

2.  Generating a taxonomy of regulatory responses to emerging issues in biomedicine.

Authors:  Wendy Lipworth
Journal:  J Bioeth Inq       Date:  2005       Impact factor: 1.352

3.  Consent mechanisms for electronic health record systems: a simple yet unresolved issue.

Authors:  Khin T Win; John A Fulcher
Journal:  J Med Syst       Date:  2007-04       Impact factor: 4.460

4.  Security and access of health research data.

Authors:  Willy Susilo; Khin Than Win
Journal:  J Med Syst       Date:  2007-04       Impact factor: 4.460

Review 5.  AOA Symposium. Barriers (threats) to clinical research.

Authors:  J L Marsh; William McMaster; Javad Parvizi; Stephen I Katz; Kurt Spindler
Journal:  J Bone Joint Surg Am       Date:  2008-08       Impact factor: 5.284

6.  Data protection and the promotion of health research.

Authors:  Valerie Steeves
Journal:  Healthc Policy       Date:  2007-02

7.  Biobank research and the right to privacy.

Authors:  Lars Oystein Ursin
Journal:  Theor Med Bioeth       Date:  2008-10-15

8.  Meeting the privacy requirements for the development of a multi-centre patient registry in Canada: the Rick Hansen Spinal Cord Injury Registry.

Authors:  Vanessa K Noonan; Nancy P Thorogood; Phalgun B Joshi; Michael G Fehlings; B Catharine Craven; Gary Linassi; Daryl R Fourney; Brian K Kwon; Christopher S Bailey; Eve C Tsai; Brian M Drew; Henry Ahn; Deborah Tsui; Marcel F Dvorak
Journal:  Healthc Policy       Date:  2013-05

9.  [Research and protection of personal data in Primary Care].

Authors:  Sofía Garrido Elustondo; Luisa Cabello Ballesteros; Inés Galende Domínguez; Rosario Riesgo Fuertes; Ricardo Rodríguez Barrientos; Elena Polentinos Castro
Journal:  Aten Primaria       Date:  2011-07-29       Impact factor: 1.137

10.  The European data protection legislation and its consequences for public health monitoring: a plea for action.

Authors:  Marieke Verschuuren; Gérard Badeyan; Javier Carnicero; Mika Gissler; Renzo Pace Asciak; Luule Sakkeus; Magnus Stenbeck; Walter Devillé
Journal:  Eur J Public Health       Date:  2008-12       Impact factor: 3.367
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