Literature DB >> 15043060

The psychological dimension of informed consent: dissonance processes in genetic testing.

Sonja Grover1.   

Abstract

This paper discusses the issue of the psychological dimension of informed consent. In this paper, the author proposes that informed consent is a continuous variable rather than a dichotomous one. When clients better understand their motives and actual, rather than just perceived degree of choice in pursuing a particular option in a medical setting, their level of informed consent is greater. Findings from existing literature in the field of genetic testing are examined in terms of dissonance theory. These findings suggest that testing candidates sometimes overestimate their coping skills and minimize the threat to psychological integrity that a particular genetic result may pose. Counseling directed towards realistic appraisal of degree of choice in pursuing testing is examined as an aspect of supporting informed consent and possibly reducing the potential for adverse psychological outcome in the longer term.

Keywords:  Genetics and Reproduction

Mesh:

Year:  2003        PMID: 15043060     DOI: 10.1023/a:1025826019335

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  26 in total

Review 1.  Psychological impact of genetic testing for Huntington's disease: an update of the literature.

Authors:  B Meiser; S Dunn
Journal:  J Neurol Neurosurg Psychiatry       Date:  2000-11       Impact factor: 10.154

2.  The role of non-directiveness in genetic counseling.

Authors:  Fuat S Oduncu
Journal:  Med Health Care Philos       Date:  2002

3.  The meaning of autonomy: on and beyond the interpersonal circumplex.

Authors:  Beverly A Hmel; Aaron L Pincus
Journal:  J Pers       Date:  2002-06

4.  What you don't know can hurt you: adverse psychologic effects in members of BRCA1-linked and BRCA2-linked families who decline genetic testing.

Authors:  C Lerman; C Hughes; S J Lemon; D Main; C Snyder; C Durham; S Narod; H T Lynch
Journal:  J Clin Oncol       Date:  1998-05       Impact factor: 44.544

5.  Preferences of women facing a prenatal diagnostic choice: long-term outcomes matter most.

Authors:  M Kuppermann; D Feeny; E Gates; S F Posner; B Blumberg; A E Washington
Journal:  Prenat Diagn       Date:  1999-08       Impact factor: 3.050

6.  Three-year follow-up after presymptomatic testing for Huntington's disease in tested individuals and partners.

Authors:  A Tibben; R Timman; E C Bannink; H J Duivenvoorden
Journal:  Health Psychol       Date:  1997-01       Impact factor: 4.267

Review 7.  Distress in individuals facing predictive DNA testing for autosomal dominant late-onset disorders: comparing questionnaire results with in-depth interviews. Rotterdam/Leiden Genetics Workgroup.

Authors:  A C DudokdeWit; A Tibben; H J Duivenvoorden; M F Niermeijer; J Passchier; R W Trijsburg
Journal:  Am J Med Genet       Date:  1998-01-06

8.  Impact of BRCA1 testing on women with cancer: a pilot study.

Authors:  M E Wood; L Mullineaux; A K Rahm; D Fairclough; L Wenzel
Journal:  Genet Test       Date:  2000

9.  Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk.

Authors:  M Huggins; M Bloch; S Wiggins; S Adam; O Suchowersky; M Trew; M Klimek; C R Greenberg; M Eleff; L P Thompson
Journal:  Am J Med Genet       Date:  1992-02-15

10.  Reluctance to undergo predictive testing: the case of Huntington disease.

Authors:  K A Quaid; M Morris
Journal:  Am J Med Genet       Date:  1993-01-01
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  4 in total

1.  "Grasping the grey": patient understanding and interpretation of an intermediate allele predictive test result for Huntington disease.

Authors:  A Semaka; L G Balneaves; M R Hayden
Journal:  J Genet Couns       Date:  2012-08-18       Impact factor: 2.537

Review 2.  'Nobody tosses a dwarf!' The relation between the empirical and the normative reexamined.

Authors:  Carlo Leget; Pascal Borry; Raymond de Vries
Journal:  Bioethics       Date:  2009-05       Impact factor: 1.898

Review 3.  Malignant hyperthermia.

Authors:  Henry Rosenberg; Mark Davis; Danielle James; Neil Pollock; Kathryn Stowell
Journal:  Orphanet J Rare Dis       Date:  2007-04-24       Impact factor: 4.123

Review 4.  Malignant hyperthermia: a review.

Authors:  Henry Rosenberg; Neil Pollock; Anja Schiemann; Terasa Bulger; Kathryn Stowell
Journal:  Orphanet J Rare Dis       Date:  2015-08-04       Impact factor: 4.123

  4 in total

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