Literature DB >> 11954994

The role of non-directiveness in genetic counseling.

Fuat S Oduncu1.   

Abstract

When the complete human genome has been sequenced, everyone of us will become a potential candidate for genetic counseling and testing. Within a short period of time everyone will obtain his personal genetic passport identifying deleterious and susceptibility genes. With the availability of presymptomatic tests for late-onset disorders and the possibilities of prevention and treatment, the conflict between directiveness and nondirectiveness will dominate the counseling setting. Despite general consent on providing genetic information in a nondirective fashion to preserve value neutrality and enhance client's autonomy, there is no accepted common definition of what non-directiveness really is or ought to be. The article tries to elaborate some aspects which might be fruitful and clarifying in the complex issues involved in the black box of genetic counseling.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  2002        PMID: 11954994     DOI: 10.1023/a:1014289418443

Source DB:  PubMed          Journal:  Med Health Care Philos        ISSN: 1386-7423


  33 in total

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Authors:  Dorothy C Wertz; James R Sorenson; Timothy C Heeren
Journal:  Inf Behav       Date:  1987

2.  Ethical issues in genetic counseling: a comparison of M.S. counselor and medical geneticist perspectives.

Authors:  Deborah F Pencarinha; Nora K Bell; Janice G Edwards; Robert G Best
Journal:  J Genet Couns       Date:  1992-03       Impact factor: 2.537

3.  Eugenics and nondirectiveness in genetic counseling.

Authors:  Robert G Resta
Journal:  J Genet Couns       Date:  1997-06       Impact factor: 2.537

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Authors:  A Clarke
Journal:  Lancet       Date:  1991-10-19       Impact factor: 79.321

5.  Directiveness in prenatal genetic counseling.

Authors:  B M Burke; A Kolker
Journal:  Women Health       Date:  1994

Review 6.  Predictive genetic testing: psychological factors.

Authors:  P M Salkovskis; K A Rimes
Journal:  J Psychosom Res       Date:  1997-11       Impact factor: 3.006

7.  Empirical evidence that genetic counseling is directive: where do we go from here?

Authors:  B A Bernhardt
Journal:  Am J Hum Genet       Date:  1997-01       Impact factor: 11.025

8.  An experimental study of influences on the perceived likelihood of seeking genetic testing: "nondirectiveness" may be misleading.

Authors:  P M Salkovskis; R Dennis; A L Wroe
Journal:  J Psychosom Res       Date:  1999-11       Impact factor: 3.006

Review 9.  Genetic counseling.

Authors:  F C Fraser
Journal:  Am J Hum Genet       Date:  1974-09       Impact factor: 11.025

10.  Controlled trial of pretest education approaches to enhance informed decision-making for BRCA1 gene testing.

Authors:  C Lerman; B Biesecker; J L Benkendorf; J Kerner; A Gomez-Caminero; C Hughes; M M Reed
Journal:  J Natl Cancer Inst       Date:  1997-01-15       Impact factor: 13.506

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  12 in total

1.  The psychological dimension of informed consent: dissonance processes in genetic testing.

Authors:  Sonja Grover
Journal:  J Genet Couns       Date:  2003-10       Impact factor: 2.537

2.  Information related to prenatal genetic counseling: interpretation by adolescents, effects on risk perception and ethical implications.

Authors:  Philippe A Melas; Susanne Georgsson Öhman; Niklas Juth; The-Hung Bui
Journal:  J Genet Couns       Date:  2011-10-25       Impact factor: 2.537

3.  A national survey of genetic counselors' personal values.

Authors:  Sara M Pirzadeh; Patricia McCarthy Veach; Dianne M Bartels; Juihsien Kao; Bonnie S Leroy
Journal:  J Genet Couns       Date:  2007-09-15       Impact factor: 2.537

4.  Geneticization and bioethics: advancing debate and research.

Authors:  Vilhjálmur Arnason; Stefán Hjörleifsson
Journal:  Med Health Care Philos       Date:  2007-08-18

5.  Genetic testing in asymptomatic minors: background considerations towards ESHG Recommendations.

Authors:  Pascal Borry; Gerry Evers-Kiebooms; Martina C Cornel; Angus Clarke; Kris Dierickx
Journal:  Eur J Hum Genet       Date:  2009-03-11       Impact factor: 4.246

Review 6.  Triple X syndrome: a review of the literature.

Authors:  Maarten Otter; Constance T R M Schrander-Stumpel; Leopold M G Curfs
Journal:  Eur J Hum Genet       Date:  2009-07-01       Impact factor: 4.246

Review 7.  Decision coaching for people making healthcare decisions.

Authors:  Janet Jull; Sascha Köpke; Maureen Smith; Meg Carley; Jeanette Finderup; Anne C Rahn; Laura Boland; Sandra Dunn; Andrew A Dwyer; Jürgen Kasper; Simone Maria Kienlin; France Légaré; Krystina B Lewis; Anne Lyddiatt; Claudia Rutherford; Junqiang Zhao; Tamara Rader; Ian D Graham; Dawn Stacey
Journal:  Cochrane Database Syst Rev       Date:  2021-11-08

8.  Should health care professionals encourage living kidney donation?

Authors:  Medard T Hilhorst; Leonieke W Kranenburg; Jan J V Busschbach
Journal:  Med Health Care Philos       Date:  2006-07-18

9.  Donor Conception Disclosure: Directive or Non-Directive Counselling?

Authors:  Inez Raes; An Ravelingien; Guido Pennings
Journal:  J Bioeth Inq       Date:  2016-04-26       Impact factor: 1.352

10.  Balancing obligations: should written information about life-sustaining treatment be neutral?

Authors:  Vicki Xafis; Dominic Wilkinson; Lynn Gillam; Jane Sullivan
Journal:  J Med Ethics       Date:  2014-04-24       Impact factor: 2.903

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