Literature DB >> 14706404

Generic health-related quality of life instruments in children and adolescents: a qualitative analysis of content.

Luis Rajmil1, Michael Herdman, Maria-Jose Fernandez de Sanmamed, Symone Detmar, Jeanet Bruil, Ulrike Ravens-Sieberer, Monika Bullinger, Marie-Claude Simeoni, Pascal Auquier.   

Abstract

PURPOSE: To determine the extent of differences and similarities in content between heath-related quality of life (HRQOL) instruments for children and adolescents.
METHODS: A descriptive and explanatory qualitative approach was carried out. Instruments specifically designed for use with children or adolescents were included. To assure the validity of the findings a triangulation of the analysis and "member checking" were performed.
RESULTS: Ten questionnaires were analyzed. All of them included items referring to physical, psychological, and social aspects of health. A relatively low number of categories explained the content of the questionnaires.
CONCLUSIONS: A reasonably coherent notion of HRQOL underlies instruments available for children and adolescents. HRQOL measurement in young people is still in its developmental step.

Entities:  

Mesh:

Year:  2004        PMID: 14706404     DOI: 10.1016/s1054-139x(03)00249-0

Source DB:  PubMed          Journal:  J Adolesc Health        ISSN: 1054-139X            Impact factor:   5.012


  51 in total

1.  Parent perspectives of health related quality of life for adolescents with bladder exstrophy-epispadias as measured by the child health questionnaire-parent form 50.

Authors:  Jennifer L Dodson; Susan L Furth; Gayane Yenokyan; Kaitlyn Alcorn; Marie Diener-West; Albert W Wu; John P Gearhart
Journal:  J Urol       Date:  2010-08-21       Impact factor: 7.450

2.  Testing the structural and cross-cultural validity of the KIDSCREEN-27 quality of life questionnaire.

Authors:  Stephane Robitail; Ulrike Ravens-Sieberer; Marie-Claude Simeoni; Luis Rajmil; Jeanet Bruil; Mick Power; Wolfgang Duer; Bernhard Cloetta; Ladislav Czemy; Joanna Mazur; Agnes Czimbalmos; Yannis Tountas; Curt Hagquist; Jean Kilroe; Pascal Auquier
Journal:  Qual Life Res       Date:  2007-08-01       Impact factor: 4.147

3.  Psychometric properties of the KINDL-R questionnaire: results of the BELLA study.

Authors:  Monika Bullinger; Anna Levke Brütt; Michael Erhart; Ulrike Ravens-Sieberer
Journal:  Eur Child Adolesc Psychiatry       Date:  2008-12       Impact factor: 4.785

Review 4.  Health status and QOL instruments used in childhood cancer research: deciphering conceptual content using World Health Organization definitions.

Authors:  Nora Fayed; Vero Schiariti; Cristina Bostan; Alarcos Cieza; Anne Klassen
Journal:  Qual Life Res       Date:  2011-02-04       Impact factor: 4.147

5.  PedsQL relates to function and behavior in very low and normal birth weight 2- and 3-year-olds from a regional cohort.

Authors:  Mari Palta; Mona Sadek-Badawi
Journal:  Qual Life Res       Date:  2008-05-06       Impact factor: 4.147

6.  Validity and reliability of Pediatric Quality of Life Inventory for 2- to 4-year-old and 5- to 7-year-old Turkish children.

Authors:  Ozden Sukran Uneri; Belma Agaoglu; Aysen Coskun; Nursu C Memik
Journal:  Qual Life Res       Date:  2008-01-18       Impact factor: 4.147

Review 7.  Quality of life questionnaires for children with cancer and childhood cancer survivors: a review of the development of available measures.

Authors:  Anne F Klassen; Sonya J Strohm; Heleen Maurice-Stam; Martha A Grootenhuis
Journal:  Support Care Cancer       Date:  2009-10-16       Impact factor: 3.603

8.  [Translation and cultural adaptation of the Spanish version of EQ-5D-Y questionnaire for children and adolescents].

Authors:  Narcís Gusi; Xavier Badía; Michael Herdman; Pedro R Olivares
Journal:  Aten Primaria       Date:  2008-12-19       Impact factor: 1.137

9.  Development of the EQ-5D-Y: a child-friendly version of the EQ-5D.

Authors:  Nora Wille; Xavier Badia; Gouke Bonsel; Kristina Burström; Gulia Cavrini; Nancy Devlin; Ann-Charlotte Egmar; Wolfgang Greiner; Narcis Gusi; Michael Herdman; Jennifer Jelsma; Paul Kind; Luciana Scalone; Ulrike Ravens-Sieberer
Journal:  Qual Life Res       Date:  2010-04-20       Impact factor: 4.147

10.  Health-related quality of life instruments and individual diagnosis - a new area of application.

Authors:  Michael Erhart; Ulrike Ravens-Sieberer
Journal:  Psychosoc Med       Date:  2006-12-13
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