Literature DB >> 12672885

Concern for families and individuals in clinical genetics.

M Parker1, A Lucassen.   

Abstract

Clinical geneticists are increasingly confronted with ethical tensions between their responsibilities to individual patients and to other family members. This paper considers the ethical implications of a "familial" conception of the clinical genetics role. It argues that dogmatic adherence to either the familial or to the individualistic conception of clinical genetics has the potential to lead to significant harms and to fail to take important obligations seriously. Geneticists are likely to continue to be required to make moral judgments in the resolution of such tensions and may find it useful to have access to ethics training and support.

Entities:  

Keywords:  Genetics and Reproduction

Mesh:

Year:  2003        PMID: 12672885      PMCID: PMC1733698          DOI: 10.1136/jme.29.2.70

Source DB:  PubMed          Journal:  J Med Ethics        ISSN: 0306-6800            Impact factor:   2.903


  5 in total

1.  Revealing false paternity: some ethical considerations.

Authors:  A Lucassen; M Parker
Journal:  Lancet       Date:  2001-03-31       Impact factor: 79.321

2.  Confidentiality, genetic information, and the physician-patient relationship.

Authors:  R Rhodes
Journal:  Am J Bioeth       Date:  2001       Impact factor: 11.229

3.  ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure.

Authors: 
Journal:  Am J Hum Genet       Date:  1998-02       Impact factor: 11.025

4.  Genetic information and the family: are we our brother's keeper?

Authors:  Bartha Maria Knoppers
Journal:  Trends Biotechnol       Date:  2002-02       Impact factor: 19.536

5.  Medical geneticists confront ethical dilemmas: cross-cultural comparisons among 18 nations.

Authors:  D C Wertz; J C Fletcher; J J Mulvihill
Journal:  Am J Hum Genet       Date:  1990-06       Impact factor: 11.025

  5 in total
  14 in total

Review 1.  Genetic information: a joint account?

Authors:  Michael Parker; Anneke M Lucassen
Journal:  BMJ       Date:  2004-07-17

Review 2.  How communication of genetic information within the family is addressed in genetic counselling: a systematic review of research evidence.

Authors:  Álvaro Mendes; Milena Paneque; Liliana Sousa; Angus Clarke; Jorge Sequeiros
Journal:  Eur J Hum Genet       Date:  2015-08-12       Impact factor: 4.246

3.  Predictive testing of eighteen year olds: counseling challenges.

Authors:  Clara L Gaff; Elly Lynch; Lesley Spencer
Journal:  J Genet Couns       Date:  2006-08       Impact factor: 2.537

4.  Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists.

Authors:  Fred H Menko; Cora M Aalfs; Lidewij Henneman; Yrrah Stol; Miranda Wijdenes; Ellen Otten; Marleen M J Ploegmakers; Johan Legemaate; Ellen M A Smets; Guido M W R de Wert; Aad Tibben
Journal:  Fam Cancer       Date:  2013-06       Impact factor: 2.375

5.  2012 European thyroid association guidelines for genetic testing and its clinical consequences in medullary thyroid cancer.

Authors:  R Elisei; M Alevizaki; B Conte-Devolx; K Frank-Raue; V Leite; G R Williams
Journal:  Eur Thyroid J       Date:  2012-12-19

6.  A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer.

Authors:  Rowan Forbes Shepherd; Tamara Kayali Browne; Linda Warwick
Journal:  J Genet Couns       Date:  2016-10-19       Impact factor: 2.537

7.  Hereditary nonpolyposis colorectal cancer family members' perceptions about the duty to inform and health professionals' role in disseminating genetic information.

Authors:  Rebecca D Pentz; Susan K Peterson; Beatty Watts; Sally W Vernon; Patrick M Lynch; Laura M Koehly; Ellen R Gritz
Journal:  Genet Test       Date:  2005

8.  A toolkit for incorporating genetics into mainstream medical services: Learning from service development pilots in England.

Authors:  Catherine L Bennett; Sarah E Burke; Hilary Burton; Peter A Farndon
Journal:  BMC Health Serv Res       Date:  2010-05-14       Impact factor: 2.655

Review 9.  Communicating genetic information in the family: the familial relationship as the forgotten factor.

Authors:  Roy Gilbar
Journal:  J Med Ethics       Date:  2007-07       Impact factor: 2.903

10.  Technology assessment and resource allocation for predictive genetic testing: a study of the perspectives of Canadian genetic health care providers.

Authors:  Alethea Adair; Robyn Hyde-Lay; Edna Einsiedel; Timothy Caulfield
Journal:  BMC Med Ethics       Date:  2009-06-18       Impact factor: 2.652

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