Literature DB >> 12609301

Stigma, epilepsy, and quality of life.

Ann Jacoby1.   

Abstract

Despite advances in the understanding and treatment of epilepsy within the past several decades, people with this disorder continue to be stigmatized by it. Though attitudes toward people with epilepsy have improved over the years, for many people with epilepsy, stigma continues to adversely impact their psychological well-being and quality of life. The stigma of epilepsy can be linked to a number of factors, including underresourced medical services, poor seizure control, and inadequate knowledge of epilepsy. Neither informal stigma nor formal discrimination is inevitable for epilepsy patients; however, for many individuals, epilepsy remains a defining feature of their identity, and such issues are a source of considerable concern for a number of patients.

Entities:  

Year:  2002        PMID: 12609301     DOI: 10.1016/s1525-5050(02)00545-0

Source DB:  PubMed          Journal:  Epilepsy Behav        ISSN: 1525-5050            Impact factor:   2.937


  43 in total

Review 1.  Ethical, legal, and social dimensions of epilepsy genetics.

Authors:  Sara Shostak; Ruth Ottman
Journal:  Epilepsia       Date:  2006-10       Impact factor: 5.864

2.  Motor vehicle accidents, suicides, and assaults in epilepsy: a population-based study.

Authors:  C Kwon; M Liu; H Quan; V Thoo; S Wiebe; N Jetté
Journal:  Neurology       Date:  2011-02-02       Impact factor: 9.910

3.  What's at stake? Genetic information from the perspective of people with epilepsy and their family members.

Authors:  Sara Shostak; Dana Zarhin; Ruth Ottman
Journal:  Soc Sci Med       Date:  2011-07-23       Impact factor: 4.634

Review 4.  Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.

Authors:  Dale C Hesdorffer; Vicki Beck; Charles E Begley; Malachy L Bishop; Sandra Cushner-Weinstein; Gregory L Holmes; Patricia O Shafer; Joseph I Sirven; Joan K Austin
Journal:  Epilepsia       Date:  2013-01-07       Impact factor: 5.864

5.  [Impact of early benefit assessment on patients with epilepsy in Germany: Current healthcare provision and therapeutic needs].

Authors:  A Strzelczyk; H M Hamer
Journal:  Nervenarzt       Date:  2016-04       Impact factor: 1.214

6.  The stigma of people with epilepsy is demonstrated at the internalized, interpersonal and institutional levels in a specific sociocultural context: findings from an ethnographic study in rural China.

Authors:  Wencui Guo; Jianzhong Wu; Wenzhi Wang; Biyan Guan; Dee Snape; Gus A Baker; Ann Jacoby
Journal:  Epilepsy Behav       Date:  2012-10-09       Impact factor: 2.937

7.  Health-related quality of life improvement via telemedicine for epilepsy: printed versus SMS-based education intervention.

Authors:  Pei Lin Lua; Widiasmoro Selamat Neni
Journal:  Qual Life Res       Date:  2013-01-18       Impact factor: 4.147

8.  Feasibility and acceptability of mobile epilepsy educational system (MEES) for people with epilepsy in Malaysia.

Authors:  Pei Lin Lua; Widiasmoro Selamat Neni
Journal:  Telemed J E Health       Date:  2012-10-18       Impact factor: 3.536

Review 9.  Epilepsy across the spectrum: promoting health and understanding. A summary of the Institute of Medicine report.

Authors:  Mary Jane England; Catharyn T Liverman; Andrea M Schultz; Larisa M Strawbridge
Journal:  Epilepsy Behav       Date:  2012-10-05       Impact factor: 2.937

Review 10.  Epilepsy misconceptions and stigma reduction: Current status in Western countries.

Authors:  Lynn K Herrmann; Elisabeth Welter; Anne T Berg; Adam T Perzynski; Jamie R Van Doren; Martha Sajatovic
Journal:  Epilepsy Behav       Date:  2016-05-18       Impact factor: 2.937

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