Literature DB >> 23294462

Research implications of the Institute of Medicine Report, Epilepsy Across the Spectrum: Promoting Health and Understanding.

Dale C Hesdorffer1, Vicki Beck, Charles E Begley, Malachy L Bishop, Sandra Cushner-Weinstein, Gregory L Holmes, Patricia O Shafer, Joseph I Sirven, Joan K Austin.   

Abstract

In March 2012 the Institute of Medicine (IOM) released the report, Epilepsy Across The Spectrum: Promoting Health and Understanding. This report examined the public health dimensions of the epilepsies with a focus on the following four areas: public health surveillance and data collection and integration; population and public health research; health policy, health care, and human services; and education for providers, people with epilepsy and their families, and the public. The report provided recommendations and research priorities for future work in the field of epilepsy that relate to increasing the power of data on epilepsy; prevention of epilepsy; improving health care for people with epilepsy; improving health professional education about epilepsy; improving quality of life for people with epilepsy; improving education about epilepsy for people with epilepsy and families; and raising public awareness about epilepsy. For this article, the authors selected one research priority from each of the major chapter themes in the IOM report: expanding and improving the quality of epidemiologic surveillance in epilepsy; developing improved interventions for people with epilepsy and depression; expanding early identification/screening for learning impairments in children with epilepsy; evaluating and promoting effective innovative teaching strategies; accelerating research on the identification of risk factors and interventions that increase employment and improve quality of life for people with epilepsy and their families; assessing the information needs of people with epilepsy and their families associated with epilepsy-related risks, specifically sudden unexpected death in epilepsy; and developing and conducting surveys to capture trends in knowledge, awareness, attitudes, and beliefs about epilepsy over time and in specific population subgroups. For each research priority selected, examples of research are provided that will advance the field of epilepsy and improve the lives of people with epilepsy. The IOM report has many other research priorities for researchers to consider developing to advance the field of epilepsy and better the lives of people with epilepsy. Wiley Periodicals, Inc.
© 2013 International League Against Epilepsy.

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Year:  2013        PMID: 23294462      PMCID: PMC3566357          DOI: 10.1111/epi.12056

Source DB:  PubMed          Journal:  Epilepsia        ISSN: 0013-9580            Impact factor:   5.864


  89 in total

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Authors:  Steven L Galetta; Ralph F Józefowicz; Orly Avitzur
Journal:  Ann Neurol       Date:  2006-04       Impact factor: 10.422

2.  Associates of stigma in an incident epilepsy population from northern Manhattan, New York City.

Authors:  Emily B Leaffer; Ann Jacoby; Emma Benn; W Allen Hauser; Tina Shih; Peter Dayan; Robert Green; Howard Andrews; David J Thurman; Dale Hesdorffer
Journal:  Epilepsy Behav       Date:  2011-04-11       Impact factor: 2.937

3.  Reading abilities and cognitive functions of children with epilepsy: influence of epileptic syndrome.

Authors:  Yves Chaix; Virginie Laguitton; Valérie Lauwers-Cancès; Géraldine Daquin; Claude Cancès; Jean-François Démonet; Nathalie Villeneuve
Journal:  Brain Dev       Date:  2005-09-19       Impact factor: 1.961

4.  Distance delivery of mindfulness-based cognitive therapy for depression: project UPLIFT.

Authors:  Nancy J Thompson; Elizabeth Reisinger Walker; Natasha Obolensky; Ashley Winning; Christina Barmon; Colleen Diiorio; Michael T Compton
Journal:  Epilepsy Behav       Date:  2010-09-20       Impact factor: 2.937

Review 5.  Abbreviated report of the NIH/NINDS workshop on sudden unexpected death in epilepsy.

Authors:  L J Hirsch; E J Donner; E L So; M Jacobs; L Nashef; J L Noebels; J R Buchhalter
Journal:  Neurology       Date:  2011-05-04       Impact factor: 9.910

6.  Report of the American Epilepsy Society and the Epilepsy Foundation joint task force on sudden unexplained death in epilepsy.

Authors:  Elson L So; Jacquelyn Bainbridge; Jeffrey R Buchhalter; Jeanne Donalty; Elizabeth J Donner; Alexandra Finucane; Nina M Graves; Lawrence J Hirsch; Georgia D Montouris; Nancy R Temkin; Samuel Wiebe; Tess L Sierzant
Journal:  Epilepsia       Date:  2008-11-24       Impact factor: 5.864

7.  Sociodemographic disparities in epilepsy care: Results from the Houston/New York City health care use and outcomes study.

Authors:  Charles E Begley; Rituparna Basu; Thomas Reynolds; David R Lairson; Stephanie Dubinsky; Michael Newmark; Forbes Barnwell; Allen Hauser; Dale Hesdorffer; Nora Hernandez; Steven C Karceski; Tina Shih
Journal:  Epilepsia       Date:  2008-11-17       Impact factor: 5.864

8.  Program evaluation in epilepsy rehabilitation.

Authors:  R T Fraser; D Clemmons; W Trejo; N R Temkin
Journal:  Epilepsia       Date:  1983-12       Impact factor: 5.864

9.  Psychiatric comorbidity in epilepsy: a population-based analysis.

Authors:  Jose F Tellez-Zenteno; Scott B Patten; Nathalie Jetté; Jeanne Williams; Samuel Wiebe
Journal:  Epilepsia       Date:  2007-07-28       Impact factor: 5.864

10.  Economic impact of epilepsy in the United States.

Authors:  Dokyoung Yoon; Kevin D Frick; Deborah A Carr; Joan K Austin
Journal:  Epilepsia       Date:  2009-06-08       Impact factor: 5.864

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  17 in total

1.  Emodin plays an interventional role in epileptic rats via multidrug resistance gene 1 (MDR1).

Authors:  Tao Yang; Bin Kong; Yongqin Kuang; Lin Cheng; Jianwen Gu; Junhai Zhang; Haifeng Shu; Sixun Yu; Xiaokun Yang; Jingming Cheng; Haidong Huang
Journal:  Int J Clin Exp Pathol       Date:  2015-03-01

Review 2.  Genetic and Molecular Regulation of Extrasynaptic GABA-A Receptors in the Brain: Therapeutic Insights for Epilepsy.

Authors:  Shu-Hui Chuang; Doodipala Samba Reddy
Journal:  J Pharmacol Exp Ther       Date:  2017-11-15       Impact factor: 4.030

3.  Isobolographic Analysis of Antiseizure Activity of the GABA Type A Receptor-Modulating Synthetic Neurosteroids Brexanolone and Ganaxolone with Tiagabine and Midazolam.

Authors:  Shu-Hui Chuang; Doodipala Samba Reddy
Journal:  J Pharmacol Exp Ther       Date:  2019-12-16       Impact factor: 4.030

Review 4.  Epigenetic interventions for epileptogenesis: A new frontier for curing epilepsy.

Authors:  Iyan Younus; Doodipala Samba Reddy
Journal:  Pharmacol Ther       Date:  2017-03-06       Impact factor: 12.310

Review 5.  Epigenetic mechanisms of neurodegenerative diseases and acute brain injury.

Authors:  Mario J Bertogliat; Kahlilia C Morris-Blanco; Raghu Vemuganti
Journal:  Neurochem Int       Date:  2019-12-12       Impact factor: 3.921

Review 6.  Novel therapeutic approaches for disease-modification of epileptogenesis for curing epilepsy.

Authors:  Bryan L Clossen; Doodipala Samba Reddy
Journal:  Biochim Biophys Acta Mol Basis Dis       Date:  2017-02-05       Impact factor: 5.187

Review 7.  GABAA receptors: structure, function, pharmacology, and related disorders.

Authors:  Amr Ghit; Dina Assal; Ahmed S Al-Shami; Diaa Eldin E Hussein
Journal:  J Genet Eng Biotechnol       Date:  2021-08-21

8.  Health literacy and education level correlates of participation and outcome in a remotely delivered epilepsy self-management program.

Authors:  Shwetha Sudhakar; Michelle E Aebi; Christopher J Burant; Betsy Wilson; Jocasta Wenk; Farren B S Briggs; Nataliya Pyatka; Carol Blixen; Martha Sajatovic
Journal:  Epilepsy Behav       Date:  2020-04-02       Impact factor: 2.937

9.  Quantitative readability analysis of websites providing information on traumatic brain injury and epilepsy: A need for clear communication.

Authors:  Daniel José Correa; Lindsey Milano; Churl-Su Kwon; Nathalie Jetté; Dennis Dlugos; Lauren Harte-Hargrove; Mary Jo Pugh; Jessica K Smith; Solomon L Moshé
Journal:  Epilepsia       Date:  2020-02-24       Impact factor: 5.864

Review 10.  Neurosteroid replacement therapy for catamenial epilepsy, postpartum depression and neuroendocrine disorders in women.

Authors:  Doodipala Samba Reddy
Journal:  J Neuroendocrinol       Date:  2021-09-10       Impact factor: 3.870

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