Literature DB >> 15681976

Internet cancer support groups: a feminist analysis.

Eun-Ok Im1, Wonshik Chee, Hsiu-Min Tsai, Li-Chen Lin, Ching-Yu Cheng.   

Abstract

Internet Cancer Support Groups (ICSGs) are an emerging form of support group on Internet specifically for cancer patients. Previous studies have indicated the effectiveness of ICSGs as a research setting or a data-collection method. Yet recent studies have also indicated that ICSGs tend to serve highly educated, high-income White males who tend to be at an early stage of cancer. In this article, a total of 317 general ICSGs and 229 ethnic-specific ICSGs searched through Google.com, Yahoo.com, Msn.com, AOL.com, and ACOR.org are analyzed from a feminist perspective. The written records of group discussions and written memos by the research staff members were also analyzed using content analysis. The idea categories that emerged about these groups include (a) authenticity issues; (b) ethnicity and gender issues; (c) intersubjectivity issues; and (d) potential ethical issues. The findings suggest that (a) researchers adopt multiple recruitment strategies through various Internet sites and/or real settings; (b) researchers raise their own awareness of the potential influences of the health-related resources provided by ICSGs and regularly update their knowledge related to the federal and state standards and/or policies related to ICSGs; and (c) researchers consider adopting a quota-sampling method.

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Mesh:

Year:  2005        PMID: 15681976      PMCID: PMC1409749          DOI: 10.1097/00002820-200501000-00001

Source DB:  PubMed          Journal:  Cancer Nurs        ISSN: 0162-220X            Impact factor:   2.592


  22 in total

Review 1.  Therapeutic groups online: the good, the bad, and the unknown.

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Journal:  Issues Ment Health Nurs       Date:  2000 Apr-May       Impact factor: 1.835

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Review 4.  Removing the shackles: a feminist critique of noncompliance.

Authors:  J Wuest
Journal:  Nurs Outlook       Date:  1993 Sep-Oct       Impact factor: 3.250

5.  Gender differences on Internet cancer support groups.

Authors:  P Klemm; M Hurst; S L Dearholt; S R Trone
Journal:  Comput Nurs       Date:  1999 Mar-Apr

6.  Computer-mediated support group use among parents of children with cancer--an exploratory study.

Authors:  H R Han; A E Belcher
Journal:  Comput Nurs       Date:  2001 Jan-Feb

7.  Perceptions of cancer in an African-American community: a focus group report.

Authors:  Sharada Shankar; Elizabeth Selvin; Anthony J Alberg
Journal:  Ethn Dis       Date:  2002       Impact factor: 1.847

8.  Support networks used by African American breast cancer support group participants.

Authors:  Phyllis D Henderson; Joshua Fogel
Journal:  ABNF J       Date:  2003 Sep-Oct

9.  Electronic support groups for breast carcinoma: a clinical trial of effectiveness.

Authors:  Morton A Lieberman; Mitch Golant; Janine Giese-Davis; Andy Winzlenberg; Harold Benjamin; Keith Humphreys; Carol Kronenwetter; Stefani Russo; David Spiegel
Journal:  Cancer       Date:  2003-02-15       Impact factor: 6.860

10.  American Cancer Society Award lecture. Psychological care of patients: psycho-oncology's contribution.

Authors:  Jimmie C Holland
Journal:  J Clin Oncol       Date:  2003-12-01       Impact factor: 44.544

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  17 in total

1.  Predictors and Effects of Training on an Online Health Education and Support System for Women with Breast Cancer.

Authors:  Helene McDowell; Eunkyung Kim; Bret R Shaw; Jeong Yeob Han; Lauren Gumieny
Journal:  J Comput Mediat Commun       Date:  2010-04

2.  Characteristics of midlife women recruited through internet communities/groups.

Authors:  Eun-Ok Im; Hyun Jeong Shin; Wonshik Chee
Journal:  Comput Inform Nurs       Date:  2008 Jan-Feb       Impact factor: 1.985

3.  Digital literacy linked to engagement and psychological benefits among breast cancer survivors in Internet-based peer support groups.

Authors:  Stephen J Lepore; Maria A Rincon; Joanne S Buzaglo; Mitch Golant; Morton A Lieberman; Sarah Bauerle Bass; Suzanne Chambers
Journal:  Eur J Cancer Care (Engl)       Date:  2019-07       Impact factor: 2.520

Review 4.  Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use.

Authors:  Jacqueline L Bender; M Carolina Jimenez-Marroquin; Lorraine E Ferris; Joel Katz; Alejandro R Jadad
Journal:  Support Care Cancer       Date:  2012-11-23       Impact factor: 3.603

5.  Internet Recruitment of Asian American Breast Cancer Survivors.

Authors:  Eun-Ok Im; Yaelim Lee; Xiaopeng Ji; Jingwen Zhang; Sangmi Kim; Eunice Chee; Wonshik Chee; Hsiu-Min Tsai; Masakazu Nishigaki; Seon Ae Yeo; Marilyn M Shapira; Jun James Mao
Journal:  ANS Adv Nurs Sci       Date:  2016 Jul-Sep       Impact factor: 1.824

6.  A culturally tailored Internet cancer support group for Asian American breast cancer survivors: A randomized controlled pilot intervention study.

Authors:  Wonshik Chee; Yaelim Lee; Eun-Ok Im; Eunice Chee; Hsiu-Min Tsai; Masakazu Nishigaki; Seon Ae Yeo; Marilyn M Schapira; Jun James Mao
Journal:  J Telemed Telecare       Date:  2016-08-02       Impact factor: 6.184

7.  From Diagnosis to Death: A Case Study of Coping With Breast Cancer as Seen Through Online Discussion Group Messages.

Authors:  Kuang-Yi Wen; Fiona McTavish; Gary Kreps; Meg Wise; David Gustafson
Journal:  J Comput Mediat Commun       Date:  2011-01-13

Review 8.  Online support groups for women with breast cancer.

Authors:  Eilis McCaughan; Kader Parahoo; Irene Hueter; Laurel Northouse; Ian Bradbury
Journal:  Cochrane Database Syst Rev       Date:  2017-03-10

9.  Coping with breast cancer: Reflections from Chinese American, Korean American, and Mexican American women.

Authors:  Patricia Gonzalez; Alicia Nuñez; Ming Wang-Letzkus; Jung-Won Lim; Katrina F Flores; Anna María Nápoles
Journal:  Health Psychol       Date:  2015-09-21       Impact factor: 4.267

10.  Characteristics of cancer patients in internet cancer support groups.

Authors:  Eun-Ok Im; Wonshik Chee; Yi Liu; Hyun Ju Lim; Enrique Guevara; Hsiu-Min Tsai; Maresha Clark; Melinda Bender; Hyunjeong Shin; Kyung Suk Kim; Young Hee Kim
Journal:  Comput Inform Nurs       Date:  2007 Nov-Dec       Impact factor: 1.985

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