Literature DB >> 12408521

Quality of life in patients with inflammatory bowel disease: translation, data quality, scaling assumptions, validity, reliability and sensitivity to change of the Norwegian version of IBDQ.

T Bernklev1, B Moum, T Moum.   

Abstract

BACKGROUND: The use of quality of life (QoL) questionnaires in clinical medicine must be based on instruments that are reliable and valid. The aim of this study was to describe the translation of the Inflammatory Bowel Disease Questionnaire (IBDQ) into Norwegian, its scaling assumptions and the psychometric properties of the translated questionnaire.
METHOD: All patients included were recruited from an ongoing epidemiological study started in 1990 (the IBSEN trial), based on the registration of undiagnosed cases of Crohn disease (CD) or ulcerative colitis (UC) in subjects permanently residing in the study area the year before registration. At the 5-year follow-up visit in the hospital, all patients between 18 and 75 years of age were invited to participate in this QoL study, and those willing were interviewed and asked to complete the two QoL questionnaires, IBDQ and SF-36, on two different occasions separated by 6 months. The IBDQ was tested for validity, reliability and responsiveness.
RESULTS: In total, 497 patients (93%) completed the IBDQ questionnaire at visit 1, and 493 (92%) completed SF-36. The mean age was 43.3 years, 48% were female. We found that the Norwegian version of the IBDQ (N-IBDQ) consists of five underlying dimensions in contrast to the four dimensions previously reported. Psychometric testing of the N-IBDQ indicates that the questionnaire is valid, reliable, has a high degree of responsiveness and that the results are comparable to those reported from other groups, even though our findings are based on a different factorial structure than the original McMaster version.
CONCLUSION: The N-IBDQ consists of five different dimensions in contrast to the four dimensions previously reported. Good item internal consistency, validity, reliability and responsiveness were demonstrated.

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Mesh:

Year:  2002        PMID: 12408521     DOI: 10.1080/003655202760373371

Source DB:  PubMed          Journal:  Scand J Gastroenterol        ISSN: 0036-5521            Impact factor:   2.423


  14 in total

1.  Quality of life in patients with inflammatory bowel disease: translation, validity, reliability and sensitivity to change of the Norwegian version of the short health scale (SHS).

Authors:  Lars-Petter Jelsness-Jørgensen; Tomm Bernklev; Bjørn Moum
Journal:  Qual Life Res       Date:  2011-12-07       Impact factor: 4.147

2.  Trends and current issues in adult fecal incontinence (FI): Towards enhancing the quality of life for FI patients.

Authors:  Gino C Matibag; Hiroshi Nakazawa; Paolo Giamundo; Hiko Tamashiro
Journal:  Environ Health Prev Med       Date:  2003-09       Impact factor: 3.674

3.  The new simplified MARIA score applies beyond clinical trials: A suitable clinical practice tool for Crohn's disease that parallels a simple endoscopic index and fecal calprotectin.

Authors:  Joana Roseira; Ana Rita Ventosa; Helena Tavares de Sousa; Jorge Brito
Journal:  United European Gastroenterol J       Date:  2020-07-14       Impact factor: 4.623

4.  Chronic fatigue is associated with increased disease-related worries and concerns in inflammatory bowel disease.

Authors:  Lars-Petter Jelsness-Jørgensen; Tomm Bernklev; Magne Henriksen; Roald Torp; Bjørn Moum
Journal:  World J Gastroenterol       Date:  2012-02-07       Impact factor: 5.742

Review 5.  Assessing patient reported outcome measures: A practical guide for gastroenterologists.

Authors:  Laith Alrubaiy; Hayley A Hutchings; John G Williams
Journal:  United European Gastroenterol J       Date:  2014-12       Impact factor: 4.623

6.  Assessing quality of life in Crohn's disease: development and validation of the Crohn's Life Impact Questionnaire (CLIQ).

Authors:  Jeanette Wilburn; Stephen P McKenna; James Twiss; Karen Kemp; Simon Campbell
Journal:  Qual Life Res       Date:  2015-02-22       Impact factor: 4.147

7.  Impact of demographic factors, medication and symptoms on disease-specific quality of life in inflammatory bowel disease.

Authors:  Johanna Haapamäki; Ulla Turunen; Risto P Roine; Martti A Färkkilä; Perttu E T Arkkila
Journal:  Qual Life Res       Date:  2009-07-23       Impact factor: 4.147

8.  Worries and Concerns among Inflammatory Bowel Disease Patients Followed Prospectively over One Year.

Authors:  Lars-Petter Jelsness-Jørgensen; Bjørn Moum; Tomm Bernklev
Journal:  Gastroenterol Res Pract       Date:  2011-09-06       Impact factor: 2.260

9.  Validation of the Persian version of the inflammatory bowel disease questionnaire (IBDQ) in ulcerative colitis patients.

Authors:  Iradj Maleki; Tarang Taghvaei; Maryam Barzin; Kamyar Amin; Alireza Khalilian
Journal:  Caspian J Intern Med       Date:  2015

10.  Health-related quality of life in Chinese patients with mild and moderately active ulcerative colitis.

Authors:  Kai Zheng; Shengsheng Zhang; Chuijie Wang; Wenxia Zhao; Hong Shen
Journal:  PLoS One       Date:  2015-04-27       Impact factor: 3.240

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