OBJECTIVES: To investigate the relation of demographic factors, medication and symptoms to health-related quality of life in patients with inflammatory bowel disease, and to identify patients in need of special support. METHODS: A questionnaire packet comprising the Inflammatory Bowel Disease Questionnaire (IBDQ) and the European Federation of Crohn's and Colitis Associations' (EFCCA) Survey Questionnaire was sent to 3,852 adult members of the Crohn and Colitis Association of Finland. IBDQ was used for measuring health-related quality of life (HRQoL), and the EFCCA questionnaire gave information about demographics, symptoms and medication. RESULTS: Altogether 2,386 questionnaires (62%) were available for analysis. Patients reporting symptoms affecting leisure activities or work had significantly lower total IBDQ scores (indicating worse HRQoL) than patients with less disturbing symptoms. Satisfaction with current therapy, female gender and age affected the scores. Subjects who had undergone surgery scored lower than those who had not. Patients currently receiving corticosteroids and newly diagnosed patients had lower scores than other patients. CONCLUSIONS: In everyday practice, paying attention to and reducing patients' symptoms and their impact on daily life is important when aiming at improving HRQoL. Special attention should be given to patients who have undergone surgery, and to newly diagnosed patients.
OBJECTIVES: To investigate the relation of demographic factors, medication and symptoms to health-related quality of life in patients with inflammatory bowel disease, and to identify patients in need of special support. METHODS: A questionnaire packet comprising the Inflammatory Bowel Disease Questionnaire (IBDQ) and the European Federation of Crohn's and Colitis Associations' (EFCCA) Survey Questionnaire was sent to 3,852 adult members of the Crohn and Colitis Association of Finland. IBDQ was used for measuring health-related quality of life (HRQoL), and the EFCCA questionnaire gave information about demographics, symptoms and medication. RESULTS: Altogether 2,386 questionnaires (62%) were available for analysis. Patients reporting symptoms affecting leisure activities or work had significantly lower total IBDQ scores (indicating worse HRQoL) than patients with less disturbing symptoms. Satisfaction with current therapy, female gender and age affected the scores. Subjects who had undergone surgery scored lower than those who had not. Patients currently receiving corticosteroids and newly diagnosed patients had lower scores than other patients. CONCLUSIONS: In everyday practice, paying attention to and reducing patients' symptoms and their impact on daily life is important when aiming at improving HRQoL. Special attention should be given to patients who have undergone surgery, and to newly diagnosed patients.
Authors: Brian G Feagan; Walter Reinisch; Paul Rutgeerts; William J Sandborn; Songkai Yan; Debra Eisenberg; Mohan Bala; Jewel Johanns; Allan Olson; Stephen B Hanauer Journal: Am J Gastroenterol Date: 2007-02-23 Impact factor: 10.864
Authors: Fabrizio Michelassi; John Lee; Michele Rubin; Alessandro Fichera; Kristen Kasza; Theodore Karrison; Roger D Hurst Journal: Ann Surg Date: 2003-09 Impact factor: 12.969
Authors: T Bernklev; J Jahnsen; E Aadland; J Sauar; T Schulz; I Lygren; M Henriksen; N Stray; O Kjellevold; M Vatn; B Moum Journal: Scand J Gastroenterol Date: 2004-04 Impact factor: 2.423
Authors: Samantha Conley; Deborah D Proctor; Sangchoon Jeon; Robert S Sandler; Nancy S Redeker Journal: Res Nurs Health Date: 2017-08-17 Impact factor: 2.228
Authors: Bharati Kochar; Christopher F Martin; Michael D Kappelman; Brennan M Spiegel; Wenli Chen; Robert S Sandler; Millie D Long Journal: Am J Gastroenterol Date: 2017-08-29 Impact factor: 10.864
Authors: Carl Brown; Peter R Gibson; Ailsa Hart; Gilaad G Kaplan; Sumesh Kachroo; Qian Ding; Emily Hautamaki; Tao Fan; Christopher M Black; Xiaohan Hu; Kathleen Beusterien Journal: Springerplus Date: 2015-10-05
Authors: Farzaneh Habibi; Mohammad Emadoddin Habibi; Ali Gharavinia; Sadegh Baradaran Mahdavi; Mohammad Javad Akbarpour; Abdolmehdi Baghaei; Mohammad Hassan Emami Journal: J Res Med Sci Date: 2017-09-26 Impact factor: 1.852