Literature DB >> 12356290

Perceived barriers to Internet-based health communication on human genetics.

Jay M Bernhardt1, Ruth Ann Weaver Lariscy, Roxanne L Parrott, Kami J Silk, Elizabeth M Felter.   

Abstract

The Internet has emerged as potential vehicle for distributing health communication to millions of individuals because it is interactive, user controlled, and offers breadth and depth of information. However, its widespread use by the public may be limited due to three overarching concerns: privacy and confidentiality, information accuracy and perceptions of credibility, including limited credibility of some government-sponsored web sites. To explore the potential of using the Internet, especially for delivering information on human genetics communication, 15 focus groups and one interview were conducted with African American and European American adult males and females in a southeastern town. We found that the participants recognized great potential in the Internet for health communication on human genetics, but they also voiced concerns about the credibility and accuracy of online information, lack of trust in many web sites, and fear of safeguarding privacy. Their concerns are summarized here, along with potential remedies health communicators could implement and should research further. The Internet cannot achieve its full potential for human genetics communication until the public's concerns are addressed and resolved.

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Year:  2002        PMID: 12356290     DOI: 10.1080/10810730290088166

Source DB:  PubMed          Journal:  J Health Commun        ISSN: 1081-0730


  21 in total

1.  Newborn screening education on the internet: a content analysis of North American newborn screening program websites.

Authors:  Makda H Araia; Beth K Potter
Journal:  J Community Genet       Date:  2011-04-15

2.  Genetics blogs as a public health tool: assessing credibility and influence.

Authors:  L Wagner; R Paquin; S Persky
Journal:  Public Health Genomics       Date:  2012-04-04       Impact factor: 2.000

3.  Predictors and Effects of Training on an Online Health Education and Support System for Women with Breast Cancer.

Authors:  Helene McDowell; Eunkyung Kim; Bret R Shaw; Jeong Yeob Han; Lauren Gumieny
Journal:  J Comput Mediat Commun       Date:  2010-04

4.  Ascertaining consumer perspectives of medication information sources using a modified repertory grid technique.

Authors:  Jennifer Tio; Adam LaCaze; W Neil Cottrell
Journal:  Pharm World Sci       Date:  2006-12-23

5.  Participation in genetic testing research varies by social group.

Authors:  Sharon Hensley Alford; Colleen M McBride; Robert J Reid; Eric B Larson; Andreas D Baxevanis; Lawrence C Brody
Journal:  Public Health Genomics       Date:  2010-03-18       Impact factor: 2.000

6.  African American men's perspectives on promoting physical activity: "We're not that difficult to figure out!".

Authors:  Daniela B Friedman; Steven P Hooker; Sara Wilcox; Ericka L Burroughs; Carol E Rheaume
Journal:  J Health Commun       Date:  2012-07-18

7.  Challenges and strategies of the Genetics Home Reference.

Authors:  Joyce A Mitchell; Cathy Fomous; Jane Fun
Journal:  J Med Libr Assoc       Date:  2006-07

8.  "I am pregnant and my husband has diabetes. Is there a risk for my child?" A qualitative study of questions asked by email about the role of genetic susceptibility to diabetes.

Authors:  Suzanne C M van Esch; Martina C Cornel; Frank J Snoek
Journal:  BMC Public Health       Date:  2010-11-10       Impact factor: 3.295

9.  Impact of delivery models on understanding genomic risk for type 2 diabetes.

Authors:  S B Haga; W T Barry; R Mills; L Svetkey; S Suchindran; H F Willard; G S Ginsburg
Journal:  Public Health Genomics       Date:  2014-02-27       Impact factor: 2.000

10.  Public trust in genomic risk assessment for type 2 diabetes mellitus.

Authors:  Rachel Mills; William Barry; Susanne B Haga
Journal:  J Genet Couns       Date:  2013-12-03       Impact factor: 2.537

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