Literature DB >> 12199658

User involvement in clinical governance.

Susan Pickard1, Martin Marshall, Anne Rogers, Rod Sheaff, Bonnie Sibbald, Stephen Campbell, Shirley Halliwell, Martin Roland.   

Abstract

OBJECTIVES: To investigate the involvement of users in clinical governance activities within Primary Care Groups (PCGs) and Trusts (PCTs). Drawing on policy and guidance published since 1997, the paper sets out a framework for how users are involved in this agenda, evaluates practice against this standard and suggests why current practice for user involvement in clinical governance is flawed and why this reflects a flaw in the policy design as much as its implementation.
DESIGN: Qualitative data comprising semi-structured interviews, reviews of documentary evidence and relevant literature.
SETTING: Twelve PCGs/PCTs in England purposively selected to provide variation in size, rurality and group or trust status. PARTICIPANTS: Key stakeholders including Lay Board members (n = 12), Chief Executives (CEs) (n = 12), Clinical Governance Leads (CG leads) (n = 14), Mental Health Leads (MH leads) (n = 9), Board Chairs (n = 2) and one Executive Committee Lead.
RESULTS: Despite an acknowledgement of an organizational commitment to lay involvement, in practice very little has occurred. The role of lay Board members in setting priorities and implementing and monitoring clinical governance remains low. Beyond Board level, involvement of users, patients of GP practices and the general public is patchy and superficial. The PCGs/PCTs continue to rely heavily on Community Health Councils (CHCs) as a conduit or substitute for user involvement; although their abolition is planned, their role to be fulfilled by new organizations called Voices, which will have an expanded remit in addition to replacing CHCs.
CONCLUSIONS: Clarity is required about the role of lay members in the committees and subcommittees of PCGs and PCTs. Involvement of the wider public should spring naturally from the questions under consideration, rather than be regarded as an end in itself.

Entities:  

Mesh:

Year:  2002        PMID: 12199658      PMCID: PMC5060150          DOI: 10.1046/j.1369-6513.2002.00175.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  6 in total

Review 1.  A 'Third Way' for lay involvement: what evidence so far?

Authors:  S Pickard; K Smith
Journal:  Health Expect       Date:  2001-09       Impact factor: 3.377

2.  Clinical governance in primary care. Improving quality in the changing world of primary care.

Authors:  R Rosen
Journal:  BMJ       Date:  2000-09-02

3.  Accountability for clinical governance: developing collective responsibility for quality in primary care.

Authors:  P Allen
Journal:  BMJ       Date:  2000-09-09

4.  Whose interests do lay people represent? Towards an understanding of the role of lay people as members of committees.

Authors:  C Hogg; C Williamson
Journal:  Health Expect       Date:  2001-03       Impact factor: 3.377

Review 5.  Incorporating outpatient perceptions into definitions of quality.

Authors:  M Hart
Journal:  J Adv Nurs       Date:  1996-12       Impact factor: 3.187

6.  Patient participation in general practice: who participates?

Authors:  M Agass; A Coulter; D Mant; A Fuller
Journal:  Br J Gen Pract       Date:  1991-05       Impact factor: 5.386

  6 in total
  11 in total

1.  Whatever happened to shared decision-making?

Authors:  Angela Coulter
Journal:  Health Expect       Date:  2002-09       Impact factor: 3.377

2.  A survey and audit of the first 'Guides to Local Health Services' produced by Primary Care Trusts in England.

Authors:  Jenny Noble; Mark Hann; Rod Sheaff; Martin Marshall
Journal:  Health Expect       Date:  2005-06       Impact factor: 3.377

3.  Lay perceptions of the desired role and type of user involvement in clinical governance.

Authors:  Andrea Litva; Krysia Canvin; Michael Shepherd; Ann Jacoby; Mark Gabbay
Journal:  Health Expect       Date:  2009-03       Impact factor: 3.377

4.  [What are patients' rights?].

Authors:  María Dolores Navarro Rubio; Giovanna Gabriele Muñiz; Albert J Jovell Fernández
Journal:  Aten Primaria       Date:  2008-07       Impact factor: 1.137

5.  Exploring the influence of service user involvement on health and social care services for cancer.

Authors:  Pamela Attree; Sara Morris; Sheila Payne; Suzanne Vaughan; Susan Hinder
Journal:  Health Expect       Date:  2011-03       Impact factor: 3.377

6.  The role of community representatives on health service committees: staff expectations vs. reality.

Authors:  Sally Nathan; Lynda Johnston; Jeffrey Braithwaite
Journal:  Health Expect       Date:  2010-10-28       Impact factor: 3.377

7.  Patients' priorities for ambulatory hospital care centres. A survey and discrete choice experiment among elderly and chronically ill patients of a Dutch hospital.

Authors:  Akke Albada; Mattanja Triemstra
Journal:  Health Expect       Date:  2009-03       Impact factor: 3.377

8.  Captured voices in cancer: experiences from networking between individuals with experiential and professional knowledge.

Authors:  Christina Carlsson; Kerstin Segesten; Mef Nilbert; Kerstin Nilsson
Journal:  BMC Health Serv Res       Date:  2007-02-19       Impact factor: 2.655

9.  Involvement of patients or their representatives in quality management functions in EU hospitals: implementation and impact on patient-centred care strategies.

Authors:  Oliver Groene; Rosa Sunol; Niek S Klazinga; Aolin Wang; Maral Dersarkissian; Caroline A Thompson; Andrew Thompson; Onyebuchi A Arah
Journal:  Int J Qual Health Care       Date:  2014-03-09       Impact factor: 2.038

10.  Consumers or Citizens? Whose Voice Will Healthwatch Represent and Will It Matter? Comment on "Challenges Facing Healthwatch, a New Consumer Champion in England".

Authors:  Brad Wright
Journal:  Int J Health Policy Manag       Date:  2016-11-01
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