Literature DB >> 12133674

Human rights, politics, and reviews of research ethics.

Chris Beyrer1, Nancy E Kass.   

Abstract

Although the human rights movement and the sphere of research ethics have overlapping principles and goals, there has been little attempt to incorporate external political and human rights contexts into research ethics codes or ethics reviews. Every element of a research ethics review--the balance of risks and benefits, the assurance of rights for individual participants, and the fair selection of research populations--can be affected by the political and human rights background in which a study is done. Research that at first seems to be low in risk may become high in risk if implemented in a country where the government might breach the confidentiality of study results or where results might be used to deport a refugee group. Researchers should determine whether research could or should be done by consulting human rights organisations and, when possible, a trusted colleague, to learn the background political context and human rights conditions of the settings in which they propose to do research.

Entities:  

Keywords:  Biomedical and Behavioral Research

Mesh:

Year:  2002        PMID: 12133674     DOI: 10.1016/S0140-6736(02)09465-5

Source DB:  PubMed          Journal:  Lancet        ISSN: 0140-6736            Impact factor:   79.321


  16 in total

Review 1.  Designing research in vulnerable populations: lessons from HIV prevention trials that stopped early.

Authors:  Edward J Mills; Sonal Singh; Jerome A Singh; James J Orbinski; Mitchell Warren; Ross E Upshur
Journal:  BMJ       Date:  2005-12-10

2.  Motivations, understanding, and voluntariness in international randomized trials.

Authors:  Nancy E Kass; Suzanne Maman; Joan Atkinson
Journal:  IRB       Date:  2005 Nov-Dec

3.  Integrating ethics, health policy and health systems in low- and middle-income countries: case studies from Malaysia and Pakistan.

Authors:  Adnan A Hyder; Maria Merritt; Joseph Ali; Nhan T Tran; Kulanthayan Subramaniam; Tasleem Akhtar
Journal:  Bull World Health Organ       Date:  2008-08       Impact factor: 9.408

4.  Human rights, cultural pluralism, and international health research.

Authors:  Patricia A Marshall
Journal:  Theor Med Bioeth       Date:  2005

5.  Voluntary participation and informed consent to international genetic research.

Authors:  Patricia A Marshall; Clement A Adebamowo; Adebowale A Adeyemo; Temidayo O Ogundiran; Mirjana Vekich; Teri Strenski; Jie Zhou; T Elaine Prewitt; Richard S Cooper; Charles N Rotimi
Journal:  Am J Public Health       Date:  2006-10-03       Impact factor: 9.308

6.  Structural and Interpersonal Benefits and Risks of Participation in HIV Research: Perspectives of Female Sex Workers in Guatemala.

Authors:  Shira M Goldenberg; Monica Rivera Mindt; Teresita Rocha Jimenez; Kimberly C Brouwer; Sonia Morales Miranda; Celia B Fisher
Journal:  Ethics Behav       Date:  2014-08-14

7.  The Convention on the Rights of Persons with Disabilities: a foundation for ethical disability and health research in developing countries.

Authors:  Jo Durham; Claire E Brolan; Bryan Mukandi
Journal:  Am J Public Health       Date:  2014-09-11       Impact factor: 9.308

8.  Medical politics 101.

Authors:  Bjj Abdullah; Kh Ng
Journal:  Biomed Imaging Interv J       Date:  2007-07-01

9.  Human rights research and ethics review: protecting individuals or protecting the state?

Authors:  Joseph J Amon; Stefan D Baral; Chris Beyrer; Nancy Kass
Journal:  PLoS Med       Date:  2012-10-16       Impact factor: 11.069

Review 10.  Ethics of research on survivors of trauma.

Authors:  Soraya Seedat; Willem P Pienaar; David Williams; Daniel J Stein
Journal:  Curr Psychiatry Rep       Date:  2004-08       Impact factor: 8.081

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