Literature DB >> 25211760

The Convention on the Rights of Persons with Disabilities: a foundation for ethical disability and health research in developing countries.

Jo Durham1, Claire E Brolan, Bryan Mukandi.   

Abstract

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) has foregrounded disability as a human rights and equity issue, elevating it to a priority global research area. Academics from Western universities are likely to play an increasing role in disability health research in developing countries. In such contexts, there is a need to bridge the gap between procedural ethics and the realities of disability research in cross-cultural contexts. We provide guidance on engaging in ethical disability health research that intersects with and upholds the CRPD. We highlight challenges and tensions in doing so, underscoring the need to be sensitive to the sociocultural and political context of disability that determines how ethical research should proceed. We conclude with 5 recommendations.

Entities:  

Mesh:

Year:  2014        PMID: 25211760      PMCID: PMC4202975          DOI: 10.2105/AJPH.2014.302006

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  28 in total

Review 1.  Ethical challenges in the conduct of research involving persons with mental retardation.

Authors:  R I Freedman
Journal:  Ment Retard       Date:  2001-04

Review 2.  Ethics, disability and the International Classification of Functioning, Disability and Health.

Authors:  Jerome Bickenbach
Journal:  Am J Phys Med Rehabil       Date:  2012-02       Impact factor: 2.159

3.  Research and clinical ethics after the tsunami: Sri Lanka.

Authors:  Athula Sumathipala; Sisira Siribaddana
Journal:  Lancet       Date:  2005 Oct 22-28       Impact factor: 79.321

4.  Ethical research in refugee communities and the use of community participatory methods.

Authors:  B Heidi Ellis; Maryam Kia-Keating; Siraad Aden Yusuf; Alisa Lincoln; Abdirahman Nur
Journal:  Transcult Psychiatry       Date:  2007-09

5.  Moving from research ethics review to research ethics systems in low-income and middle-income countries.

Authors:  Adnan A Hyder; Liza Dawson; Abdulgafoor M Bachani; James V Lavery
Journal:  Lancet       Date:  2009-03-07       Impact factor: 79.321

Review 6.  The health of disabled people and the social determinants of health.

Authors:  E Emerson; R Madden; H Graham; G Llewellyn; C Hatton; J Robertson
Journal:  Public Health       Date:  2011-03       Impact factor: 2.427

7.  A data revolution for disability-inclusive development.

Authors:  Sophie Mitra
Journal:  Lancet Glob Health       Date:  2013-08-19       Impact factor: 26.763

8.  'You need to let your voice be heard': research participants' views on research.

Authors:  K E McDonald; C A Kidney; M Patka
Journal:  J Intellect Disabil Res       Date:  2012-02-01

9.  Two steps forward, one step back? A commentary on the disease-specific core sets of the International Classification of Functioning, Disability and Health (ICF).

Authors:  Anne McIntyre; Stephanie Tempest
Journal:  Disabil Rehabil       Date:  2007-09-30       Impact factor: 3.033

10.  Tailoring consent to context: designing an appropriate consent process for a biomedical study in a low income setting.

Authors:  Fasil Tekola; Susan J Bull; Bobbie Farsides; Melanie J Newport; Adebowale Adeyemo; Charles N Rotimi; Gail Davey
Journal:  PLoS Negl Trop Dis       Date:  2009-07-21
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  4 in total

1.  "You can't be cold and scientific": community views on ethical issues in intellectual disability research.

Authors:  Katherine E McDonald; Nicole M Schwartz; Colleen M Gibbons; Robert S Olick
Journal:  J Empir Res Hum Res Ethics       Date:  2015-03-13       Impact factor: 1.742

2.  The legal imperative for treating rare disorders.

Authors:  Hanna I Hyry; Jonathan C P Roos; Jeremy Manuel; Timothy M Cox
Journal:  Orphanet J Rare Dis       Date:  2013-09-06       Impact factor: 4.123

Review 3.  Human resources for health (and rehabilitation): Six Rehab-Workforce Challenges for the century.

Authors:  Tiago S Jesus; Michel D Landry; Gilles Dussault; Inês Fronteira
Journal:  Hum Resour Health       Date:  2017-01-23

4.  Qualitative study exploring the barriers to menstrual hygiene management faced by adolescents and young people with a disability, and their carers in the Kavrepalanchok district, Nepal.

Authors:  Jane Wilbur; Shubha Kayastha; Thérèse Mahon; Belen Torondel; Shaffa Hameed; Anita Sigdel; Amrita Gyawali; Hannah Kuper
Journal:  BMC Public Health       Date:  2021-03-10       Impact factor: 3.295

  4 in total

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