AIM: The objective of this study was to outline some of the reasons why palliative care patients are seen to be vulnerable as research participants. METHOD: The author conducted a literature review to ascertain whether or not palliative care patients should be involved in research. RESULTS: The author found that the case for involving patients who are receiving palliative care in research is overwhelming, but that the protection of these patients must be an integral part of the research. CONCLUSION: The research design should essentially incorporate the same aims as the palliative care philosophy: patient autonomy, open awareness, holism, respect and collaboration.
AIM: The objective of this study was to outline some of the reasons why palliative care patients are seen to be vulnerable as research participants. METHOD: The author conducted a literature review to ascertain whether or not palliative care patients should be involved in research. RESULTS: The author found that the case for involving patients who are receiving palliative care in research is overwhelming, but that the protection of these patients must be an integral part of the research. CONCLUSION: The research design should essentially incorporate the same aims as the palliative care philosophy: patient autonomy, open awareness, holism, respect and collaboration.
Authors: Gwenyth R Wallen; Karen Baker; Marilyn Stolar; Claiborne Miller-Davis; Nancy Ames; Jan Yates; Jacques Bolle; Donna Pereira; Diane St Germain; Daniel Handel; Ann Berger Journal: Qual Life Res Date: 2011-11-19 Impact factor: 4.147
Authors: Marie Bakitas; Kathleen Doyle Lyons; Mark T Hegel; Stefan Balan; Kathleen N Barnett; Frances C Brokaw; Ira R Byock; Jay G Hull; Zhongze Li; Elizabeth McKinstry; Janette L Seville; Tim A Ahles Journal: Palliat Support Care Date: 2009-03