Literature DB >> 11902023

An intervention to increase coping and reduce health care utilization for school-age children and adolescents with sickle cell disease.

M E Broome1, V Maikler, S Kelber, P Bailey, G Lea.   

Abstract

The purpose of this study was to examine whether coping with pain changed immediately and one year after a self-care intervention for school-age children and adolescents with sickle cell disease (SCD). Sixty-five children and 32 adolescents attended an educational program for living with SCD. They were then randomly assigned to relaxation, art therapy or attention-control groups. Coping was measured before, after the intervention, and 12 months later. Thirty-three children and 14 adolescents completed the one year follow-up. Although there was no significant increase in the overall number of coping strategies school-age children and adolescents used from baseline to 12 months, there was a significant increase in those strategies specifically targeted by the intervention. For adolescents, there was a significant increase in the total number of coping scores used before the intervention and one year later. When compared to well African-American adolescents, overall coping scores in this sample were significantly lower. Health care utilization related to clinic visits, emergency department visits and hospitalizations decreased significantly for all participants in the study.

Entities:  

Mesh:

Year:  2001        PMID: 11902023

Source DB:  PubMed          Journal:  J Natl Black Nurses Assoc        ISSN: 0885-6028


  12 in total

1.  The Cellie Coping Kit for Sickle Cell Disease: Initial acceptability and feasibility.

Authors:  Meghan L Marsac; Olivia G Klingbeil; Aimee K Hildenbrand; Melissa A Alderfer; Nancy Kassam-Adams; Kim Smith-Whitley; Lamia P Barakat
Journal:  Clin Pract Pediatr Psychol       Date:  2014-12-01

2.  Evaluation and Treatment of Sickle Cell Pain in the Emergency Department: Paths to a Better Future.

Authors:  William T Zempsky
Journal:  Clin Pediatr Emerg Med       Date:  2010-12-01

Review 3.  Psychological therapies for sickle cell disease and pain.

Authors:  Kofi A Anie; John Green
Journal:  Cochrane Database Syst Rev       Date:  2015-05-08

4.  Health-related stigma in young adults with sickle cell disease.

Authors:  Coretta M Jenerette; Cheryl Brewer
Journal:  J Natl Med Assoc       Date:  2010-11       Impact factor: 1.798

Review 5.  Considerations for Selecting Cognitive Endpoints and Psychological Patient-Reported Outcomes for Clinical Trials in Pediatric Patients With Sickle Cell Disease.

Authors:  Anna M Hood; Lori E Crosby; Hanne Stotesbury; Melanie Kölbel; Fenella J Kirkham
Journal:  Front Neurol       Date:  2022-06-21       Impact factor: 4.086

6.  Improving self-management in adolescents with sickle cell disease.

Authors:  Lori E Crosby; Anna Hood; Katherine Kidwell; Cara Nwankwo; James Peugh; Heather Strong; Charles Quinn; Maria T Britto
Journal:  Pediatr Blood Cancer       Date:  2020-07-22       Impact factor: 3.167

Review 7.  Meditation for adults with haematological malignancies.

Authors:  Ines Salhofer; Andrea Will; Ina Monsef; Nicole Skoetz
Journal:  Cochrane Database Syst Rev       Date:  2016-02-03

Review 8.  Interventions for patients and caregivers to improve knowledge of sickle cell disease and recognition of its related complications.

Authors:  Monika R Asnani; Kim R Quimby; Nadia R Bennett; Damian K Francis
Journal:  Cochrane Database Syst Rev       Date:  2016-10-06

Review 9.  The clinical and cost effectiveness of group art therapy for people with non-psychotic mental health disorders: a systematic review and cost-effectiveness analysis.

Authors:  Lesley Uttley; Matt Stevenson; Alison Scope; Andrew Rawdin; Anthea Sutton
Journal:  BMC Psychiatry       Date:  2015-07-07       Impact factor: 3.630

10.  Adapting medical guidelines to be patient-centered using a patient-driven process for individuals with sickle cell disease and their caregivers.

Authors:  Robert Michael Cronin; Tilicia L Mayo-Gamble; Sarah-Jo Stimpson; Sherif M Badawy; Lori E Crosby; Jeannie Byrd; Emmanuel J Volanakis; Adetola A Kassim; Jean L Raphael; Velma M Murry; Michael R DeBaun
Journal:  BMC Hematol       Date:  2018-06-08
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