Literature DB >> 11824933

Constructing an account by contrast in counselling for childhood genetic testing.

Srikant Sarangi1, Angus Clarke.   

Abstract

Genetic counselling sessions are rich and complex sites of accounting practices for decision-making in which clinicians are meant to facilitate rather than control the decisions made by their clients. This often means the adoption of a non-directive stance as counsellors lay out various possible courses of action from which the client can choose, while both client and counsellor may need to bear in mind a wide range of practical and ethical issues. With regard to childhood predictive testing, the complexity of decision-making is manifest not only in relation to the severity of the genetic condition being discussed, but also in terms of who controls the information, who might be affected by it and who makes decisions on whose behalf. In this paper we use discourse analytic methods to examine a single case where the clinician and the parent negotiate decisions about childhood testing and the extent to which the parent can influence this process. In discursive terms, we show how the child's future autonomy is juxtaposed against the parent's current rights. In order fully to understand the various characters and events deployed in the accounting practices of the parent and the genetic counsellor, we focus on one rhetorical device, i.e., contrast, as it is manifest at different levels of representation. We conclude that the interplay between a selected set of the contrast pairs contributes towards recursive interactional patterns as far as non-directive counselling is concerned, and consequently has implications for procedural outcomes.

Entities:  

Mesh:

Year:  2002        PMID: 11824933     DOI: 10.1016/s0277-9536(01)00029-6

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  12 in total

1.  A qualitative study exploring genetic counsellors' experiences of counselling children.

Authors:  Fiona Ulph; James Leong; Cris Glazebrook; Ellen Townsend
Journal:  Eur J Hum Genet       Date:  2010-06-09       Impact factor: 4.246

2.  (Mis)alignments in counseling for Huntington's Disease predictive testing: clients' responses to reflective frames.

Authors:  Srikant Sarangi; Kristina Bennert; Lucy Howell; Angus Clarke; Peter Harper; Jonathon Gray
Journal:  J Genet Couns       Date:  2005-02       Impact factor: 2.537

3.  Doctor's expertise and managing discrepant information from other sources in genetic counseling: a conversation analytic perspective.

Authors:  Esa Lehtinen; Helena Kääriäinen
Journal:  J Genet Couns       Date:  2005-12       Impact factor: 2.537

4.  The causation of disease - the practical and ethical consequences of competing explanations.

Authors:  Ulla Räisänen; Marie-Jet Bekkers; Paula Boddington; Srikant Sarangi; Angus Clarke
Journal:  Med Health Care Philos       Date:  2006

Review 5.  Assessment of the content and process of genetic counseling: a critical review of empirical studies.

Authors:  Bettina Meiser; Jennifer Irle; Elizabeth Lobb; Kristine Barlow-Stewart
Journal:  J Genet Couns       Date:  2008-09-13       Impact factor: 2.537

6.  Initiation of reflective frames in counseling for Huntingtons Disease predictive testing.

Authors:  Srikant Sarangi; Kristina Bennert; Lucy Howell; Angus Clarke; Peter Harper; Jonathon Gray
Journal:  J Genet Couns       Date:  2004-04       Impact factor: 2.537

7.  Genetic counseling, insurance status, and elements of medical home: analysis of the national survey of children with special health care needs.

Authors:  Grace Wang; Cindy Watts
Journal:  Matern Child Health J       Date:  2007-02-27

8.  A qualitative study to explore how professionals in the United Kingdom make decisions to test children for a sickle cell carrier status.

Authors:  Melissa Noke; Sarah Peters; Alison Wearden; Fiona Ulph
Journal:  Eur J Hum Genet       Date:  2015-05-27       Impact factor: 4.246

9.  Professional ambivalence: accounts of ethical practice in childhood genetic testing.

Authors:  Michael Arribas-Ayllon; Srikant Sarangi; Angus Clarke
Journal:  J Genet Couns       Date:  2009-02-10       Impact factor: 2.537

10.  Disparities in current and future childhood and newborn carrier identification.

Authors:  Melissa Noke; Alison Wearden; Sarah Peters; Fiona Ulph
Journal:  J Genet Couns       Date:  2014-07-11       Impact factor: 2.537

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