Literature DB >> 11128904

Enabling our instruments: accommodation, universal design, and access to participation in research.

A R Meyers1, E M Andresen.   

Abstract

The objective of this article is to discuss problems related to full participation of people with disabilities in health services and health outcomes research. To show the problems and to suggest solutions, we offer examples from personal research experiences (ours and colleagues'), as well as from published literature, requirements of research agencies, web and news sources, and research participants' feedback. A combination of formal and informal processes can be used to enable future instruments and methods. There are ethical, legal, and methodologic imperatives for research participation enablement.

Entities:  

Mesh:

Year:  2000        PMID: 11128904     DOI: 10.1053/apmr.2000.20618

Source DB:  PubMed          Journal:  Arch Phys Med Rehabil        ISSN: 0003-9993            Impact factor:   3.966


  23 in total

1.  The SIP68: an abbreviated sickness impact profile for disability outcomes research.

Authors:  Upasana Nanda; Patricia M McLendon; Elena M Andresen; Eric Armbrecht
Journal:  Qual Life Res       Date:  2003-08       Impact factor: 4.147

Review 2.  Meeting the health care needs of persons with disabilities.

Authors:  Carolyn M Clancy; Elena M Andresen
Journal:  Milbank Q       Date:  2002       Impact factor: 4.911

3.  Structure of health-related quality of life among people with and without functional limitations.

Authors:  Willi Horner-Johnson; Rie Suzuki; Gloria L Krahn; Elena M Andresen; Charles E Drum
Journal:  Qual Life Res       Date:  2010-05-14       Impact factor: 4.147

4.  Inclusion of people with disabilities in telephone health surveillance surveys.

Authors:  Susan Kinne; Tari D Topolski
Journal:  Am J Public Health       Date:  2005-03       Impact factor: 9.308

Review 5.  Health related quality of life outcome instruments.

Authors:  Gunnar Németh
Journal:  Eur Spine J       Date:  2005-12-01       Impact factor: 3.134

6.  Scientific reasons for including persons with disabilities in clinical and translational diabetes research.

Authors:  Shirley M Moore
Journal:  J Diabetes Sci Technol       Date:  2012-03-01

7.  Measuring health-related quality of life for persons with mobility impairments: an enabled version of the short-form 36 (SF-36E).

Authors:  Katherine Froehlich-Grobe; Elena M Andresen; Charlene Caburnay; Glen W White
Journal:  Qual Life Res       Date:  2008-04-22       Impact factor: 4.147

8.  Making the best match: selecting outcome measures for clinical trials and outcome studies.

Authors:  Wendy J Coster
Journal:  Am J Occup Ther       Date:  2013 Mar-Apr

9.  The organization and financing of health services for persons with disabilities.

Authors:  Gerben Dejong; Susan E Palsbo; Phillip W Beatty; Gwyn C Jones; Thilo Knoll; Melinda T Neri
Journal:  Milbank Q       Date:  2002       Impact factor: 4.911

Review 10.  Uses of evidence in disability outcomes and effectiveness research.

Authors:  Alan M Jette; Julie J Keysor
Journal:  Milbank Q       Date:  2002       Impact factor: 4.911

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.