Literature DB >> 10947682

Serving the family from birth to the medical home. Newborn screening: a blueprint for the future - a call for a national agenda on state newborn screening programs

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Abstract

Year:  2000        PMID： 10947682

Source DB:  PubMed          Journal:  Pediatrics        ISSN： 0031-4005            Impact factor:   7.124


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  60 in total

1.  Policy issues and stakeholder concerns regarding the storage and use of residual newborn dried blood samples for research.

Authors:  Erin Rothwell; Rebecca Anderson; Jeffrey Botkin
Journal:  Policy Polit Nurs Pract       Date:  2010-05-10

2.  Newborn screening education on the internet: a content analysis of North American newborn screening program websites.

Authors:  Makda H Araia; Beth K Potter
Journal:  J Community Genet       Date:  2011-04-15

3.  Public attitudes regarding the use of residual newborn screening specimens for research.

Authors:  Jeffrey R Botkin; Erin Rothwell; Rebecca Anderson; Louisa Stark; Aaron Goldenberg; Michelle Lewis; Matthew Burbank; Bob Wong
Journal:  Pediatrics       Date:  2012-01-16       Impact factor: 7.124

4.  Design and evaluation of a decision aid for inviting parents to participate in a fragile X newborn screening pilot study.

Authors:  Donald B Bailey; Megan A Lewis; Shelly L Harris; Tracey Grant; Carla Bann; Ellen Bishop; Myra Roche; Sonia Guarda; Leah Barnum; Cynthia Powell; Bradford L Therrell
Journal:  J Genet Couns       Date:  2012-06-27       Impact factor: 2.537

5.  Acceptance of extended newborn screening: the problem of parental non-compliance.

Authors:  Adrian C Sewell; Boris Gebhardt; Jürgen Herwig; Ernst W Rauterberg
Journal:  Eur J Pediatr       Date:  2004-12       Impact factor: 3.183

6.  Electronic health record - public health (EHR-PH) system prototype for interoperability in 21st century healthcare systems.

Authors:  Anna O Orlova; Mark Dunnagan; Terese Finitzo; Michael Higgins; Todd Watkins; Allen Tien; Steven Beales
Journal:  AMIA Annu Symp Proc       Date:  2005

7.  Training programmes for developing countries.

Authors:  K K Solanki
Journal:  J Inherit Metab Dis       Date:  2007-07-23       Impact factor: 4.982

8.  Factors affecting parent-child relationships one year after positive newborn screening for cystic fibrosis or congenital hypothyroidism.

Authors:  Audrey Tluczek; Roseanne Clark; Anne Chevalier McKechnie; Roger L Brown
Journal:  J Dev Behav Pediatr       Date:  2015-01       Impact factor: 2.225

9.  Parental intentions to enroll children in a voluntary expanded newborn screening program.

Authors:  Ryan S Paquin; Holly L Peay; Lisa M Gehtland; Megan A Lewis; Donald B Bailey
Journal:  Soc Sci Med       Date:  2016-07-29       Impact factor: 4.634

10.  Phenylketonuria: an inborn error of phenylalanine metabolism.

Authors:  Robin A Williams; Cyril D S Mamotte; John R Burnett
Journal:  Clin Biochem Rev       Date:  2008-02
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